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The Technical Assistance Centers are a partnership between Family Caregiver Alliance and the ARCH National Respite Network and Resource Center. The Centers provide technical assistance to the Aging and Lifespan Respite Networks on caregiver and lifespan respite program development. Volume II, Number 1 October 5, 2010 Quick Links Technical Assistance Center: Caregiver Programs Technical Assistance Center: Lifespan Respite ARCH Respite Locator Search for Respite FCA's Fact Sheets & Publications ARCH's Fact Sheets & Publications Subscribe The Newsletter of the Technical Assistance Centers Caregiving PolicyDigest Email Us Technical Assistance Center: Caregiver Programs (FCA) Technical Assistance Center: Lifespan Respite (ARCH) Give Us Your Feedback You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. FCA's on Facebook. Get updates about caregiving by clicking the "Like" button. Respite on Facebook. Get updates about respite by clicking the "Like" button. In this issue Key Feature Upcoming Events Research & Practice Lifespan Respite News FCA has a new address effective August 16, 2010 Family Caregiver Alliance 180 Montgomery Street, Suite 900 San Francisco, CA 94104 Key Feature The National Resource Center for Participant-Directed Services The National Resource Center for Participant-Directed Services (NRCPDS) is the only national center of its kind to assist states and other agencies or organizations that want to offer, or already offer, participant-directed services to people with disabilities. The staff at NRCPDS answers questions about their program and the concepts behind participant-directed services. Read more... Upcoming Events To see the full description of the event, click on the date. October 2010 October 7: North Carolina Respite Care Coalition Respite Conference, Randleman, NC. October 24-27: National Respite Conference, Baltimore, MD. November 2010 November 19-23: Gerontological Society of America Annual Conference, New Orleans, LA. April 2011 April 26-30: 2011 Aging in America, San Francisco, CA. May 2011 May 15-17: 2011 Alzheimer's Action Summit, Washington, DC. Research & Practice Best Practice Physical Activity Program A report released by the Robert Wood Johnson Foundation explored a collaboration study with National Council on Aging, the University of Illinois, and the University of Washington identifying best practices in physical activity programs. The study targeted 544 sedentary individuals who are 50 and older and who did not regularly exercise but could walk independently. Read more... Ethical Guidelines for Physicians in Working with Patients and Family Caregivers The American College of Physicians (ACP) issued a position paper, "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships" to guide ethical relationships among patients, physicians, and family caregivers. Read more... Next Step in Care Resource Guide on Hospice and Palliative Care The United Hospital Fund's Next Step in Care recently published a "Family Caregiver's Guide to Hospice and Palliative Care." Read more... Online Chronic Disease Program The National Council on Aging (NCOA) is registering individuals for their program Better Choices, Better Health, a six-week online series with interactive workshops for individuals with chronic conditions. Read more... Podcast: Depression in the Family The Families for Depression Awareness continues their podcast series with "Caring for a Depressed Elderly Parent." Read more... Review of Caregiver Intervention Studies Highlights Lack of Cultural Tailoring The August issue of the American Journal of Alzheimer's Disease and Other Dementias (Vol 25. Number 5) features a literature review, "Developing Culturally Sensitive Dementia Caregiver Interventions: Are We There Yet?," by Dr. AM Napoles and colleagues that focuses on ethnic differences in family caregivers' experiences from 1980 to 2009. The authors explain that while there are a number of ethnic differences in caregiving, of the 47 intervention articles reviewed, only 18 reported outcomes by caregiver ethnicity. Read more... The Calm Before the Storm The Hartford and the MIT AgeLab created "The Calm Before the Storm: Family Conversations about Disaster Planning, Caregiving, Alzheimer's