It is with great sadness that we report the passing of our esteemed Co-Founder, Suzanne “Sue” Harris on February 21, 2015. Sue was a tireless advocate for family caregivers whether with policy makers, donors or researchers. She kept us honest to the mission and was a great friend. Sue will be remembered fondly and missed tremendously. Our condolences go out to her children Pete, Evan and Andy and their families.
SUZANNE H. HARRIS
Co-Founder, Family Caregiver Alliance
“Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead
For every moment of Family Caregiver Alliance’s existence, Sue Harris has been the kind of volunteer that many organizations can only dream about. In the beginning, she was a member of the committee at the San Francisco Mental Health Association that led to FCA’s founding in 1977. Then for over 20 years, Sue held every office on the Board of Directors and led the agency as its president twice, serving in that capacity for more than six years. She chaired every committee, from the nuts and bolts of the administrative committee, to raising money, to service design and policy analysis for various program committees.
Sue, who became involved with the grassroots effort to establish FCA almost four decades ago, was a volunteer with San Francisco’s Mental Health Association when she joined forces with other family members and health professionals to solve some of the problems facing caregivers of adults with dementia, stroke, head injuries and other cognitive impairments. Sue immediately recognized and identified with the challenges because she, too, was caring for her husband, Bob – then Chair of the Department of Psychology at Langley Porter Institute at UC San Francisco. He had suffered severe brain damage in 1973 from an aneurysm and subsequent surgery. Like others in her situation, Sue cared for Bob at home as long as it was possible. He was placed in a nursing home until his death in 1977, just two weeks before FCA’s founders held the first town meeting.
This experience inspired the innovative approach to services taken by FCA: a functional view of brain disorders rather than one based on medical diagnosis alone. FCA’s second hallmark, that caregivers and other family members should be helped, regardless of diagnosis, likewise arose from this early effort. “Remember that first we had to determine that such a population even existed and then prove that it was underserved,” Sue said. “Policy people just didn’t want to believe this group of unserved people existed. I remember the horrified looks on people’s faces when the truth would dawn on them, that no one knew what became of people who had dementia or strokes or head injuries. Well, I’ll tell you what happened to them: They came home and stayed with their families.”
Sue spent the last 20 years actively helping to guarantee FCA’s future through continued fund raising efforts. She had already seen to its past and wanted to leave a stronger FCA to grapple with new challenges in the future. FCA’s venerable founder leaves these words of advice: “Never lose sight of the caregiver’s perspective. And always bear in mind that our focus is on empowering family members to help themselves, rather than managing their problems for them.”
Sue leaves behind a legacy of founding Family Caregiver Alliance and the National Center Caregiving, nationally and internationally recognized for pioneering programs of information, education, research and advocacy that support and sustain the important work of families and friends caring for loved ones with chronic, disabling health conditions. Over 10 million caregivers have used FCA’s website www.caregiver.org for advice and support and over 180,000 caregivers have received one or more direct services from FCA.
FCA has many of the most widely used family caregiver information services. More than 100 consumer education materials have been translated into six languages and licensed by well-known companies including Clorox, Next Avenue, and PBS. In addition to written materials, FCA has developed digital content that teaches direct care skills to families. The FCA You Tube channel receives over 100,000 views per year worldwide and FCA content is hosted by 2400+ websites. FCA is a regular contributor to caregiving and long-term care guest columns of the PBS NewsHour.
In addition to her work for FCA, Sue was instrumental in advocacy efforts to establish the California Network of Caregiver Resource Centers (CRC). FCA sponsored state legislation so all residents of the state can receive services. Since their inception in 1984, the CRCs have provided over half a million caregiving families the support and direct services they deserve.
Continue Sue’s Legacy
Pay it forward and continue Sue’s legacy:
- Make a noise and get involved. If your cause is family caregiving, great! Get in touch with us at FCA to see how to get involved. But Sue was interested in a broad range of social issues – the point is to be at the table whatever the cause.
