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Making Hard Choices: Respecting Both Voices

Findings from a groundbreaking research study exploring choice and decision-making in everyday care for persons with cognitive impairment and their family caregivers. The study makes policy and practice recommendations to advance knowledge on consumer direction and dementia care.

Publication available in hardcopy only.

Background Checking for Hired Care: Resources that Help

Stories fill the news about aides who take advantage of, rather than care for, a parent, spouse or other family member in their home. Drained savings accounts, missing jewelry, and unexplained bruises are all too common experiences. One way to avoid becoming a victim is to conduct an attendant background check. Background checks include: a review of job performance and verification that the information provided to the family caregiver is accurate, and the attendant can do the job that the caregiver needs to be done.

Guia del cuidador para entender la conducta de los pacientes con demencia (Caregiver’s Guide to Understanding Dementia Behaviors)

El cuidado de un ser querido que padezca de demencia plantea muchas dificultades a las familias y a los cuidadores. Los pacientes con demencia provocada por la enfermedad de Alzheimer u otros trastornos similares presentan un deterioro cerebral progresivo que les hace cada vez más difícil acordarse de las cosas, pensar con claridad, comunicarse con los demás o atender a su propia persona. Además, la demencia puede provocar variaciones súbitas del estado de ánimo e incluso cambiar la personalidad y la conducta del paciente.

Online Resources for More Information

Online Resources for More Information

Family Caregiver Alliance
National Center on Caregiving

Offers comprehensive caregiving information and advice, fact sheets, reports and studies, discussion groups and newsletters for caregivers, practitioners, policymakers and researchers. In addition, a state-by-state resource guide offers a searchable database of publicly-funded caregiver support programs.
Phone: 800-445-8106
Website: caregiver.org

Caregivers Count Too! Section 1: Getting Started

What Is the Caregivers Count Tool Toolkit?

This toolkit is a step-by-step resource filled with practical information and resources. It’s designed for program administrators and practitioners* to:

事实表 : 是痴呆症吗? 什么是痴呆症? (Is this Dementia and What Does It Mean?)

Books to Help Children

When Children Grieve, John W. James, Russell Friedman and Dr. Leslie Landon Matthews
To watch a child grieve and not know what to do is a profoundly difficult experience for parents, teachers, and caregivers. Yet, there are guidelines for helping children develop a lifelong, healthy response to loss.

In When Children Grieve, the authors offer a cutting-edge volume to free children from the false idea of "not feeling bad" and to empower them with positive, effective methods of dealing with loss.

 

Wernicke-Korsakoff (Spanish)

Definición

El síndrome de Wernicke-Korsakoff (SWK) es una enfermedad neurológica. La encefalopatía de Wernicke y la psicosis de Korsakoff son, respectivamente, la fase aguda y la fase crónica de esta misma enfermedad.

National Consensus Report on Caregiver Assessment: Volumes I & ll

This groundbreaking two-part report from the National Center on Caregiving at Family Caregiver Alliance calls for significant improvement in health care and long-term care that relies too much on families without recognizing and assessing family caregivers' own support and health needs. Caregiver assessment is an essential component of comprehensive care for frail elders and adults with chronic or disabling conditions, particularly dementia.

Diagnosing Dementia

What does it mean when someone is said to have dementia? For some people, the word conjures up scary images of “crazy” behavior and loss of control. In fact, the word dementia describes a group of symptoms that includes short-term memory loss, confusion, the inability to problem-solve, the inability to complete multi-step activities such as preparing a meal or balancing a checkbook, and, sometimes, personality changes or unusual behavior.

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