Disease and Dementia" booklet to assist family caregivers with strategies on how best to prepare their loved ones for a natural disaster. Read more... FCA Blogs! Executive Director, Kathleen Kelly, and dedicated FCA staff writers explore numerous topics in their blogs that cover a range of issues and current trends in caregiving. Join the discussion and post a comment of your own. Give Us Your Feedback You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please respond to our brief questionnaire here. Innovations Clearinghouse on Family Caregiving For additional research based information and informed practices, visit FCA's Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from the aging networks; and request specialized technical assistance. Lifespan Respite News Getting to Know the Lifespan Respite State Grantees and Stakeholders (Fourth in a continuing series) On September 7, 2010, the US Administration on Aging announced the twelve new State Lifespan Respite grantees for FY 2010. Grantees represent various governmental agencies in Delaware, Kansas, Louisiana, Massachusetts, Maine, Nebraska, New York, Oklahoma, Pennsylvania, Utah, Washington State, Wisconsin, working in collaboration with their state respite coalition and ADRC partners, and other critical stakeholders. You will be hearing more about the new state grantees in the weeks to come. Read more... Listen to the Lifespan Respite Webinar ARCH's last Webinar on August 12, 2010, Tools for Collaboration, can be viewed in its entirety at http://www.archrespite.org/ta-center-for-respite/webinars-and-resources/tools-for-collaboration. At the heart of Lifespan Respite is the concept of collaboration among various stakeholders at the federal, state, and local levels. Read more... Exclusively for Lifespan Respite Grantees and Partners State Lifespan Respite Grantees and their designated partners are invited to join the networking webpage at ARCH's Technical Assistance Center for Lifespan Respite. Lifespan Respite Grantees and their primary partners can register for the upcoming by-invitation-only Lifespan Respite Grantee and Stakeholder Meeting on October 27, 2010 in Baltimore at this site. Read more... ARCH Lifespan Respite Training and TA Center to Host State Lifespan Respite Summits in 2011 ARCH will soon solicit applications from collaborative partnerships of state government agencies, state respite coalitions/organizations and Aging and Disability Resource Centers to hold statewide Lifespan Respite Summits in states that do not yet have a federal Lifespan Respite Grant and have not previously held an ARCH-sponsored Summit. Read more... For everyone--Twitter @archrespite Give ARCH your Feedback We Need Your Input! The AoA funded Lifespan Respite Training and Technical Assistance Project of the ARCH National Respite Network and Resource Center would greatly appreciate your input in planning its training and TA activities. Please take a moment to respond to our online questionnaire by clicking here. Family Caregiver Alliance  |  National Center on Caregiving 180 Montgomery Street, Suite 900 San Francisco, CA 94104 (800) 445-8106 www.caregiver.org ARCH National Respite Network and Resource Center 4016 Oxford Street Annandale, VA 22003 (703) 256-2084 www.archrespite.org This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions.  These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be assumed. ©2010 Family Caregiver Alliance. All rights reserved. The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, visit the Family Caregiver Alliance website at www.caregiver.org. To subscribe or unsubscribe to the Newsletter of the Technical Assistance Centers, use the following link: www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2366 Or, contact Family Caregiver Alliance using our toll-free phone number: (800) 445-8106 Your subscription information is used only for the purpose of improving this service and tailoring it to the needs of its audience. Information provided to us will not be shared with any other organization, agency, corporation, entity or third party. The Newsletter of the Technical Assistance Centers is a publication of the National Center on Caregiving at Family Caregiver Alliance, 180 Montgomery Street, Suite 900, San Francisco, CA 94104.

