Alzheimer’s Disease

Caregiving During a National Emergency

At times of emergency, such as the events of September 11 or Hurricane Katrina, there are so many things to process, one has trouble prioritizing and putting things in perspective. If you are caring for a loved one with dementia, you probably found your attention distracted and your emotions conflicted. Sometimes it was hard to concentrate on the daily things in life, sometimes it was reassuring to do mundane tasks. Often people feel out of control and insecure at times of crisis. Perhaps the suggestions below will help when times are unsettled —for any reason.

¿Es una demencia? ¿Que significa ese diagnóstico? (Is this Dementia and What Does it Mean?)

Introducción

¿Qué quiere decir el diagnóstico de demencia? Para algunas personas, esta palabra provoca temibles imágenes de conducta "loca" y descontrolada. En realidad, la palabra "demencia" describe un grupo de síntomas entre los cuales están: la pérdida de la memoria a corto plazo, la confusión, la incapacidad para resolver problemas, la incapacidad para ejecutar tareas complejas como cocinar o llevar las cuentas de gastos y, a veces, alteraciones de la personalidad o comportamientos inusuales.

Alzheimer’s Disease and Caregiving

Overview

Dementia and Driving

When an individual is diagnosed with dementia, one of the first concerns that families and caregivers face is whether or not that person should drive. A diagnosis of dementia may not mean that a person can no longer drive safely. In the early stages of dementia, some—though not all—individuals may still possess skills necessary for safe driving. Most dementia, however, is progressive, meaning that symptoms such as memory loss, visual-spatial disorientation, and decreased cognitive function will worsen over time.

How to Form a Support Group for Families of Brain-Impaired Adults

Support or "self-help" groups are formed by people who share common concerns. The groups may be participant-initiated or sponsored by a health care institution, social services agency or nonprofit organization.

A degenerative or terminal illness, or an accident involving a family member, is a traumatic experience for spouse, parents, children and other relatives. Support groups allow those facing the difficult task of daily caregiving to benefit from interaction and support from other people in similar situations.

Making Choices About Everyday Care (for Families)

The diagnosis of a dementing illness marks a new stage in your life and your family’s life. Challenging decisions and important choices arise, along with uncertainty and often confusion, anxiety or fear. Some decisions might need to be made right away. Others lie ahead. The best future for you and your family depends on understanding what is most important to each of you. Recognizing and communicating your personal values about everyday care enables you and your family to make the right choices, one by one, as the situation changes.

Helping Families Make Everyday Care Choices

Introduction

The best everyday care choices for the person diagnosed with a dementing illness, and for loved ones giving care, depend on an understanding of values and care preferences. Examples of everyday care choices include when to stop driving, how to manage money, whether to purchase or use support services, when to accept care from family members and, at a more personal level, when to bathe and what activities to do.

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