The U.S. Administration on Aging (AoA) has awarded a two-year grant to FCA’s National Center on Caregiving to examine the growth and development of services and funding for family caregivers in the United States. The grant is one of 11 projects of national significance under the National Family Caregiver Support Program (NFCSP).
Building on FCA’s recently completed 10-state study (see article, page 1), this ambitious two-year project will increase understanding of the range and scope of federal and state-funded caregiver support programs in each of the 50 states and identify the ways states coordinate caregiver support programs and integrate services as part of long-term care systems development.
The two-year project will focus on caregiver services under the NFCSP, Medicaid home and community-based services waivers, state general funds, and other state funding streams. The results of the project will provide states and the federal government with a rich inventory and analysis of promising practices to advocate more effectively for programs and services to sustain family and informal caregivers.
Three main activities will be undertaken:
Conduct a survey of federal and state caregiver support programs in the 50 states focusing on their philosophy, structure, spending patterns, challenges, successes, emerging issues and relationship to other home and community-based programs.
In collaboration with the National Conference of State Legislatures, complete a three-year retrospective legislative and fiscal trend analysis of new and expanded caregiver support policies, programs and appropriations in the 50 states.
Develop an online state-specific database from the results of the 50-state survey and trend analysis and construct state-by-state profiles in an easy-to-use web-based format.
To guide the project, FCA’s National Center staff will continue to work with a distinguished advisory committee of representatives from key state and national associations and agencies including: Diane Braunstein, Program Director, Aging and Long-Term Care, National Governors Association; Richard Browdie, President/CEO, Benjamin Rose (former Secretary, Pennsylvania Department of Aging); Elinor Ginzler, Senior Program Specialist for Health and Long-Term Care, AARP; Gail Hunt, Executive Director, National Alliance for Caregiving; Robert Mollica, Deputy Director, National Academy for State Health Policy; Lynda Terry, Director, California Department of Aging; Amy Sander, Health Policy Analyst, National Association of State Medicaid Directors; and Sue Ward, Secretary, Maryland Department of Aging. For more information about the two-year project, contact Lynn Friss Feinberg at (415) 434-3388.
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