Caregiving with Advanced Illness

Safe At Home: 4. Bathroom Safety

Consider these daily bathroom situations and learn how to make the bathroom a safer space for someone with dementia.

CJ Video - Self-Care (Caregiver College Video Series)

Self-Care (Caregiver College Video Series)

5. Toileting and Incontinence (Caregiver College Video Series)

This video covers how dealing with a loved one's incontinence is more manageable than you may think. You'll learn how to help a care recipient with their waning toileting skills and problems with incontinence.

3. Dental Care (Caregiver College Video Series)

Dental and oral care are important at any age to prevent against a variety of health problems. Learn how to assist as a caregiver in daily cleaning and routine check-ups. 

Note: This information is not meant to replace the advice from a medical professional. You should consult your health care provider regarding specific medical concerns or treatment.

Understanding Palliative/Supportive Care: What Every Caregiver Should Know

Palliative care, also increasingly known as Supportive Care, may be one of the most misunder­stood terms in healthcare. Many people believe it’s the same as hospice care and it means the end of life. But palliative care is different from hospice, and when put in place, palliative care can bring hope, control, and a chance at a better quality of life for seriously ill patients and their caregivers.

Medios para una comunicación eficaz para proveedores de atención médica y cuidadores (Spanish)

Cuando un ser querido necesita atención médica, tradicionalmente recurrimos a profesionales para despejar dudas, obtener un diagnóstico certero y opciones de tratamiento. En el pasado, los médicos eran la autoridad indiscutible que llevaba la voz cantante en las discusiones con sus pacientes sobre atención médica. Pero las cosas han cambiado, y la relación con el médico también.

Pathways to Effective Communication for Healthcare Providers and Caregivers

Any time our loved ones need medical care, we traditionally rely on professionals to answer our questions, diagnose properly, and recommend treatments. In the past, doctors were unquestioned authorities who took the lead in discussions with their patients on medical care. But things have changed; the relationship has shifted.

Trastorno neurocognitivo asociado con el VIH (HIV-associated Neurocognitive Disorder — HAND)

Desde el comienzo de la epidemia del SIDA, más de tres décadas atrás, doctores, cuidadores familiares y amigos, y los propios pacientes han observado que algunas personas afectadas por la enfermedad experimentaban un deterioro de la función cerebral y de la capacidad de movimiento así como también cambios en el comportamiento y el estado de ánimo. Este trastorno recibió el nombre de trastorno neurocognitivo asociado al VIH (HIV‑associated Neurocognitive Disorder - HAND, por sus siglas en inglés).

Now it is My Turn to Be There for Him

My name is Julie Pacheco, I'm 47 years old and I take care of my step father Jack who is 90 years old. He suffers from dementia.

When I was 26 my mother married this man and he became a part of our crazy, dysfunctional family. By dysfunctional  I mean mainly myself, who at that time, was a single mother sufferring from the disease of addiction.

We Had Promised Each Other We Would Never Leave One Another

For 3 years, it was forgetting just little things. He never thought anything about it as his job was very stressful. He had a mandatory work meeting down state which he went to. But he called me on the phone saying that he was lost, and that’s when I knew there was something wrong.

I found him on the side of the road; I had told him to park and stay in his car. We went home and he seemed fine for a while.

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