- Practice random acts of kindness with family caregivers. If you have a relative, friend or neighbor who is a caregiver, look around and see what tasks you could do for the caregiver. It may make you feel better to tell caregivers to take care of the themselves, but a far better option is to offer to mow a lawn, run an errand, fix a squeaky door or provide a few hours of respite for the caregiver.
- Support FCA so that we can continue our efforts to ensure family caregivers get the services and policies that best support them. Become involved with FCA directly through volunteering or becoming active on one of our committees. Of course you can always donate to underwrite FCA’s continuing work to support caregiving families!
The National Center on Caregiving at Family Caregiver Alliance announces that four exceptional programs from California, Illinois, and Minnesota are the most recent recipients of the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards. The 2014 awarded programs and their host organizations are:
- Tales & Travels Memories Project, Gail Borden Public Library District- Creative Expression Award
- Vietnamese Family Caregiver Support, Orange Caregiver Resource Center - Diverse/Multicultural Communities Award
- Success Through a Unified Vision: the Fight to Preserve Alzheimer's Care in California, California Association for Adult Day Services - Policy & Advocacy
- ACT on Alzheimer's, Metropolitan Area Agency on Aging - Policy & Advocacy
Administered by the National Center on Caregiving at Family Caregiver Alliance and sponsored by The Rosalinde and Arthur Gilbert Foundation, this year marks the seventh year of the Awards that recognize excellence in Alzheimer's disease care and caregiver support in three categories: Creative Expression, Policy & Advocacy*, and Diverse/Multicultural Communities. You can read more about the winning program details on caregiver.org.The programs are awarded $20,000 each and will be honored at Aging in America, the Annual Conference of the American Society on Aging in Chicago, IL on March 25, 2015 from 6:00 to 8:00 p.m. Please join us! For ASA Conference information, visit: https://www.asaging.org/aia
*NOTE: Two awardees were selected for the Policy & Advocacy category in 2014.
The Rosalinde and Arthur Gilbert Foundation invests in programs that promote education, tolerance, social services, healthcare and the arts. The Foundation builds on the ideals and pursuits of its founders, Rosalinde and Arthur Gilbert. In the area of Alzheimer's disease, The Rosalinde and Arthur Gilbert Foundation focuses its grantmaking on the advancement of research by junior investigators in the United States and Israel, and investments in Alzheimer's disease caregiving. Visit: http://thegilbertfoundation.com/gilbert/about.html for more information.
Family Caregiver Alliance: National Center on Caregiving offers local and national programs to support and sustain the important work of families and friends caring for adults with chronic, disabling health conditions such as Alzheimer's disease, stroke and Parkinson's disease. A wealth of caregiving advice, resource listings, newsletters, fact sheets, research reports, policy updates, discussion groups, and the Family Care Navigator are available free on the FCA website. Visit: https://www.caregiver.org or call (800)445-8106 for more information.
New technology developments in health monitoring, tracking/alert systems, medication management and scheduling/organizing care have proven to be useful tools for families providing care at home for loved ones with Alzheimer’s disease, stroke, heart failure and other conditions. And FCA has long advocated for utilizing any and all tools—including the latest, digital apps—to assist family caregivers.
Of course we know that the personal touch is always front and center in care for someone who is ill or frail. But as a caregiver—even if you live with your loved one—you simply can’t be available 24/7. As our most recent guest column for PBS Newshour outlines, there are multiple ways that digital tools can benefit families, enhance personal care, and help prevent worrisome incidents or accidents.
