Caregiving Statistics & Reports

This section provides information and data on the profiles of family caregivers and caregiver support services (including some program evaluations). Documents included here have been organized into two broad topic areas: Demographics & Statistics; and Other Reports.

For reports on Public Policy Initiatives, please refer to our Policy & Advocacy section.

To access the information you are interested in, click on a link below to a specific entry. Alternatively, you may do an “Advanced Search” by keyword (see sidebar on the left).

• Demographics & Statistics
  • Almanac of Chronic Disease 2009: The Impact of Chronic Disease on U.S. Health and Prosperity
  • Alzheimer's Disease Facts and Figures for 2009
  • A profile of frail older Americans and their caregivers (2006)
  • Caregivers of frail elders: Updating a national profile (2006)
  • Caregiving: A national profile and assessment of caregiver services and needs (2006)
  • Caregiving in the U.S (2004)
  • Caregiving in the U.S. 2009
  • Diabetes Caregiver Study (2009)
  • Elder caregiving in rural communities
  • Estimating the Quantity and Economic Value of Family Caregiving for Community-Dwelling Older Persons in the Last Year of Life (2009)
  • Evercare study of Hispanic Family caregiving in the U.S (2008)
  • Facts for Features: Grandparents Day (2009)
  • Family caregiving to the older population: Background, federal programs, and issues for Congress (2008)
  • In-Home and Community-Based Long-term Care Costs in California (2009)
  • Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions (2007)
  • National Family Caregiver Support Program: North Dakota's American Indian caregivers (2003)
  • Not ready for prime time: The needs of sandwich generation women, a national survey of social workers (2008)
  • Staying the course: Trends in family caregiving (2005)
  • Survey of Nursing Home, Assisted Living, Adult Day Services and Home Care Costs (2009)
  • The economic value of informal caregiving (1999)
  • The Evercare Survey of The Economic Downturn and Its Impact on Family Caregiving (2009)
  • Valuing the Invaluable: The Economic Value of Family Caregiving (2008 Update)
  • World Alzheimer Report 2009
• Other Reports
  • Coordination activities in the National Family Caregiver Support Program (2005)
  • Family caregiver support: Policies, perceptions and practices in 10 states since passage of the National Family Caregiver Support Program (2002)
  • Framing the public health of caregiving (2007)
  • Long-term care of the disabled elderly: Do children increase caregiving by spouses? (2008)
  • Moving the research agenda forward in family caregiving (2007)
  • New Jersey's statewide respite care program: A study of program design, implementation, clients and services (Report #1) (2002)
  • Respite services in New Jersey's Community Care Program for the Elderly and Disabled (Report #2) (2002)
  • State of the science: Professional partners supporting family caregivers (2008)