Technical Assistance Centers are a partnership between
Family Caregiver Alliance and the ARCH National
Respite Network and Resource Center.
The Centers provide technical assistance to the Aging and Lifespan
Respite Networks on
caregiver and lifespan respite program development.
|Volume I, Number 4|
August 3, 2010
|Give Us Your Feedback|
You can further shape the content of the Newsletter and the
activities of the Technical Assistance Centers by telling us about your areas of interest.
FCA's on Facebook. Get updates about caregiving by clicking the "Like" button.
FCA has a new address effective
August 16, 2010
Family Caregiver Alliance
180 Montgomery Street,
San Francisco, CA
Campaign For Better Care
month on Key Feature, Lynn Friss Feinberg, Director of the Campaign for Better Care at the National Partnership
for Women & Families in Washington D.C. answers questions about the
Campaign. Read more...
To see the full description of the
event, click on the date.
August 12: Deadline to apply for The Rosalinde
Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards.
August 12: ARCH Webinar: Tools for Collaboration
September 26-29: National Home and Community Based Services Conference, Atlanta, GA.
October 7: North Carolina Respite Care Coalition Respite Conference, Randleman, NC.
October 24-27: National Respite Conference, Baltimore, MD.
Research & Practice
Enhancing Cognitive Health Outcomes: The ECHO
Program is looking for families in Northeast Ohio If you or someone you know is experiencing memory loss, you may be eligible to
participate in the Cleveland-based ECHO program (Enhancing Cognitive Health Outcomes). Read more...
This is an opportunity for
family caregivers of Veterans to be heard and to improve services for caregivers of Veterans now and
beyond. Read more...
The National Alliance for Caregiving is Seeking Caregivers of
Veterans for a New Study
NIA Report: "Can Alzheimer's Disease Be
report examines risk factors for AD and discusses the possibilities of preventing or delaying the onset of the
disease. Read more...
published in Psychology and Aging (Volume 25, Number 1), examines the
contexts in which providing care to an elderly spouse may result in positive
outcomes. Read more...
Study Examines Positive Effects of Spousal
AoA: A Toolkit for Serving Diverse
Communities Toolkit recently released by the U.S. Administration on Aging provides the
Aging Network with easy to use methods for providing sensitive services for diverse
communities. Read more...
released by the Alzheimer's Association examines the costs associated with Alzheimer's disease and
possible Medicare and Medicaid savings if disease modifying treatments were
Report: "Changing the Trajectory of Alzheimer's
Dementia Spousal Caregivers More Likely to Get Dementia
Article in the May
2010 issue of the Journal of the American Geriatrics Society (Volume
58, Issue 5) reveals that spousal caregivers of people with dementia are more likely than noncaregivers to get
FCA's website: FCA Blogs! Kathle
en Kelly, Executive Director, and a number of dedicated FCA staff writers will cover in their blogs the issues
they are most passionate about: emerging public policy, excellence in caregiver interventions, recognition of
family caregivers in the media and numerous others. Join the discussion and post a comment of your own.
Give Us Your FeedbackYou can further shape the content of the Newsletter
and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please
respond to our brief questionnaire here.
Innovations Clearinghouse on Family
CaregivingFor more research based and research informed practices, visit FCA's Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to
identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from
the aging networks; and request specialized technical assistance.
Lifespan Respite News
Getting to know the
Lifespan Respite Partners
(Third in a continuing series)
first twelve AoA-funded Lifespan Respite Grantees are well into their
first year Facebookof funding. In the last newsletter, updates for the Lifespan
Respite Programs in Alabama, Arizona, and Illinois were provided. This
article highlights the primary activities of the North Carolina, South
Carolina, and Texas Lifespan Respite grantees as they work to implement
Lifespan Respite Care Programs in their states, as well as the roles of
the state respite coalition and the Aging and Disability Resource
Centers (ADRCs) in each project. Read more...
Listen to the
Lifespan Respite Webinar
ARCH's "Respite in the Faith Community"
Webinar provides an overview of national models of interfaith caregiving, as well as, innovative yet practical
approaches that local faith-based congregations and communities can take to provide respite to family caregivers
caring for children, adults, and the aging population. Read more...