Key Feature

The National Resource Center for Participant-Directed Services

Housed at the Boston College Graduate School of Social Work, The National Resource Center for Participant-Directed Services (NRCPDS) is the only national center of its kind to assist states and other agencies or organizations that want to offer, or already offer, participant-directed services to people with disabilities. NRCPDS provides technical assistance, research, education, and training to both Medicaid and non-Medicaid funded programs. This month on Key Feature, the staff at NRCPDS answers questions about their program and the concepts behind participant-directed services. answers questions about the Program.

Upcoming Events

North Carolina Respite Care Coalition Respite Conference, Randleman, NC

October 7, 2010

The North Carolina Respite Care Coalition will host a Respite Conference with a focus on Growing Great Respite with Limited Funding. Speakers include W.C. Hoecke with Family Connections in South Carolina and Kelly Tipler with Tennessee Respite Coalition. In addition, special presentations will be highlighted by exceptional North Carolina Respite Programs.

For more information, visit: North Carolina Respite and Crisis Care Coalition or contact Jane Macleod at North Carolina Respite and Crisis Care Coalition PO Box 165 / Gibsonville NC 27249, [email protected]

National Respite Conference, Baltimore, MD

October 24-27, 2010

The Maryland Respite Care Coalition in partnership with the ARCH National Respite Network will host the National Respite Conference October 24-27, 2010 at the Sheraton Baltimore City Center Hotel in Baltimore, MD. The theme is RESPITE: Create It and is a call for advocates and professionals to showcase the creative ways in which Respite Care is delivered throughout the nation.

This conference is intended for everyone who supports family members and caregivers of individuals across the Lifespan. This is an especially exciting year as the new federally funded Lifespan Respite States and the 20th Anniversary of ARCH are celebrated.

For more information, visit: Maryland Respite Care Coalition.

Gerontological Society of America Annual Conference

November 19-23, 2010

GSA's Annual Scientific Meeting, "Transitions of Care Across the Aging Continuum," will be held November 19-23 in New Orleans, Louisiana this year. The event attracts international attention and is attended by gerontologists from around the world.

For more information, visit: Gerontological Society of America Annual Conference.

Save the Date: 2011 Aging in America

April 26-30, 2011

The annual conference of the American Society on Aging (ASA) is being held in San Francisco, California during April 26-30, 2011. The conference attracts professionals from diverse disciplines and provides an opportunity for attendees to learn about current trends within the field of aging. Family Caregiver Alliance (FCA) and the Rosalinde and Arthur Gilbert Foundation will be hosting a reception at the conference on Thursday April 28th at 5:30 p.m. to honor the winners of the third annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards.

For more information, visit: American Society on Aging.

Save the date: 2011 Alzheimer's Action Summit

May 15-17, 2011

The Alzheimer's Association Alzheimer's Action Summit is being held in Washington, D.C. next year. The summit is in an informative event to learn about Alzheimer's disease, networking opportunities, and create dialogue about this important issue. The conference also attracts professionals from diverse disciplines who are interested in learning about advocacy efforts.

For more information, visit: Alzheimer's Association.

Research and Practice

Best Practice Physical Activity Program

A report released by the Robert Wood Johnson Foundation explored a collaboration study with National Council on Aging, the University of Illinois, and the University of Washington identifying best practices in physical activity programs. The study targeted 544 sedentary individuals who are 50 and older and who did not regularly exercise but could walk independently. The report, "What Works in Physical Activity Programs for Sedentary Older Adults' Best Practices Identified and Put in a Web-Based Directory," found that older adults who participated in a best practice physical activity program scored significantly better than the control group members on tests measuring upper-and lower-body strength. The findings led the investigators to create a web-based directory, Active Options, which provides resources to professional or individuals in 14 states who want to identify appropriate physical activity programs within their community.

To review full report, visit: RWJF.

Ethical Guidelines for Physicians in Working with Patients and Family Caregivers

The American College of Physicians (ACP) issued a position paper, "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships" to guide ethical relationships among patients, physicians, and family caregivers. The paper outlines four primary principles for physicians, who may face ethical challenges collaborating with patients and caregivers while preserving the primacy of the patient-physician relationship. One of those principles is for physicians to recognize the valuable role caregivers play in providing continuity of care. The paper was originally published in the Journal of General Internal Medicine (January 11, 2010).

To review full report, visit: American College of Physicians.

