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Survey of Black New Yorkers’ Caregiving & End of Life Experiences

This research study is being conducted by End of Life Choices New York and the City University of New York (CUNY) Graduate School of Public Health and Health Policy. The purpose of this study is to explore the experience of caregiving and navigating the medical system. We are interested in hearing from Black New Yorkers in particular, because we are New York-based and we recognize there is a need for more/better programs and resources.

Participation involves completing an anonymous online survey. The survey takes approximately 15-20 minutes to complete, and participants are asked about their experience being a caregiver, their loved one’s medical care at the end of life, and their thoughts on end-of-life topics. There is no cost or compensation to participate. The goal of the study is to develop programs and resources to support caregivers and improve end of life care.

You may be eligible if you are Black, live in New York, are between the ages of 25-65, and were a caregiver to a loved one that passed/transitioned within the last 15 years. To participate, please visit endoflifechoicesny.org/survey.