Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you. View national resources and organizations here.
AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
An online service of the National Council on Aging to help older adults and their families determine their eligibility for and enroll in federal, state, local and private benefit programs including Medicare and Medicaid.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

__

Provides primary care, specialized care, and related minor medical and social support services to U.S. veterans, service members and their families. VA benefits and services include: - Compensation - Pension - Health Care
Care Recipient Eligibility:

- A veteran OR
- An active duty military service member OR
- A member of the Reserve or National Guard OR
Post - 9/11 (2011)

Caregiver Eligibility:

__Services for caregivers of post 9/11 veterans call the hotline at: 1-855-260-3274 (The criteria will be different times/wars served to access the numerous caregiver benefits under the new law).

National

Information and Assistance (800) 827-1000

Caregiver Support Line: (855) 260-3274

Offers consumers, families and advocates resources and information on long-term care including; an overview of each state's nursing home system and licensing agencies, and a consumer's guide to choosing a nursing home.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(202) 332-2275

An online service of the National Institutes of Health with current information about federally and privately supported clinical trials in human volunteers to answer specific health questions.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

__

Provides older adults and their family members with practical information, advice and legal tools to ensure wishes at end-of-life will be respected, including the Five Wishes Living Will document.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(850) 681-2010
or Toll Free:
(888) 594-7437

WorkLife Law operates a hotline which provides legal assistance to caregivers who encounter discrimination in the workplace due to their family responsibilities. Services include: - Legal advice/assistance - Advocacy - Attorney referrals
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 981-9495

(415) 565-4640

(202) 680-8964

Legal Hotline: (415) 703-8276

Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 223-2732

Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 539-9767

The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits.
Care Recipient Eligibility:

Eligibility varies by program (see website)

Caregiver Eligibility:

anyone

National

304-907-0428 (note: only give this number if they absolutely do not have access to a computer)

A division of the American Heart Association, provides information and referrals to stroke survivors and their caregivers through the Stroke Family Warmline.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 478-7653

Offers a national toll-free helpline, online forum, and a support group directory.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) MSFOCUS
(888) 673-6287
9:00am - 7:00pm
(Eastern Time)

Hosted by Georgia Southwestern State University and provides information on caregiver programs, education and training, a community forum, publications and current events in caregiving for family and professional caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(229) 928-1234

Promotes and funds research, and provides information, education and support to people with FTD and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(866) 507-7222

Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 934-2873

A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
Care Recipient Eligibility:

__

Caregiver Eligibility:

Any spouse or partner caring for someone who is chronically ill or disabled.

National

(800) 838-0879

Check Support Groups, Contacts list under Find Caregiver Support on website for local offices

Serves as a clearinghouse for information and resources on brain injury. Operates a Family Helpline for families of brain injury patients seeking assistance, education and support.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 444-6443

Provides information about brain tumors and caregiver support services to patients and families. Offers one-to-one support over the phone or email regarding decisions for treatment. Also offers a list of support groups located throughout the United States and Canada.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 770-TBTS
(800-770-8287)

Provides reliable information, care consultation, and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to: - Recognize dementia care - Plan and pay for care
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 272-3900
Hotline available
24 hours 7 days a week

Serves as a clearinghouse of scientific and medical information about brain injuries. Also provides information and consultations for additional resources.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(206) 621-8558

An information service of the National Institute of Diabetes and Digestive and Kidney Diseases, the clearinghouse responds to inquiries about diabetes, provides referrals to health professionals, and offers publications about diabetes.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 860-8747

Provides a national call center, publications and community programs and services for cancer patients and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 227-2345

National multimedia project offering information and resources about preventing, treating, and living with traumatic brain injury (TBI). Its website includes a series of webcasts, an electronic newsletter, and a section on resources for people affected by TBI and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(703) 998-2020

Supports families affected by Kidney disease and advocates for the increase of all organs for transplantation.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 622-9010

Online resource includes information, support, and advocacy for those with Parkinson's disease and their families. Site includes information on early onset Parkinson's.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(877) 223-3801

Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 782-4747

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