Exclusively for Lifespan Respite Grantees and
State Lifespan Respite Grantees and their
designated stakeholders are invited to join a new networking webpage at ARCH's Technical Assistance Center for
Lifespan Respite. Read more...
For everyone--Join ARCH on Facebook and on Twitter @archrespite
Give ARCH your
FeedbackWe Need Your Input! The AoA funded
Lifespan Respite Training and Technical Assistance Project of the ARCH National Respite Network and Resource
Center would greatly appreciate your input in planning its training and TA activities. Please take a moment to
respond to our online questionnaire by clicking here.
|Family Caregiver Alliance | National Center on
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, VA 22003
This project is supported, in part, under a grant from the U.S. Department of Health and Human Services,
Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express
freely their findings and conclusions. These contents, however, do not necessarily represent the policy of
the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be
©2010 Family Caregiver Alliance. All rights reserved.
National Center on Caregiving at Family Caregiver Alliance works to
advance the development of high-quality and cost-effective policies and
programs for caregivers in every state in the country. The National
Center is a central source of information and technical assistance on
family caregiving for policymakers, health and service providers,
program developers, funders, media and families. For questions or
further information about the National Center on Caregiving, visit the Family Caregiver Alliance website at www.caregiver.org.
or unsubscribe to the Newsletter of the Technical Assistance Centers, use the following link: www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2366
Or, contact Family Caregiver Alliance using our toll-free phone number: (800) 445-8106
subscription information is used only for the purpose of improving this
service and tailoring it to the needs of its audience. Information
provided to us will not be shared with any other organization, agency,
corporation, entity or third party.
The Newsletter of the Technical
Assistance Centers is a
publication of the National Center on Caregiving at Family Caregiver
Alliance, 180 Montgomery Street, Suite 1100, San Francisco, CA 94104.
Campaign for Better Care
Supported by The Atlantic Philanthropies and led by the National Partnership for Women & Families, in
partnership with Community Catalyst and the National Health Law Program, the Campaign for Better Care aims to
ensure that health reform improves the way we deliver health care so that it will finally work for the most
vulnerable among us—older adults with multiple health conditions and their families. This month on Key
Feature, Lynn Friss Feinberg, Director of the Campaign for Better Care at the National Partnership for Women &
Families in Washington D.C. answers questions about the Campaign.
The Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards
Only 10 Days Left to Apply!
Deadline to apply: August 12,2010
Prizes for Innovative Caregiver Programs in: Policy & Advocacy, Diverse Communities, and Creative
Nonprofit organizations, government agencies and universities are invited to apply for the 2010 Rosalinde
Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards. The deadline to apply is August 12, 2010,
5:00 pm PST.
With generous support from The Rosalinde and Arthur Gilbert Foundation, three awards of $20,000 each will be
given to organizations to recognize unique programs that address the needs of Alzheimer's caregivers. One award
will be granted in each of these categories:
- Diverse/Multicultural Communities
- Creative Expression
- Policy and Advocacy
The National Center on Caregiving at Family Caregiver Alliance is overseeing this national awards program. To
see the details about the awards and access the online application, visit FCA's website.
Tools For Collaboration: Building and Sustaining Partnerships for Lifespan Respite
August 12, 2010, 3:00 - 4:15 p.m.
To register, click here.
At the heart of Lifespan Respite is the concept of collaboration. Throughout the Lifespan Respite Care Act,
and in the federal program guidance, references are made to collaboration and coordination among various
stakeholders at the federal, state and local levels. This webinar will explore the history, successes, and
challenges of collaboration among state agencies, state respite coalitions, and Aging and Disability Resource
Centers. While the lessons to be learned will be most useful for those directly involved in planning and
implementation of State Lifespan Respite programs and state respite coalitions, others working in social
service, long-term services and supports, and health systems will benefit as well.
