Professional Research Registry

Caregiving Across the Lifespan

This study is designed to look at individuals’ caregiving experiences, their current adjustment, and their current health, and it takes about 30 minutes to complete (either online or via a mailed out survey).

HEADWAY–DLB

Dementia with Lewy bodies (DLB) is a progressive type of dementia. DLB is characterized by fluctuations and impairments in memory and thought, including alertness and attention. Many DLB patients also have visual hallucinations and sleep disturbances.

Currently, there are no approved treatments for dementia with Lewy bodies in the United States.

CHAMPIONS Study: Caregivers Sharing Meaningful Priorities for Patients

Are you overwhelmed by the number of decisions you need to make for your loved one? The CHAMPIONS team at the University of Maryland, School of Pharmacy is looking for family caregivers of individuals diagnosed with Alzheimer’s Disease or a Related Dementia to complete a 45 minute computer-based survey on care management decisions and treatment goals. This survey has been informed by other caregivers just like you, and helps you think through what is most important to you during this journey.