The Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Award: 2011 Award Recipients
Four exceptional programs from Minnesota, Illinois, California and Ohio were this year's recipients of the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards. The programs were presented with an award of $20,000 at Aging in America, the Annual Conference of the American Society on Aging in Washington, DC on March 30, 2012.
FCA's National Center on Caregiving hosted a reception to honor the four recipients of the 2011 Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards at Marriott Wardman Park Hotel (Maryland Room) on Friday, March 30th at 6:30 pm - 8:00 pm.
The awards program, organized by NCC and sponsored by The Rosalinde and Arthur Gilbert Foundation, marks the fourth year of the Awards that recognize excellence in Alzheimer's care and caregiver support in three categories: Creative Expression; Diverse & Multicultural Communities; and Policy & Advocacy. The awards program was originally announced in the Spring of 2008 and has attracted organizations and programs from all across the U.S.
Organization: Kairos Dance Theatre (Minneapolis, MN)
Program/Project: The Dancing Heart: Vital Caregivers Moving in Community
Kairos Dance Theatre is a community-based arts organization including an intergenerational dance company in Minnesota. Most of the organization's energy is focused on 7 to 8 weekly The Dancing Heart program sites. Kairos' work is based on a collaborative artistic engagement model within healthcare systems; and a fundamental shift from the traditional medical model, where caregivers see and respond to the recipients' deficits, to an assets building model. The organization's goal is to create an environment where participants, caregivers, and volunteers are valued and their gifts are woven into our creative work together. Kairos brings dance, storytelling, and community building expertise into collaboration with caregivers in healthcare settings. Website: www.kairosdance.org
The Vital Caregivers Program of the Kairos Dance Theatre improves the well-being of caregivers who work in or have a loved one with Alzheimer's disease in a memory care adult day program or assisted living facility. It is based on The Dancing Heart: Vital Elders Moving in Community, Kairos' pioneering, national program that has improved caregiver satisfaction and institutional cultures while providing measurable health benefits to participants, and cost-of-care savings to institutions. Using participatory community-based performing arts creation strategies, it provides in-depth opportunities for artistic development, higher-level physical activity, and community connection. The program has been shown to measurably slow the process of dementia, and sustain or improve physical, emotional, and cognitive health in participants, and to vivify caregivers.
Policy and Advocacy
Organization: Rush Alzheimer's Disease Center (Chicago, IL)
Program/Project: Without Warning Program
Rush Alzheimer's Disease Center (RADC), one of 29 Alzheimer's disease research centers across the country designated and funded by the National Institute on Aging, supports the Without Warning Program. RADC provides a full spectrum of services in the diagnosis and care of people with Alzheimer's disease and other dementias. The organization has a special emphasis in supporting both the patient and the caregivers through the following areas: research; clinical care services; educational outreach to patients, family members and professionals; and the Without Warning (WW) Program. WW is a free, ongoing, multifaceted advocacy program tailored for both the person with younger-onset Alzheimer's disease (YOAD) and his or her entire family. For over 7 years, through advocacy and support efforts, WW has helped hundreds of families living with YOAD who live in the Chicago area and beyond. Advocacy efforts include group meetings, presentations, interviews, and public hearings. Website: http://www.rush.edu
Without Warning (WW) is an advocacy, education, and support program. The overarching goal of WW is to provide a voice to all family members living with younger-onset Alzheimer's disease (YOAD). Frequently overlooked by national advocacy campaigns that focus on older adults with AD, people with YOAD and their families often describe themselves as "voiceless". Using the resources and support of WW, members seek to raise awareness, develop relationships, and instigate change. WW advocacy efforts occur on a personal level, through support group meetings; within the larger community, through presentations and interviews; and nationally, through policy hearings. WW members state that engaging in advocacy efforts increases their sense of purpose and connectedness while decreasing stress and depression. In the greater community, advocacy efforts by WW members have effected change among the Social Security Administration, state and federal representatives, healthcare professionals, clergy, youth, and the general public.
Organization: Southern Caregiver Resource Center (San Diego, CA)
Program/Project: CALMA and CUIDAR - CALMA (Cuidadores Acompañándose y Luchando para Mejorar y Seguir Adelante) and CUIDAR (Cuidadores Unidos Inspirados en Dar Amor)
The mission of Southern Caregiver Resource Center (SCRC) is to assist families and communities master the challenges of caring for adults with chronic and disabling conditions. Established in 1987 as a private nonprofit 501c3, SCRC is the leading provider of support services to family caregivers in San Diego and Imperial Counties. Over the years, the organization has helped thousands of families caring for their loved ones through information and referral, comprehensive caregiver assessments, short and long-term care planning and consultation, individualized short-term caregiver counseling, caregiver training, community education and outreach, professionally facilitated support groups and respite services through contract vendors. These are the services proven to help families remain healthy, employed and keep their loved ones safe. Services are provided by highly trained professional staff at no cost to clients, and are available in Spanish. SCRC and collaborating partners serve approximately 32,000 people annually. Website: www.caregivercenter.org
The program is designed to help reduce caregiver depression and burden, and improve caregiver coping skills and health of Spanish speaking Latino family caregivers of persons with Alzheimer's and associated dementias (ADAD). The program's overall goal is to provide a culturally and linguistically appropriate mental health intervention for Latino family caregivers. Latinos are the fastest growing population at greatest risk for developing ADAD, and Latino caregivers experience greater levels of distress when compared to other populations. Activities include translating the evidence-based REACH (Resources for Enhancing Alzheimer's Caregivers Health) intervention into a structure feasible to deliver in a social service setting; providing outreach through Promotoras; and providing psycho-educational interventions. The program reduces caregiver burden and depression, and increases ability to cope with care receiver memory and behavior problems.
Organization: Allegheny West Conference/African American Alzheimer's and Wellness Association (Columbus, OH)
Program/Project: African Descent/Somali Family Caregivers Bridge Program
The African American Alzheimer's and Wellness Association was established in 2005, and the Allegheny West Conference of SDA, as the fiscal agent, was established in 1950. Both are non-profit organizations. The AAAWA has a board comprised of 11 individuals, representing healthcare professionals and community organizations. As a result of the growing numbers of individuals of African descent suffering from Alzheimer's disease, this organization was established. The organization provides support, education and linkages to families that are suffering from this debilitating disease. The Bridge Program was instituted to fill the gap that exists in these communities due to culture differences. The AAAWA has been recognized by the Ohio Senator's Office as a much needed program in the local communities. The AAAWA conducts annual fundraisers, from awareness walks to formal banquets, to raise the necessary capital to make these services available to vulnerable communities of African descent. Website: www.africanamericanalz.org
The primary goal of the Bridge Program is to provide families of African descent with Alzheimer's disease caregiver resources.. Many of the caregivers suffer from Post Traumatic Syndrome (PTS) from experiencing wars and violence in their home countries which include Somalia, Ethiopia and Ghana. By providing respite, translation, support groups, memory screenings, linkage to legal resources, family consultations and other services, the Bridge Program has assisted many families care for their family members who have Alzheimer's Disease. The Bridge Program provides a doorway for caregivers to find culturally appropriate relief and support throughout the long journey of providing care for their loved ones with Alzheimer's disease.