- Barbara Snyder
Director of Corporate & Foundation Relations
Easter Seals Delaware & Maryland's Eastern Shore
Ms. Snyder was instrumental in helping to establish the DE Caregiver Coalition in 2003 and now directs the DE
Lifespan Respite Network.
- Barbara Schwartz
Illinois Department on Aging
Ms. Schwartz is the Illinois Department on Aging Project Supervisor for the federally-funded Lifespan Respite
Grant and oversees the Caregiver, Kinship and Intergenerational programs for the Department.
- Joseph Lugo
Aging Services Program Specialist
Administration on Aging, US Department of Health and Human Services
Mr. Lugo is the federal program officer for the Aging and Disability Resource Center Program at
National Home and Community Based Services Conference
September 26-29, 2010
The National Association of State Units on Aging (NASUA) is hosting the 26th National Home and Community
Based Services Conference September 26-29, 2010 in Atlanta Georgia. The conference will showcase national,
state and local delivery and policy developments vital for assuring Americans of all ages and abilities receive
the highest quality community living supports, care, and services possible. Registration for the conference is
now open. For more information, visit the website of the National Home and Community Based Services Conference.
North Carolina Respite Care Coalition Respite Conference, Randleman, NC
October 7, 2010
The North Carolina Respite Care Coalition will host a Respite Conference with a focus on Growing Great
Respite with Limited Funding. Speakers include W.C. Hoecke with Family Connections in South Carolina and Kelly
Tipler with Tennessee Respite Coalition. In addition, exceptional North Carolina Respite Programs will be
highlighted in special presentations.
For more information visit the
Coalition's website and contact Jane Macleod by regular mail at North Carolina Respite and Crisis Care
Coalition PO Box 165/Gibsonville NC 27249 or send her an email at [email protected]
National Respite Conference, Baltimore, MD
October 24-27, 2010
The Maryland Respite Care Coalition in partnership with the ARCH National Respite Network will host the
National Respite Conference October 24-27, 2010 at the Sheraton Baltimore City Center Hotel in Baltimore, MD.
The theme is RESPITE: Create It and is a call for advocates and professionals to showcase the creative ways in
which Respite Care is delivered throughout the nation.
This conference is intended for everyone who supports family members and caregivers of individuals across the
Lifespan. This is an especially exciting year as the new federally-funded Lifespan Respite States and the 20th
Anniversary of ARCH are celebrated.
For more information on the conference, visit the ARCH website.
Research and Practice
Enhancing Cognitive Health Outcomes: The ECHO Program is looking for families in Northeast Ohio
If you or someone you know is experiencing memory loss, you may be eligible to participate in the
Cleveland-based ECHO program (Enhancing Cognitive Health Outcomes). The ECHO program, developed by researchers
at Cleveland's Benjamin Rose Institute on Aging, is funded by the Ohio Department of Aging through the
Administration on Aging, U.S. Department of Health and Human Services. ECHO participants perform "mental
exercises" on a computer to help them stay mentally active, learn about memory loss, and how to improve
communication skills. To be eligible for the ECHO project, the person with memory loss must live in Northeast
- Be 50 years of age or older;
- Live in the community rather than in an institutional setting;
- Have mild to moderate memory loss; and
- Have a close family member who helps or will help them.
For more information about the ECHO program please contact Sarah Schwartz at (216) 373-1612 or
The National Alliance for Caregiving is Seeking Caregivers of Veterans for a New Study.
Caregivers of Veterans may participate in the study by responding to an online survey. To take the survey
please log on to: www.gwsurvey.com/caregiversofveterans.html.
For more information, please contact Kathy Cameron at [email protected] or (703) 585-6607
For caregivers who do not have Internet access, the online survey is also available in a paper version to
complete and return via regular mail.
NIA Report: "Can Alzheimer's Disease Be Prevented?"
The National Institute on Aging (NIA), part of the National Institutes of Health, recently released a report,
"Can Alzheimer's Disease be Prevented?" The report examines risk factors for Alzheimer's disease—those
which can and cannot be controlled, describes research related to preventing the disease, and provides a
discussion about the possibility of preventing or delaying onset of the disease. For more information, visit:
National Institute on Aging at http://www.nia.nih.gov/Alzheimers/Publications/ADPrevented/.
