FCA's Research Registry offers a professional listing of publically and privately supported surveys, studies and clinical trials of interest to caregiving families dealing with chronic disabling health conditions, and health and service providers. Volunteers are often needed to determine whether experimental treatments or new ways of using known therapies are safe and efffective under controlled environments or to gather data that can expand knowledge and ultimately improve the lives of caregivers. We encourage you to read our fact sheet, Evaluating Medical Research Trials and Clinical Trials, and discuss participation in any trials or research studies with your personal physician. Endorsement of studies by Family Caregiver Alliance is neither expressed nor implied.
In order to help further the field of caregiver research and advocacy and encourage emerging researchers, we also provide a page for graduate students to post research questions or links to surveys for research projects on caregiving. These postings are free of charge, but should you be able to make a contribution, a donation would be greatly appreciated.
Website placement fee for not-for-profit organizations is $100; for for-profit businesses is $200; graduate students listings are free, but must have university contact information, related department, and professor overseeing the study.
FCA's website and newsletter audience includes caregivers, service providers, policy-makers and those interested in long-term care issues. Please call us at (800) 445-8106 for instructions on submitting your posting.
US National Institute of Health
Learn About Clinical Studies
Women in Clinical Trials campaign
The FDA Office of Women’s Health and the National Institutes of Health Office of Research on Women’s Health (NIH ORWH) have joined forces and are working to promote greater diversity in clinical trial participation by reaching out to women who represent different ethnicities and ages, as well as those with various health conditions and disabilities. Please visit the website for more information: www.fda.gov/womeninclinicaltrials.