The Huntington’s Disease Society is a national organization dedicated to providing help and support to those with Huntington’s Disease (HD) and their families. Social workers are available to speak with those with HD and their families to address their concerns and to aid with care planning and resource referrals. The Northern California Chapter offers several support groups open to caregivers and care receivers throughout the Bay Area.
A new project from the organization is the Huntington’s Disease Home Care Nursing Pilot Project. This program is designed to assist families caring for persons in the advanced stages of the illness. A registered nurse will make visits to the home to assess the situation and provide support and advice to caregivers. The nurse can speak with caregivers about such topics as money management, swallowing difficulties, home safety and nutrition. Appropriate referrals will also be made in conjunction with HD specialists at the UC Center of Excellence for HD. For further information about the HD Society and the Home Care Nursing Pilot Project, please call Rick Henry at (888) 828-7343.
For those with HIV/AIDS and their loved ones living in Marin County, the Marin AIDS Project offers a variety of services, including case management, support groups and psychotherapy, emergency financial assistance, home delivered groceries and massage. The project is also dedicated to education and the prevention of HIV/AIDS. Their education department provides in-service trainings to professionals, and workshops and a resource center available to the public. Please call (415) 457-2487, or visit www.marinaidsproject.org.
The Older Adult and Family Center at the Stanford University School of Medicine and the Palo Alto Department of Veterans Affairs has a program specifically designed to assist Chinese caregivers. If you are a Chinese female over the age of 21 who provides at least 8 hours of care a week to a loved one with memory loss, the Chinese Caregiver Assistance Program can help. The purpose of the program is to provide assistance and support to caregivers in dealing with tough decision-making regarding care, improving the quality of life for caregivers, and helping to understand the difficult behaviors associated with someone with memory loss. All services are free and they include: meetings with caregivers at home to discuss coping strategies, telephone support and health evaluations for caregivers. Bilingual staff are available to provide services in Mandarin, Cantonese, or English depending on the caregiver’s preference. Please call their multilingual hotline at (800) 943-4333 for services. This program covers San Mateo, Santa Clara, San Francisco and Alameda counties.
Out of the Woods: Traumatic Brain Injury Scholarship Fundis dedicated to financially assisting persons in Santa Clara and Alameda counties who have suffered a Traumatic Brain Injury (TBI). Persons with TBI from other Bay Area counties may be considered for scholarships depending on the availability of funds. Scholarships may be used for the continuation of rehabilitative services; home modification and accessibility projects; as a supplement to disability income; or to hire attendant care to provide respite for a family caregiver. For more information, contact Teri Zimmerman at (408) 885-5604 or by email at [email protected].
Community & Home Injury Prevention Program for Seniors (CHIPPS)provides educational presentations, workshops, home safety assessments and small home modifications for seniors in San Francisco aged 65 or older. Trained injury prevention specialists from CHIPPS complete a home safety assessment, point out potential hazards and make suggestions for increased safety. If necessary, small repairs and modifications are completed. All services are free and available to seniors whether they rent or own a home. For more information, call Eloise Magenheim at (415) 581-2415 or visit www.dph.sf.ca.us/PHP/CHIPPS.htm. (Note: Program funding is limited and may end February 2004.)
The El Cerrito Alzheimer’s Respite Program provides supervised activities and socialization for persons with Alzheimer’s disease or other memory disorders and respite for caregivers. Program activities include exercise, music, art projects, cooking and reminiscing. The program is available to residents of El Cerrito and neighboring cities. In conjunction with the respite program, an Alzheimer’s Caregiver Support Group is available twice a month. For more information, contact Carol Kehoe, Program Director, at (510) 215-4340.
The Human Investment Project for Housing (HIP Housing) is a nonprofit organization whose mission is to promote stability through housing. Since 1972, HIP Housing has been creating affordable housing solutions in San Mateo County through four programs: Homesharing; Self-Sufficiency for Families with Children; Home Equity Conversion Counseling for Senior Homeowners; and more than 200 units of housing owned and managed by the organization. Call (650) 348-6660 or visit www.HIPHousing.org for more information.
CRIL is a nonprofit agency in Southern Alameda County that helps seniors and disabled people with tasks such as cooking, light housekeeping, cleaning, shopping, and visits to the doctor. They can also help with personal care, such as feeding, bathing, and dressing, and with information on benefits, housing, skills training and more. All services are free. Call Dave or Diana at (510) 881-5743 for more information.
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