2013 Awardees of the Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving
The 2013 winners, chosen at the close of last year, are described below. The organizations are expected to receive their awards from Family Caregiver Alliance and The Rosalinde and Arthur Gilbert Foundation this week at the American Society on Aging's Aging in American Conference held all this week, March 11-15, at the Manchester Grand Hyatt in San Diego.
The awardees will be honored and their programs highlighted at a reception for the Rosalinde Gilbert Innovations in Alzheimer's Caregiving Legacy Awards, held Thursday, March 13th, 6:30-8pm. These programs focus on improving the lives of adults with Alzheimer’s disease and their family caregivers through creative expression programming, targeting diverse/multicultural communities, and organizing for advocacy and policy changes. The National Center on Caregiving of Family Caregiver Alliance and the Rosalinde and Arthur Gilbert Foundation are pleased to host this reception and invite everyone to attend! And the winners are . . .
Creative Expression (2 Winners)
Organization: Alzheimer’s Poetry Project/New Mexico Literary Arts (Santa Fe, NM)
Program: Alzheimer’s Poetry Project
Overview: The goal of the Alzheimer’s Poetry Project (APP) is to improve the quality of life of people living with Alzheimer’s disease and related dementias by facilitating creative expression through poetry. The rationale for using poetry with people living with dementia stems from research that shows aerobic benefits and increased synaptic activity when reciting poems and significant emotional and psychological benefit from being able to access the creative part of one’s identity. Since 2003, APP has provided professional arts programming in 24 states and internationally in Germany, Poland and South Korea serving over 15,000 people with early to late-stage dementia and their caregivers. It also provides training for professional caregivers and teaching artists. The result has been an innovative, highly replicable arts intervention to improve the quality of life of people living with dementia and their families.
Organization: WeOwnTV (San Francisco, CA)
Program: The Genius of Marian
Overview: WeOwnTV is a nonprofit organization that produces educational documentary films that explore critical issues of our time by creating robust social campaigns and educational outreach activities around its productions. The organization produced The Genius of Marian, a visually rich and emotionally complex, feature-length, documentary film, that explores the heartbreak of Alzheimer's disease, the power of art, and the meaning of family. The documentary follows Pam White and her family for three years following her Alzheimer's diagnosis as her son, the filmmaker, documents the changes that occur in all of their lives. The Genius of has been particularly resonant for family caregivers, caregiving professionals and those directly affected by Alzheimer's disease and age-related disabilities because it prominently features family caregiving in action. The objective of the film is to inspire new thinking about how we define health and wellness and to change the way we cope, as individuals and as a society, with Alzheimer's disease, aging and loss.
Diverse/Multicultural Communities (1 Winner)
Organization: Alzheimer’s Community Care (West Palm Beach, FL)
Program: Community-based Alzheimer’s Specific Services (FNC) for Everglades Agricultural Area
Overview: Alzheimer’s Community Care launched the Family Nurse Consultant (FNC) program in the Everglades agricultural region of Palm Beach County two years ago, reaching the underserved communities of Belle Glade, Pahokee and South Bay. The program provides Alzheimer’s disease caregivers with education, support and access to community-based services to continue home-based care and experience quality of life for themselves and their loved ones. The minority population (56% Black, 34% Hispanic) of predominantly farm workers faces many challenges including poverty (34%), low education levels (44% less than high school education), and high unemployment (37%). Because minority populations are at greater risk for Alzheimer’s disease, the need for access to dementia-specific interventions is critical. The Family Nurse Consultant (FNC) program serves as a lifeline for families living with Alzheimer’s disease. The program’s goal is to provide caregivers with support, tools and resources needed to continue providing home-based care for their loved ones with Alzheimer’s disease. The FNC provides interventions, home visits, needs assessments, and care plans designed to meet the needs of the patient and family caregiver throughout all stages of the disease. These interventions have proven to reduce caregiver stress and reduce or eliminate the need for nursing home placement. The results are improved quality of life and safety for both the patient and the caregiver.
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