Fact Sheets

Opciones para el final de la vida: RCP y ONR (CPR & DNR)

Introducción

Opciones para el final de la vida: los tubos de alimentacio y los respiradores (Feeding Tubes and Ventilators)

Las familias que cuidan a un paciente crónico posiblemente tengan que enfrentarse a decisiones muy difíciles con respecto al tratamiento médico de su ser querido. Según avanzan ciertas enfermedades—la enfermedad de Alzheimer, la enfermedad de Parkinson y la esclerosis lateral amiotrófica (ELA) como secuela de un accidente cerebrovascular—éstas pueden conducir a dos de las más frecuentes de esas decisiones: si se debe utilizar un tubo de alimentación cuando el paciente crónico ya no puede masticar y tragar la comida, y si debe usarse un respirador cuando ya no puede respirar por sí mismo.

Opciones de la comunidad para el cuidado del paciente (Community Care Options)

Como cuidador, es posible que tenga que ayudar a su ser querido en una amplia gama de actividades, como bañarse, vestirse, cocinar y comer. Además, tal vez tenga que atender también problemas jurídicos y financieros, tales como tomar las decisiones de atención médica, pagar las facturas, administrar las inversiones y llevar el presupuesto. Afortunadamente, hay numerosos servicios de cuidado en la comunidad que podrán ayudarles a usted y a su ser querido.

Coping with Behavior Problems after Head Injury

Identifying Behavior Problems

Caregiver’s Guide to Understanding Dementia Behaviors

Introduction

Dementia and Driving

When an individual is diagnosed with dementia, one of the first concerns that families and caregivers face is whether or not that person should drive. A diagnosis of dementia may not mean that a person can no longer drive safely. In the early stages of dementia, some—though not all—individuals may still possess skills necessary for safe driving. Most dementia, however, is progressive, meaning that symptoms such as memory loss, visual-spatial disorientation, and decreased cognitive function will worsen over time.

Dementia, Driving, and California State Law

Driving and Dementia

Caring for Adults with Cognitive and Memory Impairment

Caregiving: A Universal Occupation

How to Form a Support Group for Families of Brain-Impaired Adults

Support or "self-help" groups are formed by people who share common concerns. The groups may be participant-initiated or sponsored by a health care institution, social services agency or nonprofit organization.

A degenerative or terminal illness, or an accident involving a family member, is a traumatic experience for spouse, parents, children and other relatives. Support groups allow those facing the difficult task of daily caregiving to benefit from interaction and support from other people in similar situations.

Advanced Illness: Holding On and Letting Go

Introduction

Our culture tells us that we should fight hard against age, illness and death: "Do not go gentle into that good night," Dylan Thomas wrote. And holding on to life, to our loved ones, is indeed a basic human instinct. However, as an illness advances, "raging against the dying of the light" often begins to cause undue suffering, and "letting go" may instead feel like the next stage.

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