National

American Diabetes Association

Provides information and other services to people with diabetes, their families, health professionals and the public.

American Chronic Pain Association

Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.

American Cancer Society

Provides a national call center, publications and community programs and services for cancer patients and their caregivers.

American Brain Tumor Association

Offers programs and services to meet the needs of brain tumor patients and their families such as a monthly e-bulletin with tips on living and coping, support groups and in-person consultation services from social work professionals.

Alzheimer Research Forum

Online resource reports on the latest scientific findings, creates and maintains public databases of research data, and produces discussion forums.

Alzheimer's Disease Education and Referral (ADEAR) Center - Alzheimer's Disease Clinical Trials Database

Online resource provides current, comprehensive information on Alzheimer's disease and caring for someone with the disease. Includes a database of clinical trials.

Alzheimer's Disease Cooperative Study (ADCS)

Conducts clinical trials on promising medications designed to improve cognitive functioning, decrease behavioral disturbances, slow the rate of decline, or delay the onset of Alzheimer's disease.

Alzheimer's Association

Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
- Recognize dementia care
- Plan and pay for care
- Communicate with care providers
- Find local support and resources

ALS Association

Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.

Caregivers Count Too! Section 2: Why Are Family Caregivers Vital?

Why Family Caregivers are Vital to Health Care and Long-Term Care

Many people rely on them . . .

  • Most people (80%) who need LTC supportive services live at home or in community settings, not in institutions.
  • More than 78% of adults who receive LTC at home get all their care from unpaid family and friends.

Family caregivers fill big gaps in health and long-term care . . .

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