End of Life (Palliative, Hospice)

includes palliative and hospice care as well as CPR/DNR topics

Hiểu về Chăm Sóc Giảm Nhẹ/Chăm Sóc Toàn Diện: Điều Mọi Người Chăm Sóc Cần Biết (Understanding Palliative Care: What Every Caregiver Should Know

Chăm sóc giảm nhẹ, cũng được được biết đến nhiều hơn với tên gọi Chăm sóc Toàn diện, có lẽ là một trong những thuật ngữ bị hiểu nhầm nhiều nhất trong ngành chăm sóc sức khỏe. Nhiều người tin rằng thuật ngữ này đồng nghĩa với chăm sóc cuối đời và là sự chăm sóc ở giai đoạn cuối cùng của cuộc sống. Nhưng chăm sóc giảm nhẹ khác với chăm sóc cuối đời, và khi được sử dụng phù hợp, chăm sóc giảm nhẹ có thể đem tới hy vọng, sự kiểm soát, và cơ hội có chất lượng cuộc sống tốt hơn cho các bệnh nhân ốm nặng và những người chăm sóc của họ.

Cuando el Cuidado Termina (When Caregiving Ends)

Cuidar de una persona puede durar muchos años. Los cuidadores dejan de lado su propia vida para cuidar de otra persona. Cuando esta persona muere, los cuidadores deben comenzar a pensar qué hacer con sus vidas. No hay preparación alguna para esta transición. Por lo general, están tan ocupados ofreciendo cuidado y su vida a cambiado tanto que no han tenido el tiempo ni la energía, ni incluso la voluntad psicológica, de pensar en lo que viene cuando esto sucede. Aquí le ofrecemos algunos consejos que pueden ayudarle:

 

Perdida

瞭解緩和/支持照護:看護者須知 ( Understanding Palliative/Supportive Care: What Every Caregiver Should Know)

越來越多人將緩和照護稱為支持照護,這是經常令人誤解的醫療保健術語。許多人認為這種照護方式和臨終安養照護一樣,表示生命即將結束。不過,緩和照護不同於臨終安養,緩和照護能夠帶來希望、控制病情,而且有機會改善重病患者及其看護者的生活品質。

此資料書摘列緩和照護的幾項重要特色,內容說明緩和照護與臨終安養照護的不同之處,同時也釐清幾項令人們不考慮自己或照顧對象接受緩和照護的迷思。

 

何謂緩和照護,這種方式對我的家庭成員有什麼幫助?

對重病患者及負責照顧患者的家人和朋友而言,緩和照護能夠以活下去為目標,盡可能提供完整的醫療及相關處理。斟酌疾病控制方式,以及舒緩疼痛、焦慮、恐懼所造成的負擔,還有其他症狀時,醫療保健專業人員尊重患者的價值、目標和意願。患者與負責照顧的家人朋友有著一致的計劃和意願,也能得到有助於減輕負擔的支持。

Conceptos Básicos Sobre Cuidados Paliativos o de Apoyo: Todo lo que un Cuidador Debe Saber (Understanding Palliative/Supportive Care: What Every Caregiver Should Know)

Cuidado paliativo, más conocido como Cuidado de apoyo, puede ser unos de  los terminos y conceptos menos comprendidos en cuidado de la salud. Muchos creen que equivale a cuidado para pacientes con enfermedades terminales y, que como su nombre lo indica, es para personas cuya vida se aproxima al fin.

My Mom, My Hero

The following year Mom became ill — she was admitted to one of Boston’s best hospitals. Mom had a rare fungus infection. She had an aortic heart valve replacement and bypass surgery a year before — somehow, a fungus had gotten into her bloodstream and traveled and settled on her heart valve. The first solution was replace the aortic valve again. But her age and weakened condition were against her.

Understanding Palliative/Supportive Care: What Every Caregiver Should Know

Palliative care, also increasingly known as Supportive Care, may be one of the most misunder­stood terms in healthcare. Many people believe it’s the same as hospice care and it means the end of life. But palliative care is different from hospice, and when put in place, palliative care can bring hope, control, and a chance at a better quality of life for seriously ill patients and their caregivers.

When Caregiving Ends

Caregiving can last for many years. Caregivers set their own lives aside to care for someone else. When that person dies, caregivers have to figure out what to do with their lives now. There is no preparation for this transition. Generally you are so busy caregiving, and life changed so long ago, that there has not been time nor energy or even the psychological will to think about what comes next. Here are some tips that might help you during this time:

Finding an Attorney to Help with Estate Planning

Before you or a loved one is faced with a life-limiting illness or cognitive impairment, it is important to have completed the legal paperwork necessary for estate planning.

Conservatorship and Guardianship

When someone is no longer able to handle his or her own financial or personal affairs, the court can appoint an individual or professional to act on behalf of the incapacitated person. When a minor child is involved, it is generally called a guardianship. When an adult needs someone, it is called a conservatorship. However, states define these terms differently, and you need to consult an attorney in your state to determine what the law are and how they impact your situation.

Advance Health Care Directives and POLST

The Advance Health Care Directive (ADHC) allows you to appoint someone (health care agent, attorney-in-fact, proxy, or surrogate) to make a decision for you if you cannot speak for yourself. It is also called the Durable Power of Attorney for Health Care, Natural Death Act, Directive to Physicians, or a Living Will. (The living will is slightly different; check on what is recognized in your state.) Every state recognizes the ADHC, but states have their own forms, as laws vary from state to state.

 

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