About Caregiving Across the States

The Caregiving Across the States Online Resource represents results from a 2-year 50-state caregiving study, The State of the States in Family Caregiver Support: A 50-State Study. The goal of the study was to profile the experience of all 50 states and the District of Columbia since the passage of the National Family Caregiver Support Program (NFCSP) in providing publicly funded caregiver support services to family and informal caregivers of older people and adults with disabilities.

We collected information from state agencies responsible for the administration of the NFCSP; Aged/Disabled Medicaid waivers; and state-funded programs that either have a caregiver-specific focus or include a family caregiving component.  Not included in this study were programs serving family caregivers of persons with developmental disabilities or grandparents raising grandchildren; or programs funded by the federal Alzheimer’s Disease Demonstration Grants to States that were considered “stand alone” rather than integrated into a larger caregiver support program.

Programmatic data used in this study were collected for fiscal year 2003; fiscal and legislative data were collected or obtained fiscal for fiscal years 2001 – 2003. For more information about the study’s methodology and data documentation, the written report is available for download.

The authors of this study would like to thank the U.S. Administration on Aging for partial support of this project, and the staff at the National Conference of State Legislatures who made important contributions to this study. 

Funding for this project was provided in part by a grant, number 90-CG-2631 from the U.S. Administration on Aging, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions.  Points of view or opinions do not, therefore, necessarily represent official Administration on Aging policy. OMB approval number 0985-0016.

Citation for the print version of report:

Feinberg, L. F., Newman, S. L.., Gray, L., & Kolb, K. N. (2004). The state of the states in family caregiver support: A 50 state study. San Francisco, CA: Family Caregiver Alliance.