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Talking with Your Parents About Disability

A caregiver called our office recently to say his mother was being discharged from the hospital, was no longer able to live alone, and that he needed to hire an attendant. Stressed out and confused, he didn’t know what to do. We asked him what his finances were, so we could give him an appropriate referral. He said he didn’t know—he had never talked with his mother about money.

Diagnosing Dementia

What does it mean when someone is said to have dementia? For some people, the word conjures up scary images of “crazy” behavior and loss of control. In fact, the word dementia describes a group of symptoms that includes short-term memory loss, confusion, the inability to problem-solve, the inability to complete multi-step activities such as preparing a meal or balancing a checkbook, and, sometimes, personality changes or unusual behavior.

Adult Day Care for Alzheimer's: The First Day

The quiet stillness of morning had always been a soothing part of the routine Pat shared with her husband Tom. It was a private time for her to have her coffee, read the newspaper, and check emails. Tom rose a little later, made his own breakfast, and began to work at his desk. But now, with the progression of Tom’s Alzheimer’s disease, Pat counts her personal time among the many things which have slipped away. 

Resources for Assistive Technology

For assistance finding and purchasing AT:

ABLEDATA
(800) 227-0216
www.abledata.com

Alliance for Technology Access
(415) 455-4575
www.ataccess.org

Center for Assistive Technology &
Environmental Access
(800) 726-9119
www.assistivetech.net

Online Resources for More Information

Online Resources for More Information

Family Caregiver Alliance
National Center on Caregiving

Offers comprehensive caregiving information and advice, fact sheets, reports and studies, discussion groups and newsletters for caregivers, practitioners, policymakers and researchers. In addition, a state-by-state resource guide offers a searchable database of publicly-funded caregiver support programs.
Phone: 800-445-8106
Website: caregiver.org

Books to Help Children

When Children Grieve, John W. James, Russell Friedman and Dr. Leslie Landon Matthews
To watch a child grieve and not know what to do is a profoundly difficult experience for parents, teachers, and caregivers. Yet, there are guidelines for helping children develop a lifelong, healthy response to loss.

In When Children Grieve, the authors offer a cutting-edge volume to free children from the false idea of "not feeling bad" and to empower them with positive, effective methods of dealing with loss.

 

Paid Family Leave: California

Caregivers who need time off work to care for loved ones are included in this program.)(

Q & A on California’s Paid Family Leave:

Q. What is Paid Family Leave?
A. Paid Family Leave is unemployment compensation disability insurance paid to workers who suffer a wage loss when they take time off work to care for a seriously ill family member or bond with a new child.

Q. How long may a person receive Paid Family Leave insurance benefits?
A. Workers can receive up to six weeks of benefits that may be paid over a 12-month period.

Evaluating Medical Research

Hardly a day goes by without a story on television, in the newspaper, or on the Internet about new medical research findings. You might hear about a new drug to treat Alzheimer’s, a promising “cure” for cancer, or a breakthrough discovery in Parkinson’s disease. Or you might see articles about particular foods or dietary supplements that are said to promote health or prevent or slow the course of an illness. Should you try to get these drugs for a family member who is sick? Should the person change his diet? Take more vitamins?

Grandma doesn't remember me

How does having a family member with dementia affect children? The answer: It depends on the age of the child, the severity of the memory loss and the child’s relationship to the person with dementia. The better you understand how the disease affects your loved one, and how you handle your own process of loss and adapting to change, the better you can help your child.

Traumatic Brain Injury - CA Resources

The following are some of the organizations that provide services to families dealing with Traumatic Brain Injury (TBI) in California:

The Traumatic Brain Injury Services of California
www.tbisca.org

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