Next Step in Care Resource Guide on Hospice and Palliative Care

The United Hospital Fund's Next Step in Care recently published a "Family Caregiver's Guide to Hospice and Palliative Care." Next Step in Care is a national campaign sponsored by the United Hospital Fund that aims to engage medical and long term care facilities, home health agencies, and patient advocacy groups to address a range of transition-related issues. The guide provides family caregivers with insight on the decision-making process when assisting a loved one's transition into hospice and palliative care.

To review the guide in English, visit: Next Step in Care.
To review the guide in other languages, visit: Next Step in Care.

Online Chronic Disease Program

The National Council on Aging (NCOA) is registering individuals for their program Better Choices, Better Health, a six-week online series with interactive workshops for individuals with chronic conditions. This workshop is accessible through any computer with an internet connection and is a new online version of Stanford University's Chronic Disease Self-Management Program (CDSMP). In addition to the online series, CDSMP hosts in person workshops in 45 states.

For more information, visit: Self Manage.
For more information about in-person workshops, email: [email protected]

Podcast: Depression in the Family

The Families for Depression Awareness continues their podcast series with "Caring for a Depressed Elderly Parent." Moderators Neil Johnson and Julie Totten, President & Founder of Families for Depression Awareness facilitate a discussion about caregiving for an elder parent with depression. Gail Hunt, President & CEO of the National Alliance for Caregiving, and Jane Richardson, who provides care for her 78 year old mother who has bipolar, also lend their expertise to the discussion.

To listen in on the discussion, visit: Families for Depression Awareness.

Review of Caregiver Intervention Studies Highlights Lack of Cultural Tailoring

The August issue of the American Journal of Alzheimer's Disease and Other Dementias (Vol 25. Number 5) features a literature review, "Developing Culturally Sensitive Dementia Caregiver Interventions: Are We There Yet?," by Dr. AM Napoles and colleagues that focuses on ethnic differences in family caregivers' experiences from 1980 to 2009. The authors explain that while there are a number of ethnic differences in caregiving, of the 47 intervention articles reviewed, only 18 reported outcomes by caregiver ethnicity. In addition, while 11 reported cultural tailoring, 8 were from the Resources for Enhancing Alzheimer's Caregiver Health (REACH) initiative. Cultural tailoring addressed familism, language, literacy, protecting elders and logistical barriers. The authors conclude that more research is needed to systematically evaluate the benefits of cultural tailoring in caregiver interventions.

To review the full article, visit: American Journal of Alzheimer's Disease and Other Dementias.

The Calm Before the Storm

The Hartford and the MIT AgeLab created "The Calm Before the Storm: Family Conversations about Disaster Planning, Caregiving, Alzheimer's Disease and Dementia" booklet to assist family caregivers with strategies on how best to prepare their loved ones for a natural disaster. It is never too early to start planning and the guide includes helpful worksheets, checklists, and valuable resources.

To review the booklet, visit: The Hartford.

FCA Blogs!

Executive Director, Kathleen Kelly, and dedicated FCA staff writers explore numerous topics in their blogs that cover a range of issues and current trends in caregiving. Join in on the discussion or post a comment of your own.

Give Us Your Feedback

You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please respond to our brief questionnaire here.

Innovations Clearinghouse on Family Caregiving

For additional research based information and informed practices, visit FCA's Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from the aging networks; and request specialized technical assistance.

Lifespan Respite News

Getting to Know the Lifespan Respite State Grantees and Stakeholders

(Fourth in a continuing series)

To access the PDF of this article, click here.

On September 7, 2010, the US Administration on Aging announced the twelve new State Lifespan Respite grantees for FY 2010. Grantees represent various governmental agencies in Delaware, Kansas, Louisiana, Massachusetts, Maine, Nebraska, New York, Oklahoma, Pennsylvania, Utah, Washington State, Wisconsin, working in collaboration with their state respite coalition and ADRC partners, and other critical stakeholders. You will be hearing more about the new state grantees in the weeks to come. For the AoA press release, click here.