Study Examines Positive Effects of Spousal Caregiving
A recent article published in Psychology and Aging (Volume 25, Number 1), "Does a Helping Hand Mean a
Heavy Heart?," examines the contexts in which providing care to an elderly spouse may result in positive
outcomes. Psychologist Michael Poulin and colleagues found that spousal caregivers experience more positive
emotions and fewer negative emotions when they engage in hands-on care, such as feeding and bathing, for their
spouse. Spousal caregivers tend to experience more negative emotions when the care they provide is more passive,
such as looking after a spouse to make sure nothing goes wrong or that he or she doesn't wander. For more
information, visit: University of Buffalo at http://www.buffalo.edu/news/11480.
AoA: A Toolkit for Serving Diverse Communities
This Toolkit provides the Aging Network and its partners with a replicable and easy-to-use method for
providing respectful, inclusive, and sensitive services for any diverse community. The Toolkit consists of a
four-step process and a questionnaire that assists professionals, volunteers and grassroots advocates with every
stage of program planning, implementation and service delivery for older adult communities, their families and
caregivers. The core principles of the toolkit include respect, inclusion and sensitivity as the hallmarks of
quality service. This Toolkit is an invitation to make a cultural shift in service provision, to learn, to grow
and fully appreciate the diverse community of older adults that agencies and their partners serve.For more
information visit: AoA at http://www.aoa.gov/AoAroot/Press_Room/For_The_Press/pr/archive/2010/June/DiversityToolkit.aspx
Report: "Changing the Trajectory of Alzheimer's Disease"
The Alzheimer's Association released a report in May 2010 called "Changing the Trajectory of Alzheimer's
Disease: A National Imperative." The report examines the current projections and costs associated with the
Alzheimer crisis, as well as what Medicare and Medicaid savings are possible if disease modifying treatments
were available. It reveals that, from 2010 to 2050, the total costs of care for Americans age 65 and older with
Alzheimer's disease will increase five-fold, from $172 billion to $1.08 trillion per year, including
out-of-pocket costs to caregiving families. For more information, visit:
Alzheimer's Association at http://www.alz.org/alzheimers_disease_trajectory.asp.
Study: Dementia Spousal Caregivers More Likely to Get Dementia
An article in the May 2010 issue of the Journal of the American Geriatrics Society (Volume 58, Issue
5) reveals that spousal caregivers of people with dementia are more likely than noncaregivers to get dementia
themselves. The study followed 1,221 married couples aged 65 and older in Utah. The authors conclude that "the
chronic and often severe stress associated with dementia caregiving may exert substantial risk for the
development of dementia in spouse caregivers." The journal also includes an editorial by Peter P. Vitaliano,
Ph.D. about the "ironic tragedy" of the study's findings. To read "Greater Risk of Dementia When Spouse Has
Dementia? The Cache County Study" by Dr. Maria Norton and colleagues, visit:
Journal of the American Geriatrics Society at http://www3.interscience.wiley.com/journal/117995531/home
; CNN: "Can caring make you sick?" at http://www.cnn.com/2010/HEALTH/05/20/caregivers.health.risks/index.html.
New on FCA's website: FCA Blogs!
Kathleen Kelly, Executive Director, and a number of dedicated FCA staff writers will
cover in their blogs the issues they are most passionate about: emerging public policy,
excellence in caregiver interventions, recognition of family caregivers in the media and
numerous others. Join the discussion and post a comment of your own.
Give Us Your Feedback
You can further shape the content of the Newsletter and the activities of the Technical
Assistance Centers by
telling us about your areas of interest. Please respond to our brief questionnaire here.
Innovations Clearinghouse on Family Caregiving
For more research based and research informed practices, visit FCA's Innovations
Clearinghouse/Online Technical Assistance Center.
the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts;
with fellow professionals from the aging networks; and
request specialized technical assistance.
Lifespan Respite News
Getting to Know the Lifespan Respite State Grantees and Stakeholders
(Third in a continuing series)
To access the PDF of this article, click here.
