Professional Research Registry

Alzheimer’s? Agitation? Aggression? Join a clinical trial

Submitted by lsheridan on Tue, 2019-02-05 12:25

Are you diagnosed with Alzheimer's Disease? Do you feel restless or are you currently experiencing agitation, anxiety, or aggression? If so, you may want to see if you qualify for a clinical trial.
The pre-screening process is simple and qualified participants will have the chance to receive the study-related investigational drug at no charge. Just follow the steps below to get started:

Analysis of Language and Speech in Patients with Frontotemporal Dementia (FTD)

Submitted by lsheridan on Thu, 2019-01-10 18:32

Winterlight Labs, a technology company, and Alector, a biopharmaceutical company based in San Francisco, are partnering to conduct a speech assessment study in persons diagnosed with behavioral variant FTD (bvFTD) or primary progressive aphasia (PPA). The purpose of the study is to evaluate whether an in-home speech assessment that uses an iPad application can detect changes in how the brain processes information in FTD. By analyzing how you speak, Winterlight Labs and Alector may be able to detect changes in brain information processing that cannot be detected with other tests.

Developing and Validating a New Caregiver Experience Scale

Submitted by lsheridan on Mon, 2019-01-07 17:20

This survey will help scientists better understand the experience of being an informal caregiver.  Informal caregivers are family members or friends who provide unpaid care and play an important role supporting the lives of those experiencing illness.  Informal caregivers may help with eating, dressing and bathing, provide emotional support, keep financial accounts, and may also help with home medical treatments, arrange and attend patient appointments, and coordinate patient care among multiple providers.

Can I get paid to care for a family member?