The National Brain Tumor Foundation now has audio of past teleconferences available on their web site at http://www.braintumor.org. Click on "conferences" and then "teleconferences." Among the tapes available are Surviving a Brain Tumor: Understanding Changes in Thinking and Memory and Understanding Seizures: Their Management and Treatment.
NIH NIA: "Progress Report on Alzheimer's Disease, 2000: Taking the Next Steps" (U.S. National Institutes of Health, National Institute on Aging, 2001). http://www.alzheimers.org/pubs/prog00.htm
Innovations in End-of-Life Care, March-April 2001, Vol. 3, No. 2. This issue of the journal focuses on family caregivers and end-of-life care including an article entitled "Family Caregiving Initiative: Supporting Family Caregivers of Neurologically Impaired Patients." The journal is available online at http://www.edc.org/lastacts/. Note: Free registration is required.
The National Council on Aging has launched a new website to help seniors determine their eligibility for Federal and State benefits. http://benefitsCheckUp.org/.
There are two guides available on the Internet that focus on hiring and managing personal care assistants. One, published by the Spinal Cord Injury Project at Santa Clara Valley Medical center entitled Hiring and Management of Personal Care Assistants for Individuals with Spinal Cord Injury is available at http://www.tbi-sci.org/pdf/pas.pdf. The other, written by the Paralyzed Veterans of America (PVA), Managing Personal Assistants, A Consumer Guide, is available at http://www.pva.org. Printed copies are available for $11.95 (free to PVA members) and can be ordered by phone: (888) 860-7244.
Aphasia is a communication disorder that is a result of stroke or brain injury. Aphasia impairs the ability to speak and/or comprehend others. Through the National Aphasia Association (NAA), people with aphasia and their families can learn how to live with aphasia, how to obtain needed supports and how others have managed with this disability. The NAA Response Center provides a web site, http://www.aphasia.org, toll-free information hotline at (800) 922-4622, publications and referrals to community support groups and a national network of health care professionals. The mission of the organization is to reconnect people with aphasia with the community by educating the public about aphasia, promoting the development and use of community resources, and advocating on behalf of those who are left, literally, without a voice.
"When Your Parent Needs You" provides an overview of many of the challenges faced by children who are caregivers for aging parents. This 35-minute video addresses issues such as confronting your parent about needing help, grieving as a caregiver, recognizing and dealing with stress, and caring with compassion. Beth Witrogen McLeod, well-known journalist, author and speaker on caregiving, is a featured speaker. Cost of video: $79.95. For more information contact Paraclete Press, P.O. Box 1568, Orleans, MA 02653, (508) 255-4685, http://www.paraclete-press.com.
"You are Your Physician: Partners in Health Care" teaches older adults to be more assertive advocates for their own healthcare when visiting their personal physician. This 16-minute video is primarily a dramatic representation of one older adult's experience learning when and how to ask questions about their diagnosis and treatment. Cost of video: $159.00, including facilitator's guide and "Preparation Book and Diary for Doctor Visits." For more information contact Terra Nova Films, Inc., 9848 S. Winchester Avenue, Chicago, IL 60643, (800) 779-8491.
Mark your calendars for Fall 2002 for a new PBS series on caregiving. Produced by Wiland-Bell Productions, "And Thou Shalt Honor..." will focus public attention on the challenges family caregivers face, and will promote public dialogue and community action to address their issues and needs. A new book and an enhanced website offering information and resources for caregivers will also be available. The website will be unveiled this fall. For more information, contact [email protected]
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