Primary Caregivers

Connections April 2014


From Denial Toward Acceptance (Still an Elusive Destination)

For the past 15 years my mother and I have been under the tutelage of Alzheimer’s Disease, a malevolent force which has actually been with her much longer than that but I was too obtuse, and she was too confused, to comprehend. She will turn 101 this November, still a strikingly beautiful woman. Our family is just the two of us and our fat cat, Velcro, who cares for us both.

FCA Client Kathy Warren Featured on CBS Sunday Morning

On October 19th, CBS Sunday Morning aired a program entitled, Aging in America: Stuck in the Middle about families who are not poor enough to qualify for subsidized home care or adult day care nor rich enough to purchase those services privately. FCA client Kathy Warren, who cares for her father, is featured on the program.

So Tired From All My Parents' Doctor Appointments That I Hate Seing One Myself

I have multiple illnesses and receive only SSI, though I did try to work some freelance after getting disability. I am currently living with, and trying to look after two parents. They are in their late 80s/early 90s and very luckily have only mild dementia. I attribute some of this to the fact that I am there and, being a person who is interested in many things, create a stimulating environment.

FCA Releases Nine New Publications for Caregivers

When Care Comes Home . . . L.A. Caregivers Invited

FCA is alerting caregivers in Los Angeles, California, to an event hosted by one of our corporate partners, Clorox.  Caregivers in the Los Angeles area are invited to join Clorox CareConcepts for a night off with other caregivers . . . cocktails, hors d'ouevres, and pampering activities will be provided,along with a private screening of the caregiving documentary "A Sacred Journey," by Los Angeles-based filmmaker, Ernesto Quintero.

We Had Promised Each Other We Would Never Leave One Another

For 3 years, it was forgetting just little things. He never thought anything about it as his job was very stressful. He had a mandatory work meeting down state which he went to. But he called me on the phone saying that he was lost, and that’s when I knew there was something wrong.

I found him on the side of the road; I had told him to park and stay in his car. We went home and he seemed fine for a while.

Paid Sick Leave Passes California Senate

Congratulations to California workers! In the early morning hours of Saturday, August 30th, California became the second state (after Connecticut) to pass a paid sick leave bill, now awaiting signature by Governor Jerry Brown. The bill requires businesses to provide up to three paid sick days per year for employees who work 30 days or more—a great first step towards helping hardworking Californians. Sick days may be used to care for an employee's own illness, or for that of a family member (child, parent, spouse, domestic partner, grandparent, grandchild, or sibling).

The Trouble with Hope

I had a strained relationship with hope before my wife was diagnosed with cancer.  To me, hope was a high waiting for a low, a fix with a nasty flipside.  Far from the precious entity exalted by legions of poets and philosophers, hope was just another coordinate on the pain/pleasure cycle existing in infinite balance with its opposite.  In the same way that happiness alternates with sadness, or desire with loss, hope alternates with fear. One requires that the other exist. Hope was for suckers, and I was no sucker.

針對有失禁症狀之癡呆症患者的護理建議 (Incontinence and Dementia - Chinese)


  • 與醫生討論失禁問題是否由藥物、前列腺增生或尿道感染引起,特別是突然出現失禁症狀的患者。


  • 研究各種失禁用品。市面上有許多失禁用襯墊和內衣。每個人的需要各有不同,應選擇最適合的產品。在防護內褲中加上襯墊能增加吸收量。不要稱之為成人紙尿褲,應稱作防護內褲。


  • 癡呆症患者通常對穿著防護內褲表現抗拒。可能需要一些技巧讓他們習慣穿著,例如,在早上穿衣服時將防護內褲自然地融合到穿衣的一部分。先把襯墊放在內褲裡,在失禁病人更換衣服或從廁所站起來時,把內褲遞給他們。如果病人表現出抗拒情緒,您可以對他們說「它能幫助我更好地照顧你,這樣我就不會擔心了」,或者可以說「這對您有好處,穿上它您就不用再趕忙跑去洗手間,也不必擔心因此摔倒了。」


  • 使用橡膠或一次性塑膠防護床墊、椅子、汽車座椅等。



Subscribe to RSS - Primary Caregivers