The first twelve AoAfunded Lifespan Respite Grantees are well into their first year of funding. In the
last newsletter, updates for the Lifespan Respite Programs in Alabama, Arizona, and Illinois were provided. This
article highlights the primary activities of the North Carolina, South Carolina, and Texas Lifespan Respite
grantees as they work to implement Lifespan Respite Care Programs in their states, as well as the roles of the
state respite coalition and the Aging and Disability Resource Centers (ADRCs) in each project.
Lead Agency and Primary Collaborators: The Division of Aging and Adult Services (DAAS) of the N.C.
Department of Health and Human Services, in collaboration with the Division of Medical Assistance, the Office of
Long-Term Services and Supports, the North Carolina Respite Care Coalition and other key partners.
The goals of the NC Lifespan Respite program are to 1) Research, adapt and implement a model Lifespan Respite
Care Program for NC; 2) Improve statewide coordination of lifespan respite care and build leadership capacity
across service delivery systems; 3) Enhance infrastructure through new relationships with the faith and medical
communities; and 4) Develop and implement an innovative statewide respite education and public awareness
To achieve these goals, the program is working to enhance their database systems to improve information
dissemination about and coordination of respite services, including a web-based guide to NC lifespan respite
services; a model public relations plan for NC respite services; a web-based guide highlighting best practice
respite care worker and volunteer recruitment and training programs in NC; and a series of web-based, print, and
video segments to help family caregivers. As a way to engage statewide participation, the program proposed a
challenge to each of NC's 100 counties called "Just One More", to come up with at least one new respite
initiative, program, or support.
To assist in building infrastructure and increasing collaboration, a state Advisory Team was created.
Advisory Team members completed an online survey that shared their organization's most compelling data and
statistics related to respite and personal stories/narrative quotes. These results will be compiled into one
document that team members can use to highlight how respite is being used and how it is needed across the
To address the grant objective, to "enhance service capacity through new relationships with the faith and
medical communities", Lifespan Respite Staff have held meetings with state and regional representatives of
Community Care of North Carolina, (CCNC) a public-private partnership between the state and 14 nonprofit
community care networks. The Community Care of North Carolina program is building community health networks
organized and operated by community physicians, hospitals, health departments, and departments of social
services. By establishing regional networks, the program is establishing the local systems that are needed to
achieve long-term quality, cost, access and utilization objectives in the management of care for Medicaid
recipients. All CCNC Care Managers and Medical Providers will be surveyed on knowledge and perception of 1)
caregiver needs and indicators for burnout; 2) respite care resources available in the community; and, 3)
opportunities for development of more respite resources under the grant's "Just One More" challenge.
The NC Lifespan respite grant project team has met twice with leadership from the NC Baptist Aging Ministry
(NC BAM). NC BAM is represented on the grant's state Advisory Team and continues to use those connections to
learn more about respite options available to families.
State Respite Coalition Role
The statewide North Carolina Respite Care Coalition (NCRCC), which was established more than a decade ago,
principally as a networking, training, and advocacy group, is part of the state leadership in helping to
administer the program. They are currently focused on developing a training guide for volunteer respite workers
and will host a statewide respite conference in October. The Project's Year One focus on best practices in
respite volunteerism ties in well with the NCRCC education conference, which focuses on volunteer and
Aging and Disability Resource Center Role
Along with the NC Respite Care Coalition, the state ADRCs, known as Community Resource Connections for Aging and
Disabilities in the state, serve on the Lifespan Respite Project Advisory Team; Lifespan staff is represented at
CRC meetings. Twelve CRC sites serve 28 of NC's 100 counties. The NC Lifespan respite grant project manager is
part of a collaboration team led by leadership of NC's CRCs. This team consists of all project managers involved
in grants overseen by the Administration on Aging and require collaboration with the state's ADRCs.
Opportunities for collaboration are identified on a frequent basis because the Lifespan Respite Program
Specialist also serves as a CRC Coordinator in the western region of the state. An expectation for CRCs to
collaborate with the Lifespan Respite Grant has been established through written objectives on all work
plans/contracts between the state and local CRC hubs. Specific strategies for collaboration with the CRC, which
also relies on NC CareLINK for community resource data, are being developed.