To help you learn more about these emerging technologies that can offer support in caregiving households, we’re pleased to present two outstanding free webinars:
- January 14, 2015: New Ways to Care: How Family Caregivers Can Use New Technologies at Home. This is a practical overview of how technology can help you care for a loved one. The focus today is on making your home safer and more efficient. We’ll look at current products as well as some exciting innovations in the pipeline for development. Click HERE to register. https://attendee.gotowebinar.com/register/7640470380559877634
- January 21, 2015: Guide to Tech Services & Products: Making the Best Match for Your Family’s Needs. If you’re not a tech wiz, how do you find and evaluate the new digital products that are available right now? In this second webinar, we’ll offer useful tips and checklists to guide your decision-making. Click HERE to register. https://attendee.gotowebinar.com/register/2055973857425490690
We hope you’ll join us! Both programs run from noon to 1:00 p.m. (PT) online. Underwriting for these educational webinars and materials is provided by Julia Ko.
We have also launched a new service on our website called Tech4Care, which helps match new technologies with the families that can use them. Tech4Care offers product developers the opportunity to connect with visitors to the FCA website—check out the featured products on the site.
As we kick off the New Year and this next wave of FCA tech-related projects, we’re thrilled to announce that we have received funding for further initiatives as well. Projects now under development include new educational programs for family caregivers, online guided caregiver assessment with tailored education and service interventions, and enhanced information on our popular Family Care Navigator. Look for more info on these exciting projects in future blogs!
From all of us at FCA, we wish you all a Happy, Healthy and Innovative 2015!
by Leanne Loughran, FCA Student Intern
Most caregivers discover that being responsible for the care of another person is not an easy task. Also, that it isn't really just one, but a series of numerous and often daunting tasks. Juggling work and family life on top of caregiving duties leaves little time to focus on your own needs and well-being.
Each week caregivers take time to schedule and attend doctors’ appointments, pick up medications, and assist the care receiver, with the intent being to improve their health and quality of life as best we can. However as we become increasingly relied upon, attention to our own basic requirements wans; personal checkups, dental visits and taking time to simply relax or workout becomes viewed as inessential or impossible to fit in. The effect of this is not only physical, but mental and emotional too. Depression, stress, immune weakness and higher rates of chronic illnesses such as diabetes and heart disease are all common results of long-term caregiving.
As caregivers we often set an ideological standard for ourselves in which we are obligated not to speak of our own needs or stresses. However, the irony is that by not addressing our own health needs we are not able to provide the level of care that we hope to give. Here are a few of the ways you can help to look after you and your health:
Tip 1- Dealing with stress
We all experience stress at certain points, caregivers however are more prone to prolonged and high level stress, which is associated with headaches, upset stomach, elevated blood pressure, chest pain, and problems sleeping etc.
Learning to prevent and deal with stress can have a significant positive impact on your wellbeing and outlook. Exercise, social activities with friends and meditation are excellent ways to support your body and mind.
When you’re stressed, do you get a headache? Become irritable or restless? Learning to recognize your ‘stress symptoms’ is beneficial as you can then identify the key sources of your anxiety. Try to avoid or minimize stress triggers wherever possible, as even small changes can make a major difference. Simply entering a situation with a more relaxed mindset can help you perceive and manage a situation differently.
Taking ‘Me’ time is vital. Setting aside even small amounts of time to walk, exercise, read or meet with friends can help reduce stress levels considerably.
Tip 2- Take time away from caregiving.
For many, this may sound easier said than done. Caregivers often feel alone in their situation and don’t know where to turn for help. Reaching out to friends and family to assist in the caregiving can offer tremendous relief and support. Creating a list of who is willing to help and when they are available can help you create a schedule which offers free time for you to focus on your needs.
Organizations such as the Family Caregiver Alliance and Eldercare Locator can also help to identify resources in your area that may be able to assist you.
Tip 3- Join a support group.
As a growing number of individuals take on the caregiver role, support groups have sprung up to meet the needs of this population. Taking advantage of these support networks can offer many benefits; it allows you to see that you are not alone, which many caregivers find comforting and offers you an opportunity to speak about your frustration, anxieties and issues.
This time among peers can offer a new perspective and help you to identify various management tools and resources which are relevant to your situation.
