FCA Blog

Atlas of Caregiving Pilot Study: What We’ve Learned

[Editor's note: This blog was originally posted on the the Atlas of Caregiving website on May 9, 2016. The Atlas of Caregiving Pilot is a partner project of Family Caregiver Alliance.

What Is Palliative Care and Is It Right for Your Family?

[Note: The following FCA Blog post was originally published in 2012. After sharing a recent article from The New York Times—“In Palliative Care, Comfort Is the Top Priority”—on FCA's Facebook page we decided to revisit this post.]


How to let go when a loved one is dying

Advance care planning is essential to improving the quality of end-of-life care. This month (January 2016) the Centers for Medicare & Medicaid Services (CMS) begin reimbursing physicians of Medicare beneficiaries for the time taken to have advance care planning conversations with patients. Private insurers may well follow suit. When the healthcare team works in concert with the care receiver and caregiver to have honest, thoughtful conversations, it removes barriers for life time remaining wishes to be heard and honored.

Receta para los Cuidadores en estas Fiestas | Holiday Recipe for Caregivers

Ingredientes para una grata temporada de fiestas y un año nuevo agradable y lleno de paz:

Dos cucharaditas de cuidado propio
Durante esta temporada en la que los compromisos e invitaciones a eventos aumentan, recuerde agregar su nombre a la lista de regalos. Haga algo placentero por usted—regálese un masaje, una manicura, un café con amigos o un largo baño de burbujas.

Not a Jolly Holiday? Use this Guide to Find Gratitude in the Season

Navigating through a jolly holiday season and wishing for a wonderful new year when caring for someone with a chronic, debilitating health condition might have you thinking, “This is no holiday!” But we keep hearing that expressing thanks can lead to a healthier, happier, and less-stressed life. Noted expert Robert Emmons defines gratitude in part as, “… an affirmation of goodness. We affirm that there are good things in the world, gifts and benefits we’ve received. This doesn’t mean that life is perfect; it doesn’t ignore complaints, burdens, and hassles.

Family Caregiver Platform Project: Making Caregivers Matter in Every State

Family Caregiver Alliance (FCA), which is mission-driven to improve the quality of life for caregivers and those they care for through information, services, and advocacy, is a proud Family Caregiver Platform Project (FCPP) national partner. As such, today’s (12/10) blog post feature is meant to announce FCPP’s activities and how others can assist getting family caregiving recognized as a key issue in all state party platforms.

Put Your Family Caregiving on the Map from the Atlas of Caregiving Pilot

A care map is a helpful way to visually represent all the people and services involved in a family caregiving situation.

11/30: Concluding Message From Executive Director Kathleen Kelly

Yesterday's blog post (November 29, 2015) was a pictorial essay "I Am a Caregiver for my __________" with families filling in the blank with their relatives - wives, brothers, mothers, fathers, and others dear to them. Entitled Let's put a face on caregiving!, it is the faces and stories of the families Family Caregiver Alliance (FCA) supports throughout the years by giving practical advice, teaching a skill, finding a resource, or just listening and acknowledging one's caregiving journey.

11/29: Let’s put a face on caregiving!

On Day 4 of our 30 Days of Caregiving blog, we wrote about the “I am a Caregiver for my ______” social media initiative.

11/28: Taking Care of YOU: Self-Care for Family Caregivers, Caregiving With Your Siblings, and Pathways to Effective Communication for Healthcare Providers and Caregivers

Beyond the most intimate physical dimensions of providing care for a loved one, informal caregivers often struggle with the attendant issues of communication in caregiving, ranging from managing complex family relationships to establishing routines of self-care to navigating the unfamiliar dynamics of working alongside healthcare professionals.