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El Cuidado de Sus Padres Junto con Sus Hermanos (Caregiving with Your Siblings)

Introducción

Cuidar a sus padres puede ser complicado, y si sus hermanos y hermanas también participan, el asunto se puede volver aún más complejo. Si bien sus hermanos pueden ser una ayuda enorme y su mejor apoyo, también pueden ser una fuente de estrés.

En esta ficha descriptiva aprenderá cómo identificar la dinámica familiar que puede afectar el cuidado de sus padres, las maneras en que sus hermanos pueden ayudar, cómo aumentar las posibilidades de obtener dicha ayuda y cómo controlar las emociones que surgen.

Enfermedad de Alzheimer's (Alzheimer's Disease)

Resumen

La enfermedad de Alzheimer (EA) es un trastorno neurológico que provoca la muerte de las células nerviosas del cerebro. Por lo general, la EA comienza paulatinamente y sus primeros síntomas pueden atribuirse a la vejez o al olvido común. A medida en que avanza la enfermedad, se van deteriorando las capacidades cognitivas, entre ellas la capacidad para tomar decisiones y llevar a cabo las tareas cotidianas, y pueden surgir modificaciones de la personalidad, así como conductas problemáticas. En sus etapas avanzadas, la EA conduce a la demencia y finalmente a la muerte.

Caregivers Count Too! - Section 3: The Nuts & Bolts of Caregiver Assessment

Once you have your program purpose in clear focus and know how you hope to use the information gathered by the caregiver assessment process, you are ready to tackle the details.  It is important to keep in mind that assessment is not an end point. Rather, it should empower family caregivers to make in-formed decisions and link caregivers with community services. The “nuts & bolts” of caregiver assessment are contained in five questions. We’ll take you through them, one by one. The questions are:

Caregivers Count Too! - Section 3: Who Should Be Assessed?

Scenario: The Jones Family

Caregivers Count Too! - Section 3: Things to Keep in Mind . . .

Things to Keep in Mind . . .

Whenever possible, use established measures that are:

  • practical and applicable to family caregivers
  • previously applied, or could be applied, in service settings
  • reliable and valid
  • cited in the literature

(See Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners in Appendix II). 

Caregivers Count Too! - Section 3: Caregiver Assessment Table

 

Caregiver Assessment: Information Categories, Areas to Assess and Possible Questions

Information Category

Areas to Assess

Possible Questions

Context

Caregivers Count Too! Section 3: What Should Family Caregiver Assessments Include?

While the assessment approach needs to be tailored to your service setting and program, any caregiver assessment should:

Caregivers Count Too! Section 2: Misperceptions in the Assessment Process

Commonly held misperceptions about including family members in the assessment process stand in the way of recognizing, understanding and meeting caregivers’ needs. Some of these are:

 

MYTH

Caregivers Count Too! Section 2: Online Resources

Family Caregiver Alliance
National Center on Caregiving

Offers comprehensive caregiving information and advice, fact sheets, reports and studies, discussion groups and newsletters for caregivers, practitioners, policymakers and researchers. In addition, a state-by-state resource guide offers a searchable database of publicly-funded caregiver support programs.
Phone: 800-445-8106
Website: www.caregiver.org

 

Caregivers Count Too! Section 2: Vital & Vulnerable - Defining the Family Caregiver

Who Are Family Caregivers?

An estimated 44 million Americans age 18 and older provide unpaid assistance and support to older people and adults with disabilities who live in the community. Caregivers are varied in their characteristics, yet research on this increasingly visible group reveals some themes:

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