FCA Blog

GOP Bills to Repeal the Affordable Care Act (Obamacare) Will Have a Critical Impact on Family Caregivers

Every day we talk with family caregivers from across the country and hear their stories of love, struggle, and heartbreak. Many families count on Medicaid for services and they know that their loved one will need home and community based services or a nursing home in the future.

The Time is Now: Let Senators Know the AHCA is Bad for Family Caregivers

The American Health Care Act (AHCA) is moving swiftly through the U.S. Senate and heading to a vote by the end of June. To date there have been no hearings on the specifics of the bill and development has been behind closed doors with just a handful of Senators taking part. The CBO score on the bill is expected within the next week that will provide an analysis of bill prior to a final vote.

House-Passed Trumpcare Bill is a Loss for Family Caregivers, Disabled, and Older Americans

It is a sad day indeed that the Republican-led majority in the House of Representatives voted today to pass the American Health Care Act that effectively repeals the Affordable Care Act. This will mean millions of Americans — especially those with pre-existing conditions — will lose their health care insurance. It shreds the Medicaid safety net for millions of frail elders, disabled adults, and special needs children.

Here are some specifics:

Call it TrumpCare Now: Regulatory Changes Diminish the Affordable Care Act to the Detriment of Family Caregivers

While wholesale repeal of the Affordable Care Act (ACA) failed to get the required votes for passage out of the U.S. House of Representatives, the Trump Administration has issued new regulations that will increase the cost of insurance premiums and make it harder to enroll in coverage in 2018.

Changes to Medicaid: A Bad Deal for Family Caregivers

By Kathleen Kelly, Executive Director, Family Caregiver Alliance

As of this writing, the policy battle over repealing and replacing the Affordable Care Act (ACA) continues in Congress. The issue that gets the most coverage at the moment is how big the loss of health insurance coverage for individuals will be under the proposed Republican sponsored American Health Care Act. Just released estimates by the nonpartisan Congressional Budget Office state that 24 million Americans will lose their health insurance coverage within a decade.

A quick view on technologies for family caregivers

Written by Kathy Kelly, FCA executive director

A Complex Web: Family Caregiving and Healthcare

[Editor's note: This blog was originally posted on the the Atlas of Caregiving website on June 2, 2016. The Atlas of Caregiving Pilot is a partner project of Family Caregiver Alliance.

Atlas of Caregiving Pilot Study: What We’ve Learned

[Editor's note: This blog was originally posted on the the Atlas of Caregiving website on May 9, 2016. The Atlas of Caregiving Pilot is a partner project of Family Caregiver Alliance.

What Is Palliative Care and Is It Right for Your Family?

[Note: The following FCA Blog post was originally published in 2012. After sharing a recent article from The New York Times—“In Palliative Care, Comfort Is the Top Priority”—on FCA's Facebook page we decided to revisit this post.]


How to let go when a loved one is dying

Advance care planning is essential to improving the quality of end-of-life care. This month (January 2016) the Centers for Medicare & Medicaid Services (CMS) begin reimbursing physicians of Medicare beneficiaries for the time taken to have advance care planning conversations with patients. Private insurers may well follow suit. When the healthcare team works in concert with the care receiver and caregiver to have honest, thoughtful conversations, it removes barriers for life time remaining wishes to be heard and honored.