Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you. View national resources and organizations here.
AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
Government site links to information and resources on a wide range of disability related topics, such as: benefits, civil rights, community services, health services and more.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

A non-profit organization that provides online information to those who cannot afford medicine or healthcare costs. Website provides information about prescription assistance programs for specific medications and diseases, as well as government programs.
Care Recipient Eligibility:

Varies depending on the specific assistance program.

Caregiver Eligibility:

__

National

No hotline.

Offers an online State Resource Directory for Elder Abuse Prevention which includes helplines and hotlines to report suspected elder abuse, neglect, or exploitation. Also includes state laws and regulations that protect older adults.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

Go to their website (NCEA) for a state by state resource help hotline listing

Links older adults and their family members to state and local area agencies on aging (AAAs) and community-based organizations that help older adults remain at home and in the community. AAAs offer: - Information and Assistance - Care Management
Care Recipient Eligibility:

Anyone age 60 or older.

Caregiver Eligibility:

Anyone

National

(800) 677-1116
Eldercare hotline is available weekdays
9:00am-8:00pm
(Eastern Time)
Spanish-speaking information specialists are available

Provides information about how qualifying patients without prescription drug coverage can get the medicines they need for free or nearly free through patient assistance programs.
Care Recipient Eligibility:

Varies depending on the specific assistance program.

Caregiver Eligibility:

--

National

(888) 477-2669

An online resource that defines the role of a long-term care ombudsman and how he/she can help families of nursing home residents. It also includes a state-by-state directory of long-term care ombudsmen.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(202) 332-2275

Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 533-3231

Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides up-to-date information about research on the treatment, care, diagnosis of Huntington's Disease. Also offers online support group and chatroom.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides information and other services to people with diabetes, their families, health professionals and the public.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 342-2383

See website for local chapter contact information

Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 345-4372

Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community.
Care Recipient Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

Caregiver Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

National

Talk to a Family Adviser for free: (866) 824-8174

Provides credible heart disease information for effective prevention and treatment of cardiovascular diseases and stroke.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 242-8721

See website for local chapter contact information

An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information
*Note: individual state pages are no longer being updated.

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC).
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)

Provides advocacy, information about prevention, and health education concerning Kidney disease. Also, offers limited financial assistance for the following programs: - Health Insurance Premium Program - Medicare Part D - Safety Net
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 638-8299

Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)

This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 655-3392 (888 OK LEEZA)

In Illinois:
(815) 741-0077

In Florida:
(954) 883-7240

In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414

Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 615-PAIN
(888) 615-7246

Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)

Coalition of organizations focused on family caregiving issues. Conducts research, policy analysis and develops national programs to increase public awareness of family caregiving issues.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

__

Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 223-2732

Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 539-9767

The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits.
Care Recipient Eligibility:

Eligibility varies by program (see website)

Caregiver Eligibility:

anyone

National

304-907-0428 (note: only give this number if they absolutely do not have access to a computer)

A division of the American Heart Association, provides information and referrals to stroke survivors and their caregivers through the Stroke Family Warmline.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 478-7653

Pages