Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you.

What Resources are Available in My State?

AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
Provides up-to-date information about research on the treatment, care, diagnosis of Huntington's Disease. Also offers online support group and chatroom.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides credible heart disease information for effective prevention and treatment of cardiovascular diseases and stroke.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 242-8721

See website for local chapter contact information

Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community.
Care Recipient Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

Caregiver Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

National

Talk to a Family Adviser for free: (866) 824-8174

Provides advocacy, information about prevention, and health education concerning Kidney disease. Also, offers limited financial assistance for the following programs: - Health Insurance Premium Program - Medicare Part D - Safety Net
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 638-8299

Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 345-4372

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC).
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)

Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 615-PAIN
(888) 615-7246

An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information
*Note: individual state pages are no longer being updated.

This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 655-3392 (888 OK LEEZA)

In Illinois:
(815) 741-0077

In Florida:
(954) 883-7240

In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414

Online resource includes information on the disease, support groups, a chat room, and other online group forums for young adults with Parkinson's disease and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(877) 223-3801

Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)

Coalition of organizations focused on family caregiving issues. Conducts research, policy analysis and develops national programs to increase public awareness of family caregiving issues.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

__

Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 223-2732

Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)

The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits.
Care Recipient Eligibility:

Eligibility varies by program (see website)

Caregiver Eligibility:

anyone

National

304-907-0428 (note: only give this number if they absolutely do not have access to a computer)

A division of the American Heart Association, provides information and referrals to stroke survivors and their caregivers through the Stroke Family Warmline.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 478-7653

Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 539-9767

Hosted by Georgia Southwestern State University and provides information on caregiver programs, education and training, a community forum, publications and current events in caregiving for family and professional caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(229) 928-1234

Provides a large number of community-based services nationwide to make life with arthritis easier, including: support groups, informational and exercise classes and free educational brochures and booklets.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 283-7800

See website for local chapter contact information

Offers a national toll-free helpline, online forum, and a support group directory.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) MSFOCUS
(888) 673-6287
9:00am - 7:00pm
(Eastern Time)

A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
Care Recipient Eligibility:

__

Caregiver Eligibility:

Any spouse or partner caring for someone who is chronically ill or disabled.

National

(800) 838-0879

Check Support Groups, Contacts list under Find Caregiver Support on website for local offices

Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 782-4747

Promotes and funds research, and provides information, education and support to people with FTD and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(866) 507-7222

Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 934-2873

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