Huntington’s

Caregiving for my mother who has Huntington’s disease

I began caregiving for my mother who has Huntington's disease about 2.5 years ago. She had a very serious fall in 2013 and after being hospitalized for a few days her neurologist required her to have 24 hour care. I lived about an hour away from her so I decided I would come down and help with her care to cut down on cost. We handled the scheduling and payment of her caregivers while she lived down in Denver.

New Documentary on Huntington’s Disease: ‘The Lion's Mouth Opens’

Beginning June 1, HBO will premiere a short documentary on Huntington’s disease titled, “The Lion’s Mouth Opens.” Directed by Lucy Walker, the film tells the story of actress and filmmaker Marianna Palka, who courageously decides to undergo genetic testing to see if she carries the gene for Huntington’s disease, a debilitating hereditary neurological disorder, that many of her family members suffer from. A short trailer can be viewed online here.

With Far Fewer Benefits I Could've Kept Him Home

Dave has Huntington's Disease, which doesn't require "skilled medical care." It does require over $600.00 monthly in medication, food via the feeding tube, and help to bathe or dress.

Huntington's Disease

Definition

Huntington’s Disease (HD), also called Huntington’s chorea, is an inherited brain disorder that results in loss of physical control and mental capacity. Symptoms typically appear between the ages of 30 and 50, but may appear earlier or later. HD is characterized by progressive physical, cognitive and psychological deterioration.

Subscribe to RSS - Huntington’s