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Huntington’s Disease Caregiver Resource Guide

See accompanying video, Huntington’s Disease Caregivers: You’re Not Alone.

Key Resources

Emotional Support

  • HDSA Telehealth
    https://hdsa.org/find-help/community-social-support/hdsa-telehealth/
    Free program to connect HD community with qualified HD knowledgeable mental health therapists.

Community Resources

  • Eldercare Locator
    https://eldercare.acl.gov/Public/Index.aspx
    A public service to connect individuals to community services for older adults and their families.
    Helpline 1-800-677-1116
  • I Have HD Card
    http://hdsa.org/wp-content/uploads/2015/05/HDSA-LET-I-Have-HD-ID-Card.pdf

Legal and Financial Planning

Research

Need More Info?

  • Search our extensive library of resources under All Resources on our website.
  • Sign up for CareNav™, a free online dashboard (+ customized resources) for family caregivers.
  • Need additional help? Contact us info@caregiver.org or 800.445.8106.

Multiple Languages
Many FCA resources, including some above, are available in SpanishