End of Life (Palliative, Hospice)

includes palliative and hospice care as well as CPR/DNR topics

My Mom, My Hero

The following year Mom became ill — she was admitted to one of Boston’s best hospitals. Mom had a rare fungus infection. She had an aortic heart valve replacement and bypass surgery a year before — somehow, a fungus had gotten into her bloodstream and traveled and settled on her heart valve. The first solution was replace the aortic valve again. But her age and weakened condition were against her.

Understanding Palliative/Supportive Care: What Every Caregiver Should Know

Palliative care, also increasingly known as Supportive Care, may be one of the most misunder­stood terms in healthcare. Many people believe it’s the same as hospice care and it means the end of life. But palliative care is different from hospice, and when put in place, palliative care can bring hope, control, and a chance at a better quality of life for seriously ill patients and their caregivers.

When Caregiving Ends

Caregiving can last for many years. Caregivers set their own lives aside to care for someone else. When that person dies, caregivers have to figure out what to do with their lives now. There is no preparation for this transition. Generally you are so busy caregiving, and life changed so long ago, that there has not been time nor energy or even the psychological will to think about what comes next. Here are some tips that might help you during this time:

Finding an Attorney to Help with Estate Planning

Before you or a loved one is faced with a life-limiting illness or cognitive impairment, it is important to have completed the legal paperwork necessary for estate planning.

Conservatorship and Guardianship

When someone is no longer able to handle his or her own financial or personal affairs, the court can appoint an individual or professional to act on behalf of the incapacitated person. When a minor child is involved, it is generally called a guardianship. When an adult needs someone, it is called a conservatorship. However, states define these terms differently, and you need to consult an attorney in your state to determine what the law are and how they impact your situation.

Advance Health Care Directives and POLST

The Advance Health Care Directive (ADHC) allows you to appoint someone (health care agent, attorney-in-fact, proxy, or surrogate) to make a decision for you if you cannot speak for yourself. It is also called the Durable Power of Attorney for Health Care, Natural Death Act, Directive to Physicians, or a Living Will. (The living will is slightly different; check on what is recognized in your state.) Every state recognizes the ADHC, but states have their own forms, as laws vary from state to state.

 

Making End-of-Life Decisions: What Are Your Important Papers?

As you face aging and the need to make plans for your future, you face having to make decisions about many aspects of your lives. These legal and health care decisions not only protect you from others making decisions for your care that you do not want, they also protect family and loved ones by giving them guidance in the care that you would like to receive. After completing all the legal paperwork, the next step is to sit down and talk to family about the decisions you have made and why.

 

Advanced Illness: Feeding Tubes and Ventilators

Introduction

Valley Presbyterian Hospital (VPH) Palliative Care and Bereavement Program

The VPH Palliative Care and Bereavement Program serves end-of-life patients and their families by addressing physical, emotional, intellectual and spiritual issues associated with illness and dying.

Organization:

Valley Presbyterian Hospital (VPH)

Caregiving Near Life's End: The National Train-the-Trainer Program

The intervention assists caregivers in finding meaning, purpose and value during the end-of-life caregiving experience.

Organization:

Suncoast Hospice

Suncoast Hospice is the nation's largest not-for-profit, community-based provider of hospice and palliative care. The Hospice provides care for tens of thousands of people annually, and leads innovative service delivery, social change advocacy, technology development and other end-of-life initiatives.

Location:

Largo, FL

How does it work?

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