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A Legacy of Survival: Part 2 of 3

“For the family it becomes a matter of survival.”   — Sue Harris

 

A Legacy of Survival: Part 1 of 3

1970s: Combativeness at home and little help to be found

“Mrs. Bashkiroff, you must realize that society isn’t ready for problems such as yours.”

The psychiatrist’s words enraged Anne Bashkiroff. He was only one of the hundreds of people and agencies she had contacted during the nine years she struggled to care for her husband, Alexander, who was diagnosed with pre-senile dementia in 1969.

Statement on Defeat of the Graham-Cassidy Bill to Repeal the ACA

The latest effort to repeal the ACA was defeated just as the CBO released its analysis that millions of persons would lose coverage among other deleterious consequences of the Graham-Cassidy bill. Aside from repealing basic healthcare protections, this effort would have had an enormous impact on caregiving families as it severely limited Medicaid services through block grants, and thus would have curtailed community-based services and supports.

Statement on Senate Action on Repeal of Affordable Care Act

Last night, the current version of the Republican-led repeal and replace of the ACA—the Healthcare Freedom Act—failed by a dramatic vote cast by Senator John McCain joining with the stalwart opposition of Senators Susan Collins and Lisa Murkowski. These three Republican Senators voted with the Democrats to halt efforts to disrupt the current healthcare policies of the Affordable Care Act (ACA) that have extended healthcare and community-based long-term care to millions more Americans.

Call it TrumpCare Now: Regulatory Changes Diminish the Affordable Care Act to the Detriment of Family Caregivers

While wholesale repeal of the Affordable Care Act (ACA) failed to get the required votes for passage out of the U.S. House of Representatives, the Trump Administration has issued new regulations that will increase the cost of insurance premiums and make it harder to enroll in coverage in 2018.

11/30: Concluding Message From Executive Director Kathleen Kelly

Yesterday's blog post (November 29, 2015) was a pictorial essay "I Am a Caregiver for my __________" with families filling in the blank with their relatives - wives, brothers, mothers, fathers, and others dear to them. Entitled Let's put a face on caregiving!, it is the faces and stories of the families Family Caregiver Alliance (FCA) supports throughout the years by giving practical advice, teaching a skill, finding a resource, or just listening and acknowledging one's caregiving journey.

11/28: Taking Care of YOU: Self-Care for Family Caregivers, Caregiving With Your Siblings, and Pathways to Effective Communication for Healthcare Providers and Caregivers

Beyond the most intimate physical dimensions of providing care for a loved one, informal caregivers often struggle with the attendant issues of communication in caregiving, ranging from managing complex family relationships to establishing routines of self-care to navigating the unfamiliar dynamics of working alongside healthcare professionals.

11/21: Holiday Time, Siblings, and Parent Care

Are you looking forward to getting together with your parents and siblings for Thanksgiving? Maybe not. Sibling relationships and parent–child communication can be complicated. Should one or both of your parents also suffer from a progressive chronic illness, then the holiday chit chat with your siblings will most likely be about your parent's needs and how to navigate for their care and well-being.

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