National Organization for Rare Disorders (NORD)
Printer-friendly versionhttp://www.rarediseases.org
Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Website:
http://www.rarediseases.org
Phone:
(800) 999-6673
*Voice mail Only
Caregiver Eligibility:
Anyone
Care Recipient Eligibility:
Anyone
Education and Events Calendar
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Smart PatientsCAREGIVER STORIES
Our family equation for caregiving developed slowly, over five rigorous years following our father's death. Two sisters and I divide the year into three, with each caregiving our 85 year-old mother four months. Mom spends summer on Kauai.