Tip 4- Communicate effectively with the Physician
As caregivers increasingly become relied upon to administer medication, injections etc. they often have to meet with the physician to gain advice and information on these topics, as well as to address other health concerns of their loved one. Seldom however do the caregivers utilize this time to discuss their own health needs.
Preparing questions ahead of time and booking an appointment first thing in the morning, after lunch or the at the end of the day can reduce your wait time and help you make the most of your visit.
What’s more, it is important that you use assertive communication and "I" messages. You should regard the medical care team as your partners in care. Present what you need, what your concerns are, and how the doctor and/or nurse can help. Use specific, clear "I" statements like the following: "I need to know more about the diagnosis; I will feel better prepared for the future if I know what's in store for me." Or "I am feeling rundown. I'd like to make an appointment for myself and my husband next week." In doing this you increase your confidence, your relationship with the physician and the likelihood that your needs will be met.
Caring for the Caregiver
We all know someone who has or is currently providing care and we have seen the impact that this role can have on the physical and emotional wellbeing of that person. Taking time off without feeling guilty, tending to our own needs and asking for help when you need it can greatly improve the caregiving experience for both youself and the care receiver.
For more information please visit:
Family Caregiver Alliance (2012) https://www.caregiver.org/taking-care-you-self-care-family-caregivers
Family Doctor.org (2012) http://familydoctor.org/familydoctor/en/seniors/caregiving/caregiver-health-and-wellness.html
Wondering Wandering (2013) http://wonderingonwandering.com/post/48852805741/why-we-should-care-about-caregivers-especially-in
by guest bloggers, Kristen Konopka, MPH, Courtney Clyatt, MA, and Susan Sheridan, MBA, MIM
As Americans live longer and face higher rates of chronic conditions, family members are increasingly stepping up to provide their day-to-day care. The Patient-Centered Research Institute (PCORI) recognizes the critical and growing role these nearly 66 million family caregivers play in our complex healthcare system. To mark National Family Caregivers Month, PCORI would like to highlight a few PCORI-funded projects that focus not only on how to improve the invaluable support caregivers offer but also how to better care for these frontline health providers themselves.
Last year, PCORI commemorated National Family Caregivers Month by describing how its support is bringing the caregiver’s voice to both our process of funding research and the way those studies are conducted. PCORI highlighted projects that focus on improving the quality of life of patients through addressing the needs of their caregivers. These studies engage caregivers throughout the research process to ensure that their valuable perspectives inform the development of improved approaches to treating some of the most challenging diseases.
This year, PCORI would like to share examples of a different approach to improving the lives of caregivers and the patients they support. Through the Pipeline to Proposal awards, PCORI invests in projects that build capacity for patients, caregivers, researchers, and other healthcare stakeholders to build partnerships from the ground up around a common healthcare interest. Below describes five Pipeline to Proposal awards that highlight caregivers. PCORI expects Pipeline to Proposal partnerships to lead to high-quality research ideas and collaborations. To date, PCORI has funded 30 Tier I Pipeline to Proposal awards, which support the initial development of partnerships. PCORI plans to announce additional opportunities for funding across all tiers of the program later this month.
Caregivers for the Elderly
The CISE Project for Family Caregivers is based at the Chinese Information and Service Center (CISE), a community nonprofit organization in Washington state. The center recognized the burden placed on people in the Chinese-American community who are providing long-term caregiving to family members. CISE, which provides social services, recognized the emotional and physical toll on caregivers, most of whom are helping elderly relatives. Our Pipeline to Proposal award supports the development of a partnership between CISE, a researcher, and a caregiver to create a community-based needs assessment to improve caregiver training and support. Following the principles of community-based participatory research, the project will interview family caregivers to understand their needs and solicit their ideas about an ideal training program.
