Professional Research Registry

Caregivers sHAring Meaningful PrIOrities for patieNtS (CHAMPIONS)

Are you overwhelmed by the number of decisions you need to make for your loved one? The CHAMPIONS team at the University of Maryland, School of Pharmacy is looking for family caregivers of individuals diagnosed with Alzheimer’s Disease or a Related Dementia to complete a 45 minute computer-based survey on care management decisions and treatment goals. This survey has been informed by other caregivers just like you, and helps you think through what is most important to you during this journey.

Care Ecosystem: Navigating Patients and Families through Stages of Care

The Care Ecosystem is a supportive care research study designed to better understand and manage dementia care. The aim of the study is to better understand the needs of people living with dementia and their caregivers, to help improve the care of those with dementia, and to lower the costs associated with dementia care.

Caregivers’ Use of Patient Portals for Their Loved Ones

Dear Caregivers,

You are invited to participate in an anonymous survey on your experience with the Internet and patient portal use. You are eligible for this survey if you are an adult caregiver who provides your loved ones with assistance in medical and personal care. This study was supported by the University of Maryland, Baltimore. All participants who complete the survey will be entered into a random drawing for a chance to win one of three gift cards, each worth $100.

Mobile Assessment of Cognitive Function

Miro is an iPad application developed to detect and monitor diseases that affect the brain. Miro’s mission is to deliver the best brain healthcare available to everyone through mobile devices. We are committed to empowering individuals and families with tools to accurately and reliably monitor their brain health.

Life Enhancing Activities for Family Caregivers (LEAF)

Researchers at the University of California San Francisco are testing a program for family caregivers of people with dementia. Six positive emotion based skill-building sessions are delivered one-on-one via videoconferencing on study-supplied tablet computers, so caregivers can take part from anywhere in the USA. Study consists of six weekly hour-long sessions, nightly home practice, and online surveys.