Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you.

What Resources are Available in My State?

AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 782-4747

Promotes and funds research, and provides information, education and support to people with FTD and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(866) 507-7222

Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 934-2873

A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
Care Recipient Eligibility:

__

Caregiver Eligibility:

Any spouse or partner caring for someone who is chronically ill or disabled.

National

(800) 838-0879

Check Support Groups, Contacts list under Find Caregiver Support on website for local offices

Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to: - Recognize dementia care - Plan and pay for care
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 272-3900
Hotline available
24 hours 7 days a week

Serves as a clearinghouse for information and resources on brain injury. Operates a Family Helpline for families of brain injury patients seeking assistance, education and support.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 444-6443

Provides information about brain tumors and caregiver support services to patients and families. Offers one-to-one support over the phone or email regarding decisions for treatment. Also offers a list of support groups located throughout the United States and Canada.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 770-TBTS
(800-770-8287)

The Caregiver Action Network—formerly the National Family Caregivers Association (NFCA)—is a grassroots membership organization for family caregivers. It supports family caregivers through education, information, referral services, and advocacy.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 896-3650
(301) 942-6430

Conducts clinical trials on promising medications designed to improve cognitive functioning, decrease behavioral disturbances, slow the rate of decline, or delay the onset of Alzheimer's disease.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(858) 622-5880

Serves as a clearinghouse of scientific and medical information about brain injuries. Also provides information and consultations for additional resources.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(206) 621-8558

An information service of the National Institute of Diabetes and Digestive and Kidney Diseases, the clearinghouse responds to inquiries about diabetes, provides referrals to health professionals, and offers publications about diabetes.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 860-8747

Online resource provides current, comprehensive information on Alzheimer's disease and caring for someone with the disease. Includes a database of clinical trials.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 438-4380

National multimedia project offering information and resources about preventing, treating, and living with traumatic brain injury (TBI). Its website includes a series of webcasts, an electronic newsletter, and a section on resources for people affected by TBI and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(703) 998-2020

Supports families affected by Kidney disease and advocates for the increase of all organs for transplantation.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 622-9010

Online resource reports on the latest scientific findings, creates and maintains public databases of research data, and produces discussion forums.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

___

Provides support services for anyone affected by cancer including limited financial assistance grants for: - Transportation - Child care - Home care
Care Recipient Eligibility:

Patient must currently be receiving treatment for cancer

Caregiver Eligibility:

Anyone

National

(800) 813-4673

Promotes research, provides education about the disease, and organizes a wide range of programs for people newly diagnosed with MS or those living with the disease over time.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 344-4867

See website for local chapter information

Offers programs and services to meet the needs of brain tumor patients and their families such as a monthly e-bulletin with tips on living and coping, support groups and in-person consultation services from social work professionals.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 886-2282

A program of the National Cancer Institute, CIS provides personalized, confidential responses to specific questions about cancer. Information specialists are available by telephone and online.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 4-CANCER
(800-422-6237)
Available Weekdays
9:00am to 4:30pm
(Eastern Time)
*Assistance is also available in Spanish

Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 999-6673
*Voice mail Only

Provides a national call center, publications and community programs and services for cancer patients and their caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 227-2345

A nonprofit organization dedicated to helping people with cancer and their loved ones. Offer free services and programs including support groups, stress reduction programs and educational workshops through local chapters in communities across the country.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 793-WELL
(888) 793-9355
(202) 659-9709

Serves as an on-line educational and support community for persons in pain and their families. Also offers an online database of pain care providers that is searchable by name, specialty, location, pain condition, and/or treatment options.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information

Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 533-3231

Provides information to promote awareness, prevention and early detection of diabetes. Offers free online monthly newsletter and screening tool. A listing of diabetes education programs and support groups in all 50 states is available.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information

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