National Organization for Rare Disorders (NORD)
Printer-friendly versionhttp://www.rarediseases.org
Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Website:
http://www.rarediseases.org
Phone:
(800) 999-6673
*Voice mail Only
Caregiver Eligibility:
Anyone
Care Recipient Eligibility:
Anyone
Education and Events Calendar
Smart PatientsCAREGIVER STORIES
The decisions we have to make in life so often seem difficult to me. When my mom was diagnosed with Alzheimer’ s disease I had the job of my life. I never dreamed I would be so fortunate in the job market as this. Management at the company I was working for were understanding and kind.
