Family Care Navigator

State-by-State Help for Family Caregivers

Our Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. Click on a state below for those available to you. View national resources and organizations here.
AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC
Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 345-4372

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC).
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)

Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 615-PAIN
(888) 615-7246

An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

See website for local contact information
*Note: individual state pages are no longer being updated.

This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 655-3392 (888 OK LEEZA)

In Illinois:
(815) 741-0077

In Florida:
(954) 883-7240

In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414

Online resource includes information on the disease, support groups, a chat room, and other online group forums for young adults with Parkinson's disease and their families.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(877) 223-3801

Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

National

(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)

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