The Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Award: 2009 Award Recipients
Three exceptional programs from California, New York and Arizona are became 2009's recipients of the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards. The programs were presented with the amount of $20,000 each and honored at the 2009 Gilbert reception held at the Aging in America national conference in Chicago, March 2010. The 2009 recipients are:
Organization: Museum of Modern Art - MoMA (New York, NY)
Program/Project: Meet Me at MoMA
Founded in 1929, MoMA is dedicated to being the foremost museum of modern art. MoMA manifests this commitment by establishing, preserving, and documenting a permanent collection of the highest order; presenting exhibitions and educational programs of unparalleled significance; sustaining a library, archives, and conservation laboratory; and supporting scholarship and publications of preeminent intellectual merit. MoMA welcomes 2.8 million visitors annually.
"Meet Me at MoMA" is MoMA's free program for people with early to mid-stage Alzheimer's and related dementias and their caregivers. Through the program, MoMA offers interactive gallery tours, led by trained educators, to individuals once each month from September through June, and to groups from day care centers and assisted living facilities upon request year-round. MoMA also offers a multi-week series of art making classes. The goal is to provide people with Alzheimer's and their caregivers with mutually beneficial opportunities for self expression, connection, and learning that enrich their lives. Looking at, discussing, and making art require no access to short-term memory, yet provide emotional and intellectual stimulation.
Organization: Banner Alzheimer's Institute, Phoenix, AZ
Program/Project: Banner Alzheimer's Institute Native American Outreach Program
Banner Alzheimer's Institute (BAI), a division of Banner Health, was established in 2006 with a threefold mission: To end Alzheimer's disease without losing a generation; to set a new standard of care for patients and families; and to forge a model of (biomedical) collaboration. The Memory Disorders Center (MDC) provides diagnosis, treatment and on-going care to over 200 patients per month. The Clinical Trials program offers over 20 therapeutic, imaging and quality of life studies involving over 300 patients. The Family and Community Services department provides education, support and practical assistance to every patient and family seen in the MDC or Clinical Trials. BAI collaborates extensively with the Arizona Alzheimer's Consortium and numerous community health organizations.
The BAI Native American Outreach Program was established to increase awareness of Alzheimer's disease and related dementias among the 22 Arizona Native American (NA) tribal members and health care providers. The program's goals are to improve diagnosis and treatment and to assist caregivers with the daily challenges in caregiving. Scheduled outreach activities to tribes and an annual conference now in its 6th year have resulted in reaching over 1,500 family and professional caregivers. An 8-DVD featuring three NA families sharing their unique caregiving story has been widely used and distributed along with a 55-page culturally appropriate book Navigating through Memory Loss.
The program first began in 2004 with outreach efforts to the tribes located around the greater Phoenix area. Since 2008, the program has expanded throughout the state of Arizona and been reaching out to three distinct audiences: family caregivers, professional caregivers, and medical providers.
Family caregivers have been significantly impacted by the program's outreach efforts and the annual conference. The evaluations and follow up with caregivers demonstrate that caregivers learn how to understand and manage challenging behaviors, how to utilize activities to enhance quality of life, and how to identify helpful resources (even on the reservation).
A Native American Outreach Coordinator and Administrative Assistant (both Natives) provide the bulk of staffing for the program. Twelve NA volunteers serve in advisory capacity providing direction to the program while another core group of 15 volunteers design and execute the annual conference. Outreach and education are provided by physicians, nurses and social workers from BAI. The program collaborates with individual tribes to design and execute outreach and training efforts specific to their identified needs. Additional community partners include the larger Native American community in Arizona, the Alzheimer's Association, Native American Area Agency on Aging, and other medical providers.
Policy & Advocacy
Organization: San Francisco Department of Aging and Adult Services, San Francisco, CA
Program/Project: 2020 Foresight: San Francisco's Strategy for Excellence in Dementia Care and Alzheimer's/Dementia Summit
The San Francisco Department of Aging and Adult Services (DAAS) funds and coordinatesservices to older adults, adults with disabilities and their families to maximize self-sufficiency,safety, health, and independence so persons can remain living in the community as long as possible and maintain the highest Quality of Life. DAAS facilitates the 37-member Long Term Care Coordinating Council (whose policy initiative resulted in this Strategic Planning process). DAAS also provides the Community Living Fund, In-Home Supportive Services, Adult Protective Services, Veterans Services, Intake, Referrals, Advocacy and Legal Services, Services for Frail Seniors, Vulnerable Adults and Their Families, and is the central point for Collaborations in Community Care.
An innovative 11-year Strategic Plan with recommendations for dementia care excellence to policymakers, caregivers, care-receivers, service providers and the public was the accomplishment of the Alzheimer's/Dementia Expert Panel. Formed in November 2008, the panel was appointed by the Mayor of the City of San Francisco at the urging of the Long Term Care Coordinating Council. To kick-off the Strategic Plan and engage the larger community, a Day-Long Summit for family caregivers, providers, media and the public was held at the City Hall of San Francisco on July 8, 2009.
The Summit was organized collaboratively by DAAS, Mental Health Association, and FamilyCaregiver Alliance. The 300 attendees were family Caregivers, nontraditional informal Caregivers, professional researchers, clinicians, service providers, policymakers, media, other agency personnel including police, and persons with early dementia. The event was conducted in English with simultaneous translation in Spanish and Cantonese. The Mayor of San Francisco was excited to speak at the event and commented on the uniqueness and importance of the Strategic Action Plan. He was impressed to see 300 persons attending the Summit and engaged in moving the Plan forward.
In San Francisco, with 18% of persons over age 60, dramatic increases are expected in Alzheimer's/Dementia prevalence by 2020. San Francisco Strategy for Excellence in DementiaCare's goal is to avert the growing crisis in Long-Term Dementia Care and its many negative impacts.