Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you.

What Resources are Available in My State?

AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
A program of the National Cancer Institute, CIS provides personalized, confidential responses to specific questions about cancer. Information specialists are available by telephone and online.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 4-CANCER
(800-422-6237)
Available Weekdays
9:00am to 4:30pm
(Eastern Time)
*Assistance is also available in Spanish

Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 999-6673
*Voice mail Only

Provides a national call center, publications and community programs and services for cancer patients and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 227-2345

A nonprofit organization dedicated to helping people with cancer and their loved ones. Offer free services and programs including support groups, stress reduction programs and educational workshops through local chapters in communities across the country.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 793-WELL
(888) 793-9355
(202) 659-9709

Serves as an on-line educational and support community for persons in pain and their families. Also offers an online database of pain care providers that is searchable by name, specialty, location, pain condition, and/or treatment options.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information

Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 533-3231

Provides information to promote awareness, prevention and early detection of diabetes. Offers free online monthly newsletter and screening tool. A listing of diabetes education programs and support groups in all 50 states is available.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information

Provides information and resources to stroke survivors and their families including stroke support groups and a recovery guide.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) STROKES
(800) 787-6537

Provides information and other services to people with diabetes, their families, health professionals and the public.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 342-2383

See website for local chapter contact information

Offers more than a dozen online support groups and resources about brain tumors and related conditions.
Care Recipient Eligibility:

Anyone with a brain tumor.

Caregiver Eligibility:

Anyone caring for someone who meets care recipient eligibility.

National

(877) 252-8480

Provides a toll-free line and an online resource center to answer questions regarding Parkinson's disease.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 457-6676

Provides credible heart disease information for effective prevention and treatment of cardiovascular diseases and stroke.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 242-8721

See website for local chapter contact information

Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides up-to-date information about research on the treatment, care, diagnosis of Huntington's Disease. Also offers online support group and chatroom.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides advocacy, information about prevention, and health education concerning Kidney disease. Also, offers limited financial assistance for the following programs: - Health Insurance Premium Program - Medicare Part D - Safety Net
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 638-8299

Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 345-4372

Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community.
Care Recipient Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

Caregiver Eligibility:

Anyone, but their focus is primarily on the family caregiver caring for 50+

National

Talk to a Family Adviser for free: (866) 824-8174

Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 615-PAIN
(888) 615-7246

An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information
*Note: individual state pages are no longer being updated.

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC).
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)

Online resource includes information on the disease, support groups, a chat room, and other online group forums for young adults with Parkinson's disease and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(877) 223-3801

Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)

This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 655-3392 (888 OK LEEZA)

In Illinois:
(815) 741-0077

In Florida:
(954) 883-7240

In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414

Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 223-2732

Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)

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