National Organization for Rare Disorders (NORD)
Printer-friendly versionhttp://www.rarediseases.org
Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Website:
http://www.rarediseases.org
Phone:
(800) 999-6673
*Voice mail Only
Caregiver Eligibility:
Anyone
Care Recipient Eligibility:
Anyone
Education and Events Calendar
Smart PatientsCAREGIVER STORIES
My husband and I care for my grandma, age 94, with dementia. She moved in with us April 2013. I also go to another lady's home for one hour in the morning to get her showered, dressed and fed and for one hour in the evening for physical therapy and to get her into bed in the evening.
