For Professionals

Caregivers Count Too! Toolkit

An Online Toolkit to Help Practicioners Assess the Needs of Family Caregivers

Now more than ever, involving family caregivers is a necessary part of working with older people and adults with disabilities in all practice settings. As our population ages, more people with chronic and disabling conditions are choosing to live at home or in the community, launching their family members and close friends into action as caregivers.

The toolkit is broken up into sections . . .

National Consensus Report on Caregiver Assessment: Volumes I & ll

This groundbreaking two-part report from the National Center on Caregiving at Family Caregiver Alliance calls for significant improvement in health care and long-term care that relies too much on families without recognizing and assessing family caregivers' own support and health needs. Caregiver assessment is an essential component of comprehensive care for frail elders and adults with chronic or disabling conditions, particularly dementia.

Caregivers Count Too! Section 2: Why Assess the Needs of Family Caregivers?

Assessment builds caregiver morale and capacity:

  • Caregivers who have their needs assessed feel acknowledged, valued, and better understood by practitioners.
  • Caregivers gain a better grasp of their role and the abilities required to carry out tasks.
  • If the physical, emotional and financial strains on family caregivers become too great, care in the home may be seriously jeopardized.

It’s the key to care planning:

Support for Working Family Caregivers: Paid Leave Policies in California and Beyond

Family Caregiver Alliance’s National Center on Caregiving has released a new Issue Brief on the value of paid family and medical leave to both working families and employers, and describes why this issue is taking hold in the states. The brief describes the development and initial implementation of California’s landmark paid leave law, and its usage by workers who are juggling the competing demands of jobs and caring for family members with chronic or debilitating health conditions. The brief also summarizes the progress towards similar statutes at the federal and state levels.

National Consensus Project for Caregiver Assessment

National Consensus Project for Caregiver Assessment: Translating Research into Policy and Practice

Routinely, people with chronic or disabling conditions are assessed by professionals in medical, health and social service settings to determine what services or treatments they need. Family caregivers, however, have not had the same experience.

National Consensus Development Conference for Caregiver Assessment

©2005 Family Caregiver Alliance

The National Consensus Development Conference for Caregiver Assessment was convened by the National Center on Caregiving at Family Caregiver Alliance September 7–9, 2005 in San Francisco. The event was an intense and productive two days for the invitees, all key leaders in the field, with multi-disciplinary perspectives on the issues.


What Do We Mean By.....

Activities of Daily Living (ADLs) – everyday tasks related to personal care usually performed for oneself in the course of a normal day, including bathing, dressing, grooming, eating, walking, taking medications, and other personal care activities.

Traumatic Brain Injury - CA Resources

The following are some of the organizations that provide services to families dealing with Traumatic Brain Injury (TBI) in California:

The Traumatic Brain Injury Services of California

Caregivers at Risk

Family Caregiver Alliance’s statewide survey of California caregivers of brain-impaired adults (those with Alzheimer’s disease, stroke, traumatic brain injury, Parkinson’s disease, etc.), revealed:

Caregivers' Guide to Medications and Aging

Medications: A Double-Edged Sword

“Any symptom in an elderly patient should be considered a drug side effect until proved otherwise.”
Brown University Long-term Care Quality Letter, 1995.


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