Caregiving with Advanced Illness

AoA Announces Availability of Approximately $2.25 Million for Lifespan Respite Care Programs

AoA Announces Availability of Approximately $2.25 Million for Lifespan Respite Care Programs

The deadline to apply is June 7, 2010

 

Here But Not Here—Finding Hope When a Loved One Has Memory Loss

(Aired on: November 14, 2007)

Practical Skills Training for Family Caregivers

An overview of the day-to-day, hands-on strategies and skills caregivers need to maintain a frail older or chronically ill individual at home.

Download this publication (201k)

 

(This publication is available as a downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.)

 

Grandma doesn't remember me

How does having a family member with dementia affect children? The answer: It depends on the age of the child, the severity of the memory loss and the child’s relationship to the person with dementia. The better you understand how the disease affects your loved one, and how you handle your own process of loss and adapting to change, the better you can help your child.

Grief and Loss Along the Way

Someone once said that aging is a narcissistic wound, meaning that the changes and losses that come with aging—our own or someone’s we love—affect us deeply in ways that are sometimes hard to deal with. This doesn’t mean that there are not positive parts to aging, but when we experience these losses, we sometimes need to stop and reflect on them. Many losses are subtle or ambiguous.

Dementia and Pain Management: A Personal Story

My father was screaming in the nursing home. The staff had tried changing any number of his medications, but nothing stopped his agitation until the physician ordered Vicodin, a strong painkiller. I called the physician and asked him to assess what might be causing my father’s pain. The physician suggested it might be arthritis. In a calm voice, I suggested that perhaps the pain was from something more serious—would he please do an evaluation? He told me that this would be hard to do since my father has dementia and can’t tell him what hurts.

Caregivers' Guide to Medications and Aging

Medications: A Double-Edged Sword

“Any symptom in an elderly patient should be considered a drug side effect until proved otherwise.”
Brown University Long-term Care Quality Letter, 1995.

Taking Care of YOU: Self-Care for Family Caregivers

First, Care for Yourself

On an airplane, an oxygen mask descends in front of you. What do you do? As we all know, the first rule is to put on your own oxygen mask before you assist anyone else. Only when we first help ourselves can we effectively help others. Caring for yourself is one of the most important—and one of the most often forgotten—things you can do as a caregiver. When your needs are taken care of, the person you care for will benefit, too.

 

生命尽头的决策:心肺复苏和放弃复苏 (End-of-Life Choices: CPR and DNR)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.

生命尽头的决策:心肺复苏和放弃复苏 Download here (260k) Simplified

生命尽头的决策:喂食管与呼吸机 (End-of-Life Choices: Feeding Tubes and Ventilators)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.

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