The new grantees join the twelve FY 2009 state grantees from last year who are making respite more accessible and available for family caregivers across all ages and disabilities! In this newsletter article, we continue to provide updates on the progress of the FY 2009 grantees, specifically the New Hampshire, Rhode Island, and Tennessee Lifespan Respite programs.

New Hampshire

Lead Agency and Primary Collaborators
The New Hampshire Department of Health and Human Services (NHHS), Special Medical Services (SMS), in collaboration with the Bureau of Elderly and Adult Services (BEAS), Bureau of Developmental Disabilities (BDS), Bureau of Behavioral Health (BBH), Division of Children and Youth and Families (DCYF), National Alliance on Mental Illness - New Hampshire (NAMI-NH), New Hampshire Family Voices (NHFV), and the College of Direct Support (CDS). New Hampshire is one of several Lifespan Respite grants with a non-aging focused agency as the state lead entity.

Main Activities
The goal of the project is to increase availability of trained LRC providers for New Hampshire residents. Planned activities include: 1) choosing direct support training modules appropriate to respite care providers, modifying them to meet the project needs, 2) developing training modules for the Severely Emotionally Disturbed (SED) and the Traumatic Brain Injured (TBI) populations, 3) developing a marketing campaign to recruit and train providers, 4) designing and implementing a coordinated registry providing access to fully trained respite care providers, 5) instituting a pilot for the LRC targeting a specific population with SED based upon the model of New Hampshire Division of Children, Youth and Families (DCYF) Adoptive Care Respite Pilot, and 6) having the work plan and evaluation for sustainability of LRC overseen by the Planning Advisory Group.

The Planning Advisory Committee (lead agency, primary collaborators, parents and other interested groups) divided into workgroups to address the work plan activities. Modules for three training tiers have been chosen utilizing the College of Direct Support for the foundation of the curriculum. A module on Severe Emotional Disturbance is included as a specialty for the pilot program. An enrollment packet is developed and currently six enrollees are actively participating in the first tier of the provider training.

The marketing work group developed, a logo for the New Hampshire Lifespan Respite initiative and a flyer, advertising the opportunity for training and work within the pilots. Distribution of the flyers has started in the southern portion of the State where the first pilot program is being implemented.

The respite locator database (registry) is being designed to coordinate with the training of the respite providers to show competency through completed lessons. The pilot work group includes representatives from SMS, BBH, two local offices of the DCYF and the Office of Adoptive Services. This group is to coordinating the first pilot program.

The New Hampshire Lifespan Respite Coalition workgroup developed the Mission and Vision statements for the group. This group is now the Advisory/Planning Committee responsible for laying the foundation for the coalition and developing a broader base to ensure coalition buy-in and sustainability.

State Respite Coalition Role
New Hampshire is working on establishing the foundation for a state respite coalition in concert with efforts to establish a state Lifespan Respite Program.

Aging and Disability Resource Center Role
"Service Links" are the Aging and Disability Resource Centers in New Hampshire under the Bureau of Adult and Elderly Services (BEAS). Service Links is a primary collaborator in the New Hampshire Lifespan Respite grant. BEAS is a member of the committee working on the foundation for the state respite coalition.

NH State Lead Contacts:
Elizabeth Collins, RN-BC, MS
Administrator/CSHCN Director
Special Medical Services
129 Pleasant Street
Concord, NH 03301
(603) 271-8181
[email protected]

Sharon Kaiser, RN, BS
[email protected]

Rhode Island

Lead Agency and Primary Collaborators
Rhode Island Department of Elderly Affairs (RI DEA), THE POINT (RI's Adult and Disability Resource Center), the Parent Support Network of Rhode Island, the Roman Catholic Diocese of Providence, and the RI Lifespan Respite Coalition, including RI's Health and Human Services Agencies.

