A stroke is an injury to the brain caused when the brain's blood supply is interrupted or greatly reduced. The brain is deprived of oxygen and nutrients, and brain cells begin to die within minutes. For that reason, a stroke is considered a medical emergency and requires prompt diagnosis and treatment.
Stroke, often called a "brain attack," is a leading cause of disability and death worldwide. Strokes strike nearly 800,000 Americans each year - killing approximately 137,000 and forever altering the lives of those who survive. There are an estimated 6.5 million stroke survivors living in the U.S. today. Many years ago strokes were believed to be untreatable, but this is no longer the case, especially with newer techniques now available.
Ischemic stroke: Caused by a blockage in an artery, is responsible for about 85% of all strokes. Despite extensive evaluation, many strokes of this type are of unknown etiology. Fortunately, preventative treatments are effective for all types of ischemic stroke. The most common ischemic stroke subtypes are:
Hemorrhagic stroke: Hemorrhage means bleeding. This type of stroke is caused by a leak or rupture of an artery in the brain or on its surface. Such ruptures can be caused by an aneurysm (a thin, weak area on an artery wall) or by a malformation of the brain's blood vessel system. Hemorrhages may occur within the brain itself, or in the space between the brain and its protective outer layer. Approximately 15% of all strokes are caused by hemorrhage.
Transient ischemic attacks (TIAs): Often called mini-strokes, TIAs are actually short episodes of stroke symptoms, often lasting only a few minutes. TIAs are caused by a temporary decrease in the supply of blood to part of the brain, and do not leave obvious lasting effects. But TIAs are considered warnings that indicate greater risk for a stroke, and need to be evaluated by a physician immediately.
Stroke and TIA warning signs are the same, and include the sudden or intermittent development of:
Stroke is more likely if more than one of these signs are present. However, there are many other conditions which may mimic stroke and it is essential to have a medical professional determine the cause of these symptoms. It's important to learn to recognize these symptoms, and if possible, to note when they began. Although they may not cause pain and may even disappear quickly, they are clear warning signs that a stroke has occurred or may soon follow. Every minute counts: the sooner you get treatment (ideally within 60 minutes), the greater the chance that permanent damage will be reduced. If you experience any stroke warning signs, contact your doctor or healthcare provider, go to the emergency room, or call 911 immediately!
Correctly determining the underlying cause and location of the stroke will determine the treatment. Improved medical technology has greatly increased the ability to accurately diagnose strokes and assess the damage to the brain. However, it is not always easy to recognize small strokes because symptoms may be dismissed by the patient and family as changes due to aging, or may be confused with symptoms of other neurological illnesses. As noted earlier, any episode of stroke warning signs requires immediate medical evaluation. As healthcare professionals will tell you, "time lost is brain lost."
Several risk factors make a person more likely to experience a stroke. These risks include controllable factors (those you can change) and uncontrollable (those you cannot change). The good news is that more than half of all strokes can be prevented through medical attention and lifestyle changes.
You may not be able to change the following factors, but you can greatly minimize their impact on your overall stroke risk by concentrating efforts on the controllable factors listed above.
In addition to the risk factors above, stroke has also been associated with heavy alcohol use (especially binge drinking); use of illegal drugs such as cocaine and methamphetamines; elevated red blood cell counts; migraine headaches with aura (visual disturbances); birth control pills or hormone replacement therapy with estrogen. No direct relationship has yet been demonstrated between stress and stroke risk. As with many conditions, exercising for as little as 30 minutes most days of the week reduces your stroke risk.
One reason for the urgency in evaluating stroke warning signs is that researchers have discovered that stroke-related brain damage can extend beyond the area directly involved in the stroke, and can worsen over the first 24 hours. Medical staff seek to limit or prevent this secondary damage by administering, if appropriate, specific medications within the first few hours post-stroke.
When a stroke occurs, hospitalization is necessary to determine the cause and type of stroke and to treat or prevent further complications. Treatment with surgery as well as medications may be needed.
Once the stroke survivor's condition is stabilized and neurological deficits no longer appear to be progressing, rehabilitation begins. Rehabilitation does not cure a stroke. Instead, it focuses on minimizing permanent damage and enhancing adaptation. Rehabilitation may include intensive retraining in a variety of areas including movement, balance, perception of space and body, bowel / bladder control, language, and new methods of psychological and emotional adaptation. Stroke rehabilitation programs consist of the coordinated efforts of many health professionals.
Approximately 80% of all stroke survivors have physical, perceptual and language deficits which can be helped through rehabilitation. Sometimes people do not receive the services they need because they are not referred to them or because insurers state that they do not cover the cost. You may need to ask a lot of questions and be assertive to get the help you need. A hospital discharge planner should assist with referrals to rehabilitation centers. A social worker can also be useful in making special arrangements for long-term care and referrals to community resources.
Recovery from a stroke is variable: some people may have a full recovery while others will have slight, moderate or severe disabilities. The most rapid recovery occurs during the first 30 days after the stroke. The particular after-effects experienced by a stroke survivor will depend upon the location and extent of the stroke and how quickly he or she received treatment. Strokes which occur in the left hemisphere (half) of the brain can affect communication and memory as well as movement on the right side of the body. Strokes which occur in the right hemisphere of the brain can affect spatial and perceptual abilities as well as movement on the left side of the body.
