Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you.

What Resources are Available in My State?

AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 655-3392 (888 OK LEEZA)

In Illinois:
(815) 741-0077

In Florida:
(954) 883-7240

In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414

Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 223-2732

Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)

Coalition of organizations focused on family caregiving issues. Conducts research, policy analysis and develops national programs to increase public awareness of family caregiving issues.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

__

A division of the American Heart Association, provides information and referrals to stroke survivors and their caregivers through the Stroke Family Warmline.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 478-7653

Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 539-9767

The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits.
Care Recipient Eligibility:

Eligibility varies by program (see website)

Caregiver Eligibility:

anyone

National

304-907-0428 (note: only give this number if they absolutely do not have access to a computer)

Provides a large number of community-based services nationwide to make life with arthritis easier, including: support groups, informational and exercise classes and free educational brochures and booklets.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 283-7800

See website for local chapter contact information

Offers a national toll-free helpline, online forum, and a support group directory.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) MSFOCUS
(888) 673-6287
9:00am - 7:00pm
(Eastern Time)

Hosted by Georgia Southwestern State University and provides information on caregiver programs, education and training, a community forum, publications and current events in caregiving for family and professional caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(229) 928-1234

Promotes and funds research, and provides information, education and support to people with FTD and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(866) 507-7222

Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 934-2873

A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
Care Recipient Eligibility:

__

Caregiver Eligibility:

Any spouse or partner caring for someone who is chronically ill or disabled.

National

(800) 838-0879

Check Support Groups, Contacts list under Find Caregiver Support on website for local offices

Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 782-4747

Serves as a clearinghouse for information and resources on brain injury. Operates a Family Helpline for families of brain injury patients seeking assistance, education and support.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 444-6443

Provides information about brain tumors and caregiver support services to patients and families. Offers one-to-one support over the phone or email regarding decisions for treatment. Also offers a list of support groups located throughout the United States and Canada.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 770-TBTS
(800-770-8287)

The Caregiver Action Network—formerly the National Family Caregivers Association (NFCA)—is a grassroots membership organization for family caregivers. It supports family caregivers through education, information, referral services, and advocacy.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 896-3650
(301) 942-6430

Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to: - Recognize dementia care - Plan and pay for care
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 272-3900
Hotline available
24 hours 7 days a week

Serves as a clearinghouse of scientific and medical information about brain injuries. Also provides information and consultations for additional resources.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(206) 621-8558

An information service of the National Institute of Diabetes and Digestive and Kidney Diseases, the clearinghouse responds to inquiries about diabetes, provides referrals to health professionals, and offers publications about diabetes.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 860-8747

Conducts clinical trials on promising medications designed to improve cognitive functioning, decrease behavioral disturbances, slow the rate of decline, or delay the onset of Alzheimer's disease.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(858) 622-5880

Online resource provides current, comprehensive information on Alzheimer's disease and caring for someone with the disease. Includes a database of clinical trials.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 438-4380

National multimedia project offering information and resources about preventing, treating, and living with traumatic brain injury (TBI). Its website includes a series of webcasts, an electronic newsletter, and a section on resources for people affected by TBI and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(703) 998-2020

Supports families affected by Kidney disease and advocates for the increase of all organs for transplantation.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 622-9010

Online resource reports on the latest scientific findings, creates and maintains public databases of research data, and produces discussion forums.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

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