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Nationwide Study for Understanding and Improving Surgical Decision-Making for Persons Living with Dementia, their Family Caregivers, and their Providers – Patients and Caregivers Needed

We are conducting a research study to better understand the experiences of persons living with dementia or memory problems and their care companions when making decisions about surgery. We seek patients with dementia or memory problems and/or care companions of persons with dementia who have either: 1) made a decision about surgery in the past 12 months, or 2) may consider surgery in the next 6 months. This study is funded by the National Institutes of Health/National Institute on Aging and led by researchers at Mass General Brigham in Boston, MA.

Participation includes:

  1. A brief online survey (5-10 minutes)
  2. One interview via telephone or video conference (45-50 minutes)

Both persons living with dementia and their care companions are eligible to participate in an interview and each will be compensated with a $25 gift card for their time. Care companions may also participate in an interview alone. For more information, visit: https://csph.brighamandwomens.org/research/decades/ or contact Rachel Adler, ScD, RD, radler1@bwh.harvard.edu or Christina Sheu, csheu@bwh.harvard.edu