Professional Research Registry

Family Quality of Life among LGBTQ+ Caregivers of People with Dementia

The University of Tennessee College of Nursing is seeking LGBTQ+ adults who are currently providing care (at least 8 hours a week) to a family member or friend, in the community (not in a long-term care facility or Assisted Living Facility), with memory loss for a research study funded by the National Institute on Aging.

The DIAGNOSE CTE Research Project

The DIAGNOSE CTE Research Project is an NIH (National Institutes of Health) funded study focused on developing methods of diagnosing Chronic Traumatic Encephalopathy (CTE) during life and examining potential risk factors for the disease. CTE is a degenerative brain disease, thought to be caused, in part, by repetitive head impacts, such as those sustained by playing football. At this time, CTE can only be diagnosed after death through an autopsy.
            
This study is enrolling African American men, ages 45-74 who:

Inviting Participants for a Research Study at Stanford University about the Unmet Needs of Seniors and Their Family Caregivers

Family caregivers spend a lot of time and energy caring for the elderly. While being a caregiver for a loved-one is rewarding, most caregivers report physical and emotional stress, ranging from high blood pressure to depression and mental exhaustion. If you are a family caregiver, we invite you to participate in a study that involves a one hour interview with you and your loved-one.

Eligibility:

Former Dementia Caregivers Are Needed to Complete an Online Survey

Former caregivers of people with dementia are needed to participate in a research study that will explore the emotional health of caregivers after caregiving ends. Participants will complete one online survey that will take approximately 20-30 minutes.

Participants must:

a) be 18 years or older

b) be a former caregiver of a person with Alzheimer’s disease or a related dementia

c) have provided informal, unpaid care (such as assistance with personal care, managing of finances or medical care, housekeeping, or meal preparation) for at least 6 consecutive months

A Study of In-Home Technology for Dementia Caregivers

UC Berkeley researchers are evaluating an in-home technology system designed to reduce worry and loneliness of dementia caregivers. Eligible caregivers must enroll by October 2019, live in the Las Vegas, Los Angeles, Orange County or the Bay Area, live with a person diagnosed with dementia, be fluent/literate in English, own an iPhone, and have in-home wireless internet.

Family Caregivers’ Journeys, Social and Community Support

Massachusetts Institute of Technology’s Ideation Lab is currently conducting research to understand the journey of family caregivers and investigate the social and community support practices of carers. This research may help technologists and policy makers become aware of the unique socializing practices of family caregivers and how this understanding resents new opportunities for new designs and policy changes.