End of Life (Palliative, Hospice)

includes palliative and hospice care as well as CPR/DNR topics

When Caregiving Ends

Caregiving can last for many years. Caregivers set their own lives aside to care for someone else. When that person dies, caregivers have to figure out what to do with their lives now. There is no preparation for this transition. Generally you are so busy caregiving, and life changed so long ago, that there has not been time nor energy or even the psychological will to think about what comes next. Here are some tips that might help you during this time:

Finding an Attorney to Help with Estate Planning

Before you or a loved one is faced with a life limiting illness or cognitive impairment, it is important to have completed the legal paperwork necessary for estate planning. Unfortunately, this often not the case, and family is trying to get the necessary legal documents completed under difficult circumstances, such as cognitive impairment, where someone is no longer able to manage his/her affairs or a medical crisis. (see Tip Sheet: Making Decisions: What Are Your Important Papers)

Conservatorship and Guardianship

When someone is no longer able to handle his or her own financial or personal affairs, the court can appoint an individual or professional to act on behalf of the incapacitated person. When a minor child is involved, it is generally called a guardianship. When an adult needs someone, it is called a conservatorship. However, states define these terms differently and you need to consult an attorney in your state to determine what the law is.

Advance Health Care Directives and POLST

The Advance Health Care Directive (ADHC) allows you to appoint someone (health care agent, attorney-in-fact, proxy or surrogate) to make a decision for you if you can not speak for yourself. It is also called the Durable Power of Attorney for Health Care, Natural Death Act, Directive to Physicians or a Living Will. (The living will is slightly different; check on what is recognized in your state.) Every state recognizes the ADHC, but states have their own forms, as laws vary from state to state.

 

Making End-of-Life Decisions: What Are Your Important Papers?

 

As you face aging and the need to make plans for your future, you face having to make decisions about many aspects of your lives.  These legal and health care decisions not only protect you from others making decisions for your care that you do not want, they also protect family and loved ones by giving them guidance in the care that you would like to receive.  After completing all the legal paperwork, the next step is to sit down and talk to family about the decisions you have made and why.

 

Advanced Illness: Feeding Tubes and Ventilators

Introduction

Valley Presbyterian Hospital (VPH) Palliative Care and Bereavement Program

The VPH Palliative Care and Bereavement Program serves end-of-life patients and their families by addressing physical, emotional, intellectual and spiritual issues associated with illness and dying.

Organization:

Valley Presbyterian Hospital (VPH)

Caregiving Near Life's End: The National Train-the-Trainer Program

The intervention assists caregivers in finding meaning, purpose and value during the end-of-life caregiving experience.

Organization:

Suncoast Hospice

Suncoast Hospice is the nation's largest not-for-profit, community-based provider of hospice and palliative care. The Hospice provides care for tens of thousands of people annually, and leads innovative service delivery, social change advocacy, technology development and other end-of-life initiatives.

Location:

Largo, FL

How does it work?

Telephone Support for Caregivers of Patients with Cancer

Citation Walsh, S., M., & Schmidt, L. A. (2003). Telephone support for caregivers of patients with cancer. Cancer Nursing, 26(6), 448-453.

Design Study

Purpose The purpose of this study was to determine the feasibility of conducting a brief telephone intervention, Tele-Care II, for caregivers of hospice patients.

Participants The participants were N = 14 caregivers of hospice patients (5 were able to complete the study).

Long-Term Effects of Bereavement and Caregiver Intervention...

Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms

Citation Haley, W., Bergman, E.J., Roth, D.L., McVie, T., Gaugler, J.E., & Mittelman, M, S. (2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. The Gerontologist, 48(6), 732-740

Design Quasi-experiment

Purpose The purpose of this study was to examine the joint effects of bereavement and caregiver intervention on caregiver depressive symptoms.

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