Equality in Caregiving: Facilitating Caregiver Mastery Among LGBT Caregivers

This is a clinical study to develop a caregiver training program to address the unique challenges faced by lesbian, gay, bisexual, and transgender informal caregivers of people living with dementia. Our goal is to improve caregiver mastery and mood and reduce stress in LGBT caregivers of loved ones and friends with dementia.

During this research, you will be asked to fill out surveys about your experiences as a caregiver. You will be asked to watch four pre-recorded videos teaching a caregiver mastery program that focuses on caregiving strategies, basics about the effects of progressive dementia on cognition, and how to focus on self-care.

After each video, you will be asked to complete 15-minute discussion questionnaires. After you have finished all the videos and discussion questions, you will participate in a two-hour virtual focus group about the program to let us know what can be improved in the course materials – especially with respects to the unique obstacles faced by the LGBT community.

This study includes:

  • Medical & Health Related Questionnaires
  • Caregiving & Health Questionnaires (for all LGBT caregivers)
  • Four online instructional videos for caregiver mastery (for dementia caregivers only)
  • Fifteen-minute discussion questionnaires after each instructional video (dementia caregivers only)
  • Two-hour focus group (via Zoom, for dementia caregivers)

To participate, please complete the surveys here: https://is.gd/equalityincaregiving

For questions or for more information, please contact us at whartonlab@emory.edu or klikos@emory.edu.

Through participation in this study, you will have the chance to earn up to $100 after completion of the focus group session.