Taking Care of Our Parents: Improving the Coordination of Care for Elderly Community Members, a community partnership initiative led by the Leaving Well Coalition in Utah, addresses the fragmentation of the long-term care continuum. By learning from community members who have provided care, this project aims to improve the way caregivers navigate an often-confusing healthcare system. The project has created an advisory committee of advocates for elders and experts from agencies with responsibilities for aspects of elder care. It used a short survey to ask elderly patients and caregivers about ways in which they can be better supported. That survey helped identify individuals to participate in personal interviews and group discussions aimed at identifying common issues in elder care. These activities are a first step in defining a research question that addresses needs of the community of elderly patients and caregivers.
Improving the Lives of Alzheimer's Patients and Their Caregivers: A Patient-Centered Statewide Approach is a project from the Billings Clinic Center for Clinical Translational Research in Montana. This project aims to engage patients, stakeholders, and researchers to develop a research agenda that will improve the lives of patients with Alzheimer’s disease and related dementias. The project will take a comprehensive approach to promoting awareness of the disease, encouraging early detection, improving disease management and care coordination, and addressing caregiver burden. This team is identifying gaps in care and developing the infrastructure to engage in research to address the needs of their community.
Caregivers across the Spectrum
Although most family caregivers support older family members, there are also many parents and other relatives providing care for children and young adults with special needs. We are committed to investing in projects that address the needs of this community.
Increasing Patient Engagement and Capacity Building between Community Stakeholders and Patients to Improve Diabetes Education and Management among School-Aged Children is developing a partnership of diabetes patients and their families, school nurses, school personnel, diabetes nurses, and diabetes care advocates to address concerns that children are receiving suboptimal diabetes care while at school. Through focus groups, community meetings, and a leadership council, this project seeks to create a community group that will develop a research agenda to determine effective ways to support schools in providing better diabetes care and improve their communication with caregivers. This project is based at Seattle Children's Hospital in Washington state.
Establishing a Patient-Centered Research Community for Cystic Fibrosis is a project of CysticLife, an Arizona-based online community for patients with cystic fibrosis and their caregivers. Cystic fibrosis patients tend to be children and young adults because the average life expectancy is 40 years. CysticLife provides a forum for its members to regularly share about what is working for them, what isn't, and what side effects they are experiencing. With PCORI funding, a partnership of patients, caregivers, clinicians, and researchers will develop research questions important for the cystic fibrosis community to make informed treatment decisions.
We are excited about investing in these projects that strengthen relationships between patients, caregivers, researchers, and other stakeholders, particularly in communities that have been underrepresented in research.
If you are a caregiver, we thank you for your contributions to the nation’s healthcare system and encourage you to contribute ideas to our ever-evolving research programs; find out more in the Get Involved section of PCORI’s website. If you know a caregiver, we hope you’ll express your appreciation and see how you can help. PCORI welcomes you to join us in supporting comparative effectiveness research to learn the best ways to support caregivers and their patients.
In honor of Veteran's Day tomorrow, we are posting an article written by FCA Family Consultant, Christina Irving, who attended and provided instruction to military caregivers at the 2014 National Disabled Veterans Winter Sports Clinic, earlier this year. She summarizes her experience below.
Between March 30th and April 4th 2014, the National Disabled Veterans Winter Sports Clinic was held in Aspen Snowmass in Colorado. For 28 years, this event has brought together over 300 Veterans to ski, scuba dive, kayak, play sled hockey, rock climb and participate in other adaptive sports and educational workshops. And standing at the base of the mountain or climbing wall, and outside the boards of the ice rink, were their caregivers—family members who have stood alongside these veterans, often through months or years of rehab since returning home from service. Whether the participating veterans were physically changed due to amputation or spinal injury, cognitively altered from traumatic brain injuries, or psychologically affected from post-traumatic stress disorder, their caregivers have been there. They stood cheering on their Wounded Warriors determined to work with their disabilities to find enjoyment and challenge through sport, recreation and the great outdoors.