Main Activities
The goal of the project is for every caregiver with a need for respite to have knowledge of available resources and access to those services for which they are eligible. Rhode Island's approach includes mapping and better coordinating existing resources across populations, increasing public awareness and doing outreach to caregivers who may need this service, making respite Medicaid -reimbursable through the Medicaid global waiver and expanding access by developing a volunteer respite provider workforce through the local TimeBank.

TimeBanks is a system whereby people receive one "Time Dollar" for every hour donated, and can then spend those dollars on receiving needed services. A TimeBank is a community-building tool that helps to increase natura supports to families that do not depend on funding dollars. Potential respite providers are screened and trained through the TimeBank, and receive time dollars for their service.

State Respite Coalition Role
The Parent Support Network of RI heads up the RI Respite Coalition and has hired the Lifespan Respite Project Coordinator to implement the state's program—specifically with emphasis on the TimeBanks component. The State Respite Coalition is also responsible for leading the effort on the Global Medicaid Initiative, which will require action on the part of the State Legislature to implement. The Coalition, which is made up of 50 member organizations, also provides a unified voice for all those involved with respite, as well as assists in outreach efforts and the development of outreach materials.

Aging and Disability Resource Center Role
THE POINT/United Way 211 (ADRC) will take the lead on raising public awareness. Information will be available to families via a central 211 United Way website and Help Line.

RI State Lead Contacts:
Melody Rodrigues
Project Director
Department of Elderly Affairs
(401) 462-0539
[email protected]

Tennessee

Lead Agency and Primary Collaborators
The Tennessee Commission on Aging and Disability (TCAD), the Tennessee Respite Coalition (TRC), and the Area Agencies on Aging and Disability (AAADs) and the Aging and Disability Resource Centers (ADRC).

Main Activities
The state Lifespan Respite program plans to: 1) facilitate coordination among respite programs and providers and ensure an inclusive coalition for respite services; 2) increase access to respite through a "no wrong door" coordinated system; 3) develop a plan to collect and analyze data about the respite needs of families and the provision of respite services statewide; 4) enhance abilities of the TRC to respond to respite needs through a Respite Specialist; 5) increase opportunities for provider and caregiver training; and 6) increase respite volunteer training.

The program intends to increase the capability of TRC to respond to the needs of caregivers, to provide on-going training, and to recruit additional providers and volunteers; to enhance abilities of the TRC to respond to respite needs through their two Respite Specialists; update the current TRC computer database to provide a tracking system and data on respite referral results across age and disability, on access to respite, and track the success of referrals across the system.

State Respite Coalition Role
To date, the Tennessee Respite Coalition (TRC) has facilitated seven Regional Respite Collaboration groups whose members include respite providers, caregivers, and representatives of the Developmental Disability Council, Department of Mental Health and Developmental Disabilities, Tennessee Disability Coalition, and Area Agencies on Aging and Disabilities (AAAD). Each region meets regularly and gathers information on respite opportunities in their areas in order to maintain a comprehensive list of respite resources for the TRC and ADRC databases. Regional respite coalitions have been reenergized to raise local funding for families who do not qualify for any state or federal program and provide respite vouchers to families in need.

TRC currently has a toll free "Helpline", which caregivers may call to get respite information. TRC has developed an electronic newsletter, which circulates monthly to about 740 TN subscribers. The TRC website is under modification and will soon allow caregivers to sign up for the newsletter online.

The TRC has been utilizing university students to provide volunteer respite for a number of years. Under this grant, the Lifespan Respite program will partner with colleges/universities to expand the volunteer respite program model and increase respite volunteers. TRC hired a respite Training Coordinator who is coordinating the Chattanooga Volunteer Program at the University of Tennessee Psychology Department and has just expanded the program to Chattanooga State Behavioral Science Department. Currently two types of volunteer opportunities are available for students. The Practicum requires the student to do 100 hours of volunteer work in a semester for 3 hours of class credit. The Brief Practicum is offered in three behavioral science classes at Chattanooga State. During the first six months of the program, the Volunteer Program provided 60 families with 1,294 hours of respite. Volunteers are matched with families found through partnering with community-based agencies. Outcome data are already demonstrating reduced stress among families receiving respite. As part of the respite evaluation, family caregivers are being asked how they spent their time during respite and whether or not they were able to take time and care for themselves. Research is beginning to show that how caregivers make use of their respite time to be an important indicator of how helpful respite will be in the long-term.

