Caregiving with Advanced Illness

Grief and Loss Along the Way

Someone once said that aging is a narcissistic wound, meaning that the changes and losses that come with aging—our own or someone’s we love—affect us deeply in ways that are sometimes hard to deal with. This doesn’t mean that there are not positive parts to aging, but when we experience these losses, we sometimes need to stop and reflect on them. Many losses are subtle or ambiguous.

Caregiverʼs Guide to Medications and Aging

Medications: A Double-Edged Sword

“Any symptom in an elderly patient should be considered a drug side effect until proved otherwise.”
Brown University Long-term Care Quality Letter, 1995

Dementia and Pain Management: A Personal Story

My father was screaming in the nursing home. The staff had tried changing any number of his medications, but nothing stopped his agitation until the physician ordered Vicodin, a strong painkiller. I called the physician and asked him to assess what might be causing my father’s pain. The physician suggested it might be arthritis. In a calm voice, I suggested that perhaps the pain was from something more serious—would he please do an evaluation? He told me that this would be hard to do since my father has dementia and can’t tell him what hurts.

Taking Care of YOU: Self-Care for Family Caregivers

First, Care for Yourself

On an airplane, an oxygen mask descends in front of you. What do you do? As we all know, the first rule is to put on your own oxygen mask before you assist anyone else. Only when we first help ourselves can we effectively help others. Caring for yourself is one of the most important—and one of the most often forgotten—things you can do as a caregiver. When your needs are taken care of, the person you care for will benefit, too.

 

生命尽头的决策:心肺复苏和放弃复苏 (End-of-Life Choices: CPR and DNR)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.

生命尽头的决策:心肺复苏和放弃复苏 Download here (260k) Simplified

生命尽头的决策:喂食管与呼吸机 (End-of-Life Choices: Feeding Tubes and Ventilators)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.

永久授权书和可废止的生存信托 (Durable Powers of Attorney and Revocable Living Trusts)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here.

事实表 照护和抑郁症 (Caregiving and Depression)

The following Fact Sheet is available as downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a free download by clicking here

 

Alzheimer’s Disease and Caregiving

Overview

Contratacion de empleados para el hogar (Hiring In-Home Help)

La mayoría de los cuidadores familiares llegan a un punto en que comprenden que necesitan ayuda en el hogar. Entre otras señales de que se ha llegado a ese punto está el comprender que su ser querido exige supervisión o ayuda permanente en las actividades de la vida cotidiana, como bañarse y vestirse. También, los cuidadores pueden darse cuenta de que ciertas labores o tareas habituales del hogar sólo se logran con gran dificultad o se quedan sin hacer. Puede hacerse evidente que hace falta más de un cuidador para poder mantener cualquier responsabilidad fuera del hogar.

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