FCA Blog

1977–2017: Caregiving Then and Now

“During the course of my husband’s illness, I found that I needed an awful lot of help. It was all so sudden, the problems so devastating, the legal affairs so overwhelming, that I needed help from every direction.”

—Suzanne Harris, FCA Co-Founder


When Sue Harris spoke those words more than four decades ago, she had been abruptly thrust into a caregiving role she never anticipated. And at that time, there was simply nowhere for her and her family to turn for help.

We Know You’re Tired, but It’s No Time to Take a Vacation

An upcoming vote in the Senate — possibly this week — on the Senate Tax Cuts and Jobs Act proposal will mean changes to the health and financial well-being of older adults and family caregivers. And not in a good way.

Some key points to consider for your own health and financial well-being as a caregiver and for those relatives or friends for whom you provide assistance:

New Caregiver Stories!

The Caregiver Stories section has been a steady feature on our website. In honor of National Family Caregivers Month and our 40th Anniversary celebration we have many new stories to share with you!

A Legacy of Survival: Part 3 of 3

Legal and funding breakthroughs

There’s an old saying that goes, “As California goes, so goes the rest of the nation.”  Known for its innovation in policy, the Golden State was a pioneer in the field of healthy aging.

A Legacy of Survival: Part 2 of 3

“For the family it becomes a matter of survival.”   — Sue Harris


A Legacy of Survival: Part 1 of 3

1970s: Combativeness at home and little help to be found

“Mrs. Bashkiroff, you must realize that society isn’t ready for problems such as yours.”

The psychiatrist’s words enraged Anne Bashkiroff. He was only one of the hundreds of people and agencies she had contacted during the nine years she struggled to care for her husband, Alexander, who was diagnosed with pre-senile dementia in 1969.

Statement on Defeat of the Graham-Cassidy Bill to Repeal the ACA

The latest effort to repeal the ACA was defeated just as the CBO released its analysis that millions of persons would lose coverage among other deleterious consequences of the Graham-Cassidy bill. Aside from repealing basic healthcare protections, this effort would have had an enormous impact on caregiving families as it severely limited Medicaid services through block grants, and thus would have curtailed community-based services and supports.

Statement on Senate Action on Repeal of Affordable Care Act

Last night, the current version of the Republican-led repeal and replace of the ACA—the Healthcare Freedom Act—failed by a dramatic vote cast by Senator John McCain joining with the stalwart opposition of Senators Susan Collins and Lisa Murkowski. These three Republican Senators voted with the Democrats to halt efforts to disrupt the current healthcare policies of the Affordable Care Act (ACA) that have extended healthcare and community-based long-term care to millions more Americans.

GOP Bills to Repeal the Affordable Care Act (Obamacare) Will Have a Critical Impact on Family Caregivers

Every day we talk with family caregivers from across the country and hear their stories of love, struggle, and heartbreak. Many families count on Medicaid for services and they know that their loved one will need home and community based services or a nursing home in the future.

The Time is Now: Let Senators Know the AHCA is Bad for Family Caregivers

The American Health Care Act (AHCA) is moving swiftly through the U.S. Senate and heading to a vote by the end of June. To date there have been no hearings on the specifics of the bill and development has been behind closed doors with just a handful of Senators taking part. The CBO score on the bill is expected within the next week that will provide an analysis of bill prior to a final vote.