Primary Caregivers

Programs and Services Overview

FCA's work intersects three key areas: caregiver services, policy, and research. But across all agency programs, the services and products developed and delivered are based on real needs of real caregivers — those families we hear from and work with every day. Specific business lines include:

Caregiver Services on the regional and national levels include:

Traumatic Brain Injury

Introduction

Each year, an estimated 2.5 million people in the U.S. sustain a traumatic brain injury. The impact on their families and caregivers is immense. This fact sheet discusses traumatic brain injury (TBI) and its consequences, and provides information about the helpful resources available to families caring for a loved one affected by TBI.

Definition

Traumatic brain injury, also called brain injury or head injury, occurs when a blow or jolt to the head results in damage to the brain. TBIs range in severity from mild to severe.

¿Es una demencia? ¿Que significa ese diagnóstico? (Is this Dementia and What Does it Mean?)

Introducción

¿Qué quiere decir el diagnóstico de demencia? Para algunas personas, esta palabra provoca temibles imágenes de conducta "loca" y descontrolada. En realidad, la palabra "demencia" describe un grupo de síntomas entre los cuales están: la pérdida de la memoria a corto plazo, la confusión, la incapacidad para resolver problemas, la incapacidad para ejecutar tareas complejas como cocinar o llevar las cuentas de gastos y, a veces, alteraciones de la personalidad o comportamientos inusuales.

California’s Caregiver Resource Centers

Every year, California's 11 nonprofit Caregiver Resource Centers (CRCs), serve more than 14,000 families and caregivers of adults affected by chronic and debilitating health conditions including dementia, Alzheimer's disease, cerebrovascular diseases (such as stroke or aneurysms), degenerative diseases such as Parkinson's, Huntington's and multiple sclerosis, or traumatic brain injury (TBI), among many others.

Make a Donation to FCA

Your generosity helps us to

  • Increase recognition by policy-makers, professional care providers, and the public of the social and economic impact of long-term care.
  • Continue our innovative educational services for caregivers, and our free information, publications, and counseling services for families.
  • Improve the emotional and physical well being of family caregivers and their loved ones.

Frontotemporal Dementia

Definition

Frontotemporal Dementia (FTD) is a degenerative condition of the front (anterior) part of the brain. It differs from other causes of dementia such as Alzheimer’s, Lewy Body and Creutzfeldt Jakob’s diseases. FTD is currently understood as a clinical syndrome that groups together Pick's disease, primary progressive aphasia and semantic dementia. The areas of the brain affected by FTD—the frontal and anterior temporal lobes—control reasoning, personality, movement, speech, social graces, language and some aspects of memory.

Alzheimer’s Disease and Caregiving

Overview

Alzheimer's disease (AD) is a condition that causes abnormal changes in the brain mainly affecting memory and other mental abilities. Alzheimer's is a disease, not a normal part of aging. Loss of memory is the usual first symptom. As the disease progresses, the loss of reasoning ability, language, decision-making ability, judgment and other critical skills make navigating day-to-day living impossible without help from others, most often a family member or friend. Sometimes, but not always, difficult changes in personality and behavior occur.

Parkinson’s Disease and Caregiving

What is Parkinson’s Disease?

Parkinson’s disease (PD) is a progressive, neurological disease that mainly affects movement but can also affect cognition. Parkinson’s disease results from the destruction of nerve cells in a part of the brain called the basal ganglia.

Amyotrophic Lateral Sclerosis (ALS)

What is ALS?

Dementia with Lewy Bodies

Definition

Dementia with Lewy Bodies (DLB) is a progressive degenerative disease or syndrome of the brain. It shares symptoms,and sometimes overlaps, with several diseases, especially Alzheimer's and Parkinson's.

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