Primary Caregivers

Parkinson’s Disease and Caregiving

What is Parkinson’s Disease?

Parkinson’s disease (PD) is a progressive, neurological disease that mainly affects movement but can also affect cognition. Parkinson’s disease results from the destruction of nerve cells in a part of the brain called the basal ganglia.

Amyotrophic Lateral Sclerosis (ALS)

What is ALS?

Dementia with Lewy Bodies


Dementia with Lewy Bodies (DLB) is a progressive degenerative disease or syndrome of the brain. It shares symptoms,and sometimes overlaps, with several diseases, especially Alzheimer's and Parkinson's.

Brain Tumor


A brain tumor is a collection of damaged cells that multiply out of control within the brain. Also called a neoplasm, growth, mass or lesion, a brain tumor is classified as either primary or secondary (metastatic), and can be benign or malignant.

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¿Es una demencia? ¿Que significa ese diagnóstico? (Is this Dementia and What Does it Mean?)


¿Qué quiere decir el diagnóstico de demencia? Para algunas personas, esta palabra provoca temibles imágenes de conducta "loca" y descontrolada. En realidad, la palabra "demencia" describe un grupo de síntomas entre los cuales están: la pérdida de la memoria a corto plazo, la confusión, la incapacidad para resolver problemas, la incapacidad para ejecutar tareas complejas como cocinar o llevar las cuentas de gastos y, a veces, alteraciones de la personalidad o comportamientos inusuales.

Hypoxic-Anoxic Brain Injury

Introduction & Definition

The brain requires a constant flow of oxygen to function normally. A hypoxic-anoxic injury, also known as HAI, occurs when that flow is disrupted, essentially starving the brain and preventing it from performing vital biochemical processes. Hypoxic refers to a partial lack of oxygen; anoxic means a total lack. In general, the more complete the deprivation, the more severe the harm to the brain and the greater the consequences.

Traumatic Brain Injury


Each year, an estimated 2.5 million people in the U.S. sustain a traumatic brain injury. The impact on their families and caregivers is immense. This fact sheet discusses traumatic brain injury (TBI) and its consequences, and provides information about the helpful resources available to families caring for a loved one affected by TBI.


Traumatic brain injury, also called brain injury or head injury, occurs when a blow or jolt to the head results in damage to the brain. TBIs range in severity from mild to severe.



A stroke is an injury to the brain caused when the brain's blood supply is interrupted or greatly reduced. The brain is deprived of oxygen and nutrients, and brain cells begin to die within minutes. For that reason, a stroke is considered a medical emergency and requires prompt diagnosis and treatment.

Programs and Services Overview

FCA's work intersects three key areas: caregiver services, policy and research.  But across all agency programs, the services and products developed and delivered are based on real needs of real caregivers - those families we hear from and work with every day.   Specific business lines include:

Caregiver Services on the regional and national levels include:


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