Making Hard Choices: Respecting Both Voices

Findings from a groundbreaking research study exploring choice and decision-making in everyday care for persons with cognitive impairment and their family caregivers. The study makes policy and practice recommendations to advance knowledge on consumer direction and dementia care.

Publication available in hardcopy only.

Guia del cuidador para entender la conducta de los pacientes con demencia (Caregiver’s Guide to Understanding Dementia Behaviors)

El cuidado de un ser querido que padezca de demencia plantea muchas dificultades a las familias y a los cuidadores. Los pacientes con demencia provocada por la enfermedad de Alzheimer u otros trastornos similares presentan un deterioro cerebral progresivo que les hace cada vez más difícil acordarse de las cosas, pensar con claridad, comunicarse con los demás o atender a su propia persona. Además, la demencia puede provocar variaciones súbitas del estado de ánimo e incluso cambiar la personalidad y la conducta del paciente.

事实表 : 是痴呆症吗? 什么是痴呆症? (Is this Dementia and What Does It Mean?)

Books to Help Children

When Children Grieve, John W. James, Russell Friedman and Dr. Leslie Landon Matthews
To watch a child grieve and not know what to do is a profoundly difficult experience for parents, teachers, and caregivers. Yet, there are guidelines for helping children develop a lifelong, healthy response to loss.

In When Children Grieve, the authors offer a cutting-edge volume to free children from the false idea of "not feeling bad" and to empower them with positive, effective methods of dealing with loss.


National Consensus Report on Caregiver Assessment: Volumes I & ll

This groundbreaking two-part report from the National Center on Caregiving at Family Caregiver Alliance calls for significant improvement in health care and long-term care that relies too much on families without recognizing and assessing family caregivers' own support and health needs. Caregiver assessment is an essential component of comprehensive care for frail elders and adults with chronic or disabling conditions, particularly dementia.

Diagnosing Dementia

What does it mean when someone is said to have dementia? For some people, the word conjures up scary images of “crazy” behavior and loss of control. In fact, the word dementia describes a group of symptoms that includes short-term memory loss, confusion, the inability to problem-solve, the inability to complete multi-step activities such as preparing a meal or balancing a checkbook, and, sometimes, personality changes or unusual behavior.

Adult Day Care for Alzheimer's: The first day

The quiet stillness of morning had always been a soothing part of the routine Pat shared with her husband Tom.  It was a private time for her to have her coffee, read the newspaper, and check emails.  Tom rose a little later, made his own breakfast, and began to work at his desk.  But now, with the progression of Tom’s Alzheimer’s disease, Pat counts her personal time among the many things which have slipped away. 

El cuidado de los adultos con trastornos cognitivos y de la memoria (Caring for Adults with Cognitive and Memory Impairments)

El cuidado del paciente: Una experiencia universal

Grandma doesn't remember me

How does having a family member with dementia affect children? The answer: It depends on the age of the child, the severity of the memory loss and the child’s relationship to the person with dementia. The better you understand how the disease affects your loved one, and how you handle your own process of loss and adapting to change, the better you can help your child.

Ten Real-Life Strategies for Dementia Caregiving

As caregivers, we often use intuition to help us decide what to do. No one ever gave us lessons on how to relate to someone with memory loss. Unfortunately, dealing with Alzheimer’s disease and other dementias is counter-intuitive; i.e., often the right thing to do is exactly opposite that which seems like the right thing to do. Here is some practical advice:


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