Peer Mentoring Support and Caregiver Education

PERSEVERE is a national study funded by the National Institutes of Health testing an educational program for family caregivers of people with Parkinson’s Disease with cognitive impairment, Parkinson’s Disease Dementia, Dementia with Lewy Bodies, or Lewy Body Dementia. PERSEVERE will test whether a disease-specific, caregiver-centered educational intervention improves caregiver outcomes – and whether it helps people living with neurologic disease, too.

Family caregivers will receive weekly educational guidance through a 12-week curriculum with resources and activities. All participation is virtual and scheduled when it works for you. There are no in-person visits and the person with Parkinson’s Disease, Dementia with Lewy Bodies, or Lewy Body Dementia does not participate – just caregivers. Caregivers fill out online surveys and assessments at baseline and every two weeks throughout their involvement in the study, including a six-month follow-up period after the 12-week curriculum.

–Who: FAMILY CAREGIVERS to individuals with: Parkinson’s Disease with cognitive impairment or hallucinations; Parkinson’s Disease Dementia; Dementia with Lewy Bodies; or Lewy Body Dementia.

Criteria:
o Caregivers must be >18 years of age.
o Your loved one with Parkinson’s Disease or Lewy Body Dementia must have
cognitive symptoms or hallucinations.
o You must be living with or spending at least 10 hours/week caregiving now.
o You must live in the US, have a phone and internet, and be comfortable speaking
and reading English.

Interested in learning more?
Visit https://redcap.link/PERSEVERE1 to watch a video providing more information about the study
and complete the eligibility survey.
Email persevere@rush.edu with questions.