A non-profit organization that provides online information to those who cannot afford medicine or healthcare costs. Website provides information about prescription assistance programs for specific medications and diseases, as well as government programs.
Family Care Navigator
State-by-State Help for Family Caregivers
Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you. View national resources and organizations here. Care Recipient Eligibility:
Varies depending on the specific assistance program.
Caregiver Eligibility:
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National
No hotline.
A non-profit organization that provides online information to those who cannot afford medicine or healthcare costs. Website provides information about prescription assistance programs for specific medications and diseases, as well as government programs.
Care Recipient Eligibility:
Varies depending on the specific assistance program.
Caregiver Eligibility:
__
National
No hotline.
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community.
Care Recipient Eligibility:
Anyone, but their focus is primarily on the family caregiver caring for 50+
Caregiver Eligibility:
Anyone, but their focus is primarily on the family caregiver caring for 50+
National
Talk to a Family Adviser for free: (866) 824-8174
Provides information about how qualifying patients without prescription drug coverage can get the medicines they need for free or nearly free through patient assistance programs.
Care Recipient Eligibility:
Varies depending on the specific assistance program.
Caregiver Eligibility:
--
National
(888) 477-2669
Online resource reports on the latest scientific findings, creates and maintains public databases of research data, and produces discussion forums.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
___
Provides information to promote awareness, prevention and early detection of diabetes. Offers free online monthly newsletter and screening tool. A listing of diabetes education programs and support groups in all 50 states is available.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
See website for local contact information
Provides information and resources to stroke survivors and their families including stroke support groups and a recovery guide.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) STROKES
(800) 787-6537
Offers programs and services to meet the needs of brain tumor patients and their families such as a monthly e-bulletin with tips on living and coping, support groups and in-person consultation services from social work professionals.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 886-2282
Offers more than a dozen online support groups and resources about brain tumors and related conditions.
Care Recipient Eligibility:
Anyone with a brain tumor.
Caregiver Eligibility:
Anyone caring for someone who meets care recipient eligibility.
National
(877) 252-8480
Provides a toll-free line and an online resource center to answer questions regarding Parkinson's disease.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 457-6676
Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 533-3231
Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
___
Provides up-to-date information about research on the treatment, care, diagnosis of Huntington's Disease. Also offers online support group and chatroom.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
___
Provides information and other services to people with diabetes, their families, health professionals and the public.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 342-2383
See website for local chapter contact information
Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 345-4372
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community.
Care Recipient Eligibility:
Anyone, but their focus is primarily on the family caregiver caring for 50+
Caregiver Eligibility:
Anyone, but their focus is primarily on the family caregiver caring for 50+
National
Talk to a Family Adviser for free: (866) 824-8174
Provides credible heart disease information for effective prevention and treatment of cardiovascular diseases and stroke.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 242-8721
See website for local chapter contact information
An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
See website for local contact information
*Note: individual state pages are no longer being updated.
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC).
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)
Provides advocacy, information about prevention, and health education concerning Kidney disease. Also, offers limited financial assistance for the following programs:
- Health Insurance Premium Program
- Medicare Part D
- Safety Net
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 638-8299
Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)
This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(888) 655-3392 (888 OK LEEZA)
In Illinois:
(815) 741-0077
In Florida:
(954) 883-7240
In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414
Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(888) 615-PAIN
(888) 615-7246
Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)
Coalition of organizations focused on family caregiving issues. Conducts research, policy analysis and develops national programs to increase public awareness of family caregiving issues.
Care Recipient Eligibility:
Anyone
Caregiver Eligibility:
Anyone
National
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Pages
Education and Events Calendar
Smart PatientsCAREGIVER STORIES
I began caregiving for my mother who has Huntington's disease about 2.5 years ago. She had a very serious fall in 2013 and after being hospitalized for a few days her neurologist required her to have 24 hour care.