NC State Lead Contact:
Family Caregiver Support
NC Div. of Aging and Adult Services
2101 Mail Service Center
Raleigh, NC 27699
Lead Agency and Primary Collaborators: The Lieutenant Governor's Office on Aging (LGOA), in partnership with
the South Carolina Respite Coalition (SCRC) and Family Connection of SC, and key stakeholders.
The South Carolina Lifespan Respite grant project is working to establish a state and local coordinated Lifespan
Respite system that expands and enhances respite services statewide for all family caregivers of
people with disabilities and special needs. One of their first activities was the establishment of a State
Advisory Council to guide the development of the coordinated Lifespan Respite System. The State Advisory Council
is comprised of 23 representatives of Cabinet Level and other state agencies, Aging Network providers, major
disability organizations, caregiver and other state holder groups. The Advisory Council formulated a draft of
data elements needed from SAC member agencies and other providers regarding respite services provided and the
unmet need for respite to gather baseline data for determining the outcomes of this grant.
To date, LGOA initiated regular project meetings of the three grant partners to plan, coordinate and monitor
grant activities and progress. One or more of the key partners presented to a variety of groups, including the
ADRCs (see below) and Area Agency on Aging Directors, Council of Governments Directors, the SC Aging Advisory
Council, Systems Transformation Grant Advisory Board, the Systems Transformation Grant DD/IT Workgroup
Committee, the Lt. Governor's Office on Aging Staff, Family Caregiver Support Program, Silver Haired
Legislature, I&R Specialists Meeting, and Adult Sibling Leadership Network (ProParents). Partners provided an
overview of the grant, the vision of a state and local coordinated Lifespan Respite System and how each group
can be involved.
The Directors of the AAA's (where the ADRCs are housed and operated) were briefed early on the grant to set
the stage for developing the collaboration and cross-training between the ADRCs and Family Connection. One
component of SC's existing statewide infrastructure is a network of Family Caregiver Support Program
Advocatesone located at each of 5 established ADRCs (and 5 at Area Agencies on Aging, soon-to-be
established ADRCs). In January 2010, these advocates were also briefed on the grant and their role.
Additional activities will involve recruiting and training volunteers to fill gaps in respite services,
particularly in rural areas through partnerships with programs such as the Corporation for National Service
(e.g., AmeriCorps, VISTA, Service Learning, Senior Companions), as well as faith-based efforts.
State Respite Coalition Role
The South Carolina Respite Coalition (SCRC) is co-facilitator for the newly established Lifespan Respite State
Advisory Committee that will be responsible for pulling together information on respite funding streams,
barriers to accessing respite in SC, and indentifying gaps in respite services. The SCRC and Family Connection
began to review respite resources/data on SC Access to identify gapsadditions for respite.
The SCRC and Family Connection began developing a Voucher Tool Kit which includes sections on a (1) Respite
Benevolence Policy for use by Faith Groups and (2) Finding Respite Caregivers. They also planned and conducted
the 2010 "Respite Solutions for the Faith Community" Conference in February, and presented at the Family
Connection "Of Hopes and Dreams" Conference on respite options for SC Families with Children with Special Heath
Care Needs and on "Establishing and Operating a Voucher (Benevolence) Program for Respite" in March 2010.
Materials produced during the grant period include a Respite Benevolence Policy for use by Faith Groups and a
handout on Finding Caregivers and Respite Providers, which provides practical steps and resources for
family caregivers for hiring and overseeing a respite provider. In March, both of these products were posted on
the Family Connection web-site as free down loads and linked to the SC Access and SCRC websites. In April,
materials from the Respite Solutions Conference were posted to the SCRC web-site and linked to the SC Access
website Learn About Section.
