Making Hard Choices: Respecting Both Voices (May 2000)
 

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Findings from a groundbreaking research study exploring choice and decision-making in everyday care for persons with cognitive impairment and their family caregivers. The study makes policy and practice recommendations to advance knowledge on consumer direction and dementia care.

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Caregiving Fact: Caregiving is the backbone of the American long-term care system: the value of the services provided by informal caregivers (family or friends of seriously ill loved ones) is estimated at $306 billion annually. See FCA's Policy Brief, Caregiving and Retirement Planning, for more information.
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