Although no two stroke survivors will experience exactly the same injuries or disabilities, physical, cognitive and emotional symptoms common to many stroke survivors include:
Caring for someone with a stroke is challenging. Behavior, memory, communication and physical capabilities can all be impacted by stroke. When a loved one is first hospitalized immediately after a stroke, families usually step in to help supply information about the patient's history and symptoms, check on treatments, convey patient care preferences and generally serve as the connection between the hospital staff and the patient. You suddenly become the patient's voice and chief advocate.
As treatment progresses, you, as primary caregiver, also might be involved in choosing a rehabilitation (rehab) facility, coordinating home care services, providing transportation, housekeeping and cooking, and communicating with physicians and rehab staff. As time goes on and there are continuing deficits, you also may be dealing with the patient's depression, physical care needs, coordinating home care and occupational, speech or physical therapy, facilitating communication if there is speech impairment, and providing mental and social stimulation.
It's helpful to remember you're not alone in this task - there is help available in the community and it's important to seek it out. Rehab can be a long process with slow and sometimes erratic progress - every person's recovery journey is different. Your role as advocate will continue. During recovery, try to focus on the patient's capabilities rather than limitations, and to show encouragement for every new gain, small or large.
Although providing care for a loved one may feel all-consuming, try to be aware of your own health and the ways any resulting stress may be affecting you. To help avoid caregiver burn-out, try to get enough sleep, eat healthily, attend to your own medical needs and get exercise when you can.
Counseling and respite help (meaning a break in caregiving provided by a family member, friend or hired care provider) can allow you some alone time to regroup and renew your energy for the tasks ahead. Be sure to ask for help when you feel the need. Getting support for yourself, as well as your loved one, is necessary and beneficial for both the person you are caring for and you.
Hospital Discharge Planning: A Guide for Families and Caregivers, Family Caregiver Alliance Fact Sheet, 2009. http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2312
Stroke and the Family: A New Guide. Joel M. Stein, M.D., Harvard University Press Family Health Guides, 2004. http://www.amazon.com/Stroke-Family-New-Guide-ebook/dp/B002JCSCNO
Stroke Information: References for Patients and Families, NYU Langone Medical Center Patient and Family Resource Center, New York, New York.
Stronger After Stroke: Your Roadmap to
Recovery. Peter G. Levine. Demos Health, 2008. http://www.amazon.com/Stronger-After-Stroke-Roadmap-Recovery/dp/1932603743
The Aphasia Handbook: A Guide for Stroke and Brain Injury Survivors and Their Families. Eds.: Joan Peters, Martha Taylor Sarno. National Aphasia Association, 2004. www.aphasia.org
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
Web Site: caregiver.org
E-mail: [email protected]
Family Caregiver Alliance (FCA) seeks to improve the quality of life for caregivers through education, services, research and advocacy. FCA's National Center on Caregiving offers information on current social, public policy and caregiving issues and provides assistance in the development of public and private programs for caregivers.
For residents of the greater San Francisco Bay Area, FCA provides direct family support services for caregivers of those with stroke, Alzheimer's disease, ALS, head injury, Parkinson's and other debilitating health conditions that strike adults.
Family Care Navigators
Developed by Family Caregiver Alliance, the FCN is a comprehensive online guide for caregivers to locate services and programs in all 50 states. FCN includes Frequently Asked Questions and glossary.
Next Step in Care
United Hospital Fund contains comprehensive information and advice to help family caregivers and healthcare providers plan transitions for patients. Spanish translations available. www.nextstepincare.org
National Stroke Association
9707 E Easter Lane
Centennial, CO 80112
The National Stroke Association provides education, information and referral, and research on stroke for families, health care professionals and others interested in or affected by stroke.
American Stroke Association
A division of the American Heart Association
7272 Greenville Ave.
Dallas, TX 75231
The American Stroke Association offers information and sponsors programs and support groups throughout the nation for stroke survivors and family members.
Peninsula Stroke Association
3801 Miranda Avenue
Building 6, Room A162
Palo Alto, CA 94304
Tel. (650) 565-8485
Fax. (650) 565-8482
Peninsula Stroke Association offers information about prevention for the community and provides support and advocacy to stroke survivors and their family.
National Easter Seal Society
230 West Monroe St., Ste. 1800
Chicago, IL 60606
(312) 726-6200 phone
(800) 221-6827 toll-free
Easter Seal Society chapters sponsor rehabilitation and stroke resocialization programs.
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
(301) 608-8998 phone
(800) 227-0216 toll-free
AbleData provides objective information about assistive technology products and rehabilitation equipment.
Reviewed by Thelma Edwards, R.N., National Stroke Association, and Freddi Segal-Gidan, P.A., Ph.D., Keck School of Medicine, University of Southern California, Rancho Los Amigos National Rehabilitation Center. 2007. Updated December 2010 by the Peninsula Stroke Association Funded by the Palo Alto Medical Foundation and the California Department of Mental Health. 2011 Family Caregiver Alliance; All rights reserved.