Aging and Disability Resource Center Role
The Respite Coordinator at the TRC provided the ADRC with information about respite programs to be included in the ADRC database and will actively refer family caregivers to the ADRC if they cannot serve them through their own system. A reciprocal relationship will exist between the ADRC and the state respite coalition, promoting a "no wrong door" approach.

TN State Lead Contact:
Tabitha Satterfield
Aging Program Coordinator
Tennessee Commission on Aging and Disability
500 Deaderick Street, Suite 825
Nashville, TN 37243
(615) 741-2056
Fax: (615)741-3309
[email protected]

Listen to the Lifespan Respite Webinar

ARCH's last Webinar on August 12, 2010, Tools for Collaboration, can be viewed in its entirety at http://www.archrespite.org/ta-center-for-respite/webinars-and-resources/tools-for-collaboration. At the heart of Lifespan Respite is the concept of collaboration among various stakeholders at the federal, state, and local levels. This webinar explores the history, successes, and challenges of collaboration among state agencies, state respite coalitions, and Aging and Disability Resource Centers. While the lessons to be learned will be most useful for those directly involved in planning and implementation of State Lifespan Respite programs and state respite coalitions, others working in social service, long-term services and supports, and health systems will benefit as well. The Webinar presenters were: Barbara Snyder, director of the Delaware Lifespan Respite Network and Director of Corporate & Foundation Relations for Easter Seals Delaware & Maryland's Eastern Shore; Barbara Schwartz, Lifespan Respite Program Director, Illinois Department on Aging; and Joseph Lugo Aging Services Program Specialist and program officer for Aging and Disability Resource Centers, Administration on Aging, US Department of Health and Human Services. Additional collaboration resources and tools are available at http://www.archrespite.org/images/docs/Webinar_Collaboration_Background3.pdf

Exclusively For Lifespan Respite Grantees and Partners

State Lifespan Respite Grantees and their designated partners are invited to join the networking webpage at ARCH's Technical Assistance Center for Lifespan Respite. Lifespan Respite Grantees and their primary partners can register for the upcoming by-invitation-only Lifespan Respite Grantee and Stakeholder Meeting on October 27, 2010 in Baltimore at this site.

You also can register for other exclusive events, get the latest news, find answers to your questions, and engage in meaningful discussion with other state grantees through topical forums. Just click on "Join Lifespan Respite Grantee and Stakeholder Group" to get started. Don't forget to click on the RSS feeds so you will be notified when new information is posted.

For Everyone—Join ARCH on Facebook and on Twitter @archrespite.

ARCH Lifespan Training and TA Center to Host State Lifespan Respite Summits in 2011

ARCH will soon solicit applications from collaborative partnerships of state government agencies, state respite coalitions/organizations and Aging and Disability Resource Centers to hold statewide Lifespan Respite Summits in states that do not yet have a federal Lifespan Respite Grant and have not previously held an ARCH-sponsored Summit.

The purpose of the summit is to bring together diverse public and private groups and family caregivers with similar respite interests to learn about the federal Lifespan Respite program, states' best practices, building state respite coalitions, and to help assist the state in planning its own Lifespan Respite system. Only four states will be selected for grants up to $1600 and Summits will be expected to take place from January 2010 through March 2011. For more information and to receive an application, contact Jill Kagan, ARCH Program Director, at [email protected] or by phone at (703) 256-2084.

  © 2010 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance. 

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