Aging and Disability Resource Center Role
The program plans to provide outreach, information and screening for respite services through the Aging and
Disability Resource Centers (ADRC), as well as the Family to Family Health Care Information and Education Center
to encourage use and connect family caregivers with respite options as early as possible. Information will be
bridged electronically. During the first six months of the grant, the LGOA, SCRC and Family Connection began to
engage the Aging, Disability and Caregiver networks through a series of presentations informing the key
stakeholders about the SC Lifespan Respite Grant. As a result, ADRCs, I&R Specialists and Family Connection
disseminated respite information and referrals to families of children with disabilities via toll-free phone and
SC State Lead Contacts:
Denise Rivers, LMSW
Lt. Governor's Office on Aging
Eve Barth, MHA
Lt. Governor?s Office on Aging
Lead agency and primary collaborators: The Texas Department of Aging and Disability Services (DADS)
The main activities under this grant include the recent creation of the Texas Respite Coordination Center
(TRCC); (2) increasing the availability of respite services; (3) implementing a caregiver awareness campaign;
and, (4) developing best practices, materials and tools for respite care providers. DADS will administer the
contract for the TRCC, as well as the contracts for expanding services under a newly enacted state legislation,
which established a state-funded Texas Lifespan Respite Program in September 2009.
The TRCC will: (1) support the respite coordination and outreach efforts of the stakeholders and contractors
of respite under H.B. 802; (2) compile and annually update a Texas Inventory of Respite Services, (3) conduct
respite forums across the state; (4) develop media kits and outreach materials aimed at caregivers; and, (5)
develop training and best practice tools for providers of respite services.
The Texas Health and Human Services Commission will conduct ongoing evaluation activities to assess the
program's effectiveness, using a comparison analysis of the Inventory, as well as provider interviews and a
State Respite Coalition Role
Newly formed, the Texas Respite Coalition will work in an advisory capacity with DADS and other partners to
ensure that (1) caregivers will have a greater knowledge about and access to, a wider array of respite care
options; and, (2) Texas will have a respite care system that has greater capacity and is more coordinated across
service systems. The Coalition's respite coordination and outreach efforts will be supported by the TRCC.
Aging and Disability Resource Center Role
The state's ADRC will work collaboratively with the TX Respite Coalition and other stakeholders on respite
coordination and outreach efforts. ADRCs are eligible local entities for administering respite through State
Lifespan Respite funding.
Texas State Lead Contacts:
Christy Fair, Manager, Special Projects
Texas Department of Aging and Disability Services
701 W. 51st St.
Austin, TX 78751
(512) 438-3528 Fax
Access & Intake Division
Texas Department of Aging and Disability Services
Mail Code: W-350
710 West 51st Street - P.O. Box 149030
Austin, Texas 78714-9030
(512) 438-5555 direct line
(512) 438-4374 Fax
Listen to the Lifespan Respite Webinar
ARCH's "Respite in the Faith Community" Webinar provides an overview of national models of interfaith
caregiving, as well as, innovative yet practical approaches that local faith-based congregations and communities
can take to provide respite to family caregivers caring for children, adults, and the aging population. A
"benevolence fund" voucher method is highlighted. In addition, a volunteer respite program run by Lyngblomsten
in St. Paul, MN, for individuals with early to mid-stage memory loss that is being nationally replicated by
Lutheran Services of America is described, and a family caregiver shares her experiences with this program. A
new ARCH fact sheet on "Respite in the Faith Community" is also available here. To listen to
the webinar, follow the link here. You can provide feedback about the Webinar here.
Exclusively For Lifespan Respite Grantees and Partners
State Lifespan Respite Grantees and their designated stakeholders are invited to join a new networking
webpage at ARCH's Technical Assistance
Center for Lifespan Respite.
Here you can register for exclusive events, get the latest news, find answers to your questions, and engage
in meaningful discussion with other state grantees through topical forums. Just click on "Join Lifespan Respite
Grantee and Stakeholder Group" to get started. Don't forget to click on the RSS feeds so you will be notified
when new information is posted.
For Everyone—Join ARCH on Facebook and on Twitter @respite1.
© 2010 Family Caregiver
Alliance. All Rights
Reserved. No portion of this newsletter may be reproduced without the express permission of
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