New to this year’s Winter Sports Clinic were two classes specifically for these family caregivers. Following the passage of the Caregivers and Veterans Omnibus Health Services Act of 2010, the VA began offering educational and supportive programs to caregivers of Veterans. They focus on self-care for family caregivers, addressing Problem Solving & Effective Communication, Stress Management, Taking Care of Yourself, and Utilizing Technology for Caregivers.
The majority of caregivers in these classes are women caring for their husbands, but there are also husbands caring for wives, parents once again caring for their children, as well as siblings and in-laws. Many of the caregivers describe the difficulty in seeing these strong warriors struggle with issues of dependence: how to come to terms with their own value and self-worth when so much of their identity was based on their leadership abilities in the military. Through these classes caregivers find camaraderie and support, in addition to learning skills to help them become even more resilient and adaptive.
It was fitting that this same week the RAND Corporation released the report Hidden Heroes: America’s Military Caregivers. The 5.5 million military caregivers are warriors themselves, leading their families into new and unfamiliar territory. Caregivers are the backbone of long-term care in the US and considering how young many of these post 9/11 Veterans are, we’re going to be relying on their caregivers for a long time. The caregivers of Vietnam and Korean-era Veterans often act as role models for these younger caregivers, sharing tips on dealing with PTSD, navigating the often complicated medical systems, and how to explain to kids and other family members why dad is uncomfortable in crowds.
Through the classes offered at this year's Winter Sports Clinic, the caregivers explored how to fit self-care into their very busy lives, the importance of monitoring their own health, and the need to find support for themselves. They talked about the struggles they faced, their fears and frustrations, and how they are able to find humor and joy in spite of it all. But of course it was the sight of their loved ones, the veterans—whether scaling up the climbing wall or passing overhead in ski lifts then flying smoothly down the mountain—that was truly inspiring. [Additional photos from the event can be found on our Pinterest page.]
For more information, visit:
- Disabled American Veterans Winter Sports Clinic
- Family Caregiver Alliance – Veterans
- VA Caregiver Support Program
By Michelle Venegas (FCA Programs & Services Director) [View event photos on our Pinterest board]
This past Saturday marked our third annual Latino Forum. A free conference for Spanish –speaking family and friends caring for somebody with dementia or an aging loved one. The focus for this year’s Forum, held at Catholic Charities Adult Day Support Program on Broad Street in San Francisco, was Health for Family Caregivers. Workshops topics included Stress Management for Family Caregivers, Therapeutic Yoga and Introduction to Dementia and Memory Problems. The speakers were engaging, dynamic and generously donated their time, on a Saturday morning, to offer their knowledge and expertise. Family caregivers walked away feeling more informed and supported by one another and the provider community.
Supporters of the event included Catholic Charities, On Lok, the Alzheimer’s Association, the Institute on Aging and the City and County of San Francisco - Area Agency on Aging. Participating agencies had a designated resource table where participants could talk to agency staff members and collect a variety of information about community happenings, available services, and resources by health issue or condition.
The conference also gave Latino family caregivers the chance to connect with one another. All too often family caregivers feel isolated and overwhelmed with their caregiving responsibilities. Talking and relating to another family caregiver on a personal level about shared experiences, challenges and concerns is often comforting and desperately needed. Family caregivers also learned from each other, sharing ideas, tips, and information on how to best care for and meet the needs of their loved ones.
Family caregivers were able to focus on themselves and their needs, which was a welcomed change from their average, often hectic day, where the focus is on their loved one’s needs. Whether preparing meals, rushing to appointments, giving medications, dealing with a mountain of paperwork, attending to personal needs and doing a variety of other care needs, the needs of family caregiver’s often fall to the way side. This day included some tears and a lot of laughter and feelings of gratitude for the gift of a day designed specifically for them. Respite grants were offered to participants’ to ensure they could take part in the event, knowing that their loved one was being cared for and in good hand, either through the direct pay option or through a reputable home care agency, with whom we contract.
