In Hindsight, We Were All Slow to the Dance . . .

Gerry Sandusky, left, his wife Lee Ann and their two children Katy and Zack, with Gerry's dad, John Sandusky shortly before his passing.

Caregiving Near Life's End: The National Train-the-Trainer Program

The intervention assists caregivers in finding meaning, purpose and value during the end-of-life caregiving experience.


Suncoast Hospice

Suncoast Hospice is the nation's largest not-for-profit, community-based provider of hospice and palliative care. The Hospice provides care for tens of thousands of people annually, and leads innovative service delivery, social change advocacy, technology development and other end-of-life initiatives.


Largo, FL

How does it work?

Long-Term Effects of Bereavement and Caregiver Intervention...

Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms

Citation Haley, W., Bergman, E.J., Roth, D.L., McVie, T., Gaugler, J.E., & Mittelman, M, S. (2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. The Gerontologist, 48(6), 732-740

Design Quasi-experiment

Purpose The purpose of this study was to examine the joint effects of bereavement and caregiver intervention on caregiver depressive symptoms.

Caregiving and Ambiguous Loss


Caregiving for a loved one can cause stress in many ways. To manage the stress—which we know can be dangerous to a caregiver’s health—we must first know what the problem is. Surprisingly, many caregivers of individuals with memory disorders or dementia report that the main problem is not the illness itself, but the ambiguity and uncertainty it causes.

The Importance of Self-Care

“I have uterine cancer”. These were the words my mother spoke to me as I stood in the doorway of her bedroom in disbelief and shock. At first I thought she wasn’t serious. Maybe the tests had revealed a mistake. Maybe the lab results got switched with someone else. That day in 2010 shook my world and during the next two years I would understand what it would be like to take on the role of a caregiver. I would be tested physically, mentally, emotionally, and spiritually.

Guarding My Own Health . . .

Crafted from fine cotton yarn, the black cardigan sweater became a staple in my spring wardrobe after my mother bought it for me 10 years ago. Rediscovering it in the back of my closet last week, I suddenly recalled a happier memory of Mom—a time when I wasn’t overwhelmed by what social workers describe as “caregiver burnout.” And then came an unexpected flood of tears.

Grief and Loss Along the Way

Someone once said that aging is a narcissistic wound, meaning that the changes and losses that come with aging—our own or someone’s we love—affect us deeply in ways that are sometimes hard to deal with. This doesn’t mean that there are not positive parts to aging, but when we experience these losses, we sometimes need to stop and reflect on them. Many losses are subtle or ambiguous.

Depression and Caregiving


Could the sadness, loneliness or anger you feel today be a warning sign of depression? It’s possible. It is not unusual for caregivers to develop mild or more serious depression as a result of the constant demands they face in providing care.


FCA currently publishes two online newsletters covering all aspects of long-term family caregiving.



Grief and Loss



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