Fact Sheets

Opciones para el final de la vida: los tubos de alimentacio y los respiradores (Feeding Tubes and Ventilators)

Las familias que cuidan a un paciente crónico posiblemente tengan que enfrentarse a decisiones muy difíciles con respecto al tratamiento médico de su ser querido. Según avanzan ciertas enfermedades—la enfermedad de Alzheimer, la enfermedad de Parkinson y la esclerosis lateral amiotrófica (ELA) como secuela de un accidente cerebrovascular—éstas pueden conducir a dos de las más frecuentes de esas decisiones: si se debe utilizar un tubo de alimentación cuando el paciente crónico ya no puede masticar y tragar la comida, y si debe usarse un respirador cuando ya no puede respirar por sí mismo.

Opciones de la comunidad para el cuidado del paciente (Community Care Options)

Como cuidador, es posible que tenga que ayudar a su ser querido en una amplia gama de actividades, como bañarse, vestirse, cocinar y comer. Además, tal vez tenga que atender también problemas jurídicos y financieros, tales como tomar las decisiones de atención médica, pagar las facturas, administrar las inversiones y llevar el presupuesto. Afortunadamente, hay numerosos servicios de cuidado en la comunidad que podrán ayudarles a usted y a su ser querido.

Depression and Caregiving

Introduction

Helping Families Make Everyday Care Choices

Introduction

The best everyday care choices for the person diagnosed with a dementing illness, and for loved ones giving care, depend on an understanding of values and care preferences. Examples of everyday care choices include when to stop driving, how to manage money, whether to purchase or use support services, when to accept care from family members and, at a more personal level, when to bathe and what activities to do.

Work and Eldercare

Introduction

More than ever before, caregiving is recognized as a key element of everyday life for millions of families throughout the United States. As our population ages, more families are providing care for an older adult at home, and an increasing number of people will need such care in the future. Current demographic and healthcare trends make this issue even more significant:

Hiring In-Home Help

Introduction

Most family caregivers reach a point when they realize they need help at home. Tell-tale signs include recognizing that your loved one requires constant supervision and/or assistance with everyday activities, such as bathing and dressing. Caregivers also find that certain housekeeping routines and regular errands are accomplished with great difficulty or are left undone. It may become apparent that in order to take care of any business outside the home, more than one caregiver is required.

 

Legal Issues for LGBT Caregivers

Introduction

Caregiver’s Guide to Understanding Dementia Behaviors

Introduction

Advocacy Tips for Family Caregivers

A Call to Action

Families—not institutions—provide the majority of care to chronically ill and disabled persons. These families know the enormity of the burden in caring for someone with Alzheimer’s or Parkinson’s diseases, stroke, traumatic brain injury, or other long-term conditions. They also know the challenges in locating appropriate advice, services, and respite.

Making Choices About Everyday Care (for Families)

The diagnosis of a dementing illness marks a new stage in your life and your family’s life. Challenging decisions and important choices arise, along with uncertainty and often confusion, anxiety or fear. Some decisions might need to be made right away. Others lie ahead. The best future for you and your family depends on understanding what is most important to each of you. Recognizing and communicating your personal values about everyday care enables you and your family to make the right choices, one by one, as the situation changes.

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