The Forum was dedicated to the memory of Lois Escobar, who worked for FCA for over 20 years as a Family Consultant. Lois formed not only the Latino Forum but the Spanish family caregiver support group that has been going strong for years. Lois was devoted to the family caregivers she served each and every day. She was an exceptional person and touched so many people’s lives until she lost her battle to cancer in 2013.
Congratulations to California workers! In the early morning hours of Saturday, August 30th, California became the second state (after Connecticut) to pass a paid sick leave bill, now awaiting signature by Governor Jerry Brown. The bill requires businesses to provide up to three paid sick days per year for employees who work 30 days or more—a great first step towards helping hardworking Californians. Sick days may be used to care for an employee's own illness, or for that of a family member (child, parent, spouse, domestic partner, grandparent, grandchild, or sibling). Noteworthy: the bill excludes the state’s In-Home Supportive Service workers. The Sacramento Bee covered the event this weekend.
The Gilbert Winners Digital Scrapbook: Honoring the 2013 Awardees
Congratulations to the 2013 The Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Awards winners! The digital scrapbook has been updated to include the most recent 2013 award recipients. You can view the scrapbook on FCA’s website to learn more about The Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Awards and the previous winning programs.
The three categories of the Gilbert awards are: Policy and Advocacy, Creative Expression, and Diverse/Multicultural Communities; however, this past year, there were two winners for Creative Expression in the absence of a Policy & Advocacy winner. They were as follows:
- Creative Expression category: WeOwnTV (San Francisco, CA), for The Genius of Marian
- Diverse/Multicultural Communities category: Alzheimer’s Community Care (West Palm Beach, FL), for Community-based Alzheimer’s Specific Services for Everglades Agricultural Area
- Creative Expression category: New Mexico Literary Arts (Santa Fe, NM), for Alzheimer’s Poetry Project
Inviting 2014 Applicants for the 7th Annual Gilbert Awards
Family Caregiver Alliance is excited to help The Rosalinde and Arthur Gilbert Foundation coordinate the seventh annual Rosalinde Gilbert Innovations in Alzheimer’s disease Caregiving Legacy Awards. We have already started receiving applications for this year’s awards (2014), which will recognize three new recipients with an award of $20,000 each. Nonprofit organizations, government agencies or universities are all encouraged to apply on behalf of a qualifying program or project. The purpose of the awards is to focus on programs or projects that serve Alzheimer’s disease family caregivers and related dementias.
Know a program that might qualify? Share this web page with them. The 2014 applications are online only at: https://caregiver.org/gilbert-awards-application. More information can be found at: https://www.caregiver.org/gilbert-awards-general-information
The deadline to apply is Friday, August 22, 2014 at 5 p.m. (Pacific Time).
Coordinator, Rosalinde Gilbert Caregiving Legacy Awards Program
In the early part of last month, FCA hosted a special retreat in San Francisco’s historical Stern Grove for Spanish-speaking caregivers. Typically, FCA’s retreats are in English, but we wanted to plan a special day for our caregiver clients that only speak Spanish.
We started the day with a segment on managing caregiver stress that was led by Elaine Williams, a holistic health and fitness coach. After that we had Barbara Moran lead a chair yoga segment with the caregivers. Barbara is committed to making these techniques for controlling stress more accessible for the Spanish-speaking community in the Bay Area. The closing segment was led by Sonia Cajade Frias, a Spanish Anthropologist and Social Artist at UC Berkeley, who guided the caregivers through a collage activity.
The caregivers were so grateful to connect with other Spanish-speaking caregivers in the community and to have a chance to take a day for them. Throughout the retreat we learned of their personal caregiving journeys and how many of them had not been able to go out like this in a while. As the Education Coordinator at FCA, this retreat was a pleasure to plan and especially to see how meaningful it was for the caregivers who attended. To view the photos from this event, please visit one of our Pinterest boards, FCA Staff Photos and Caregiving Events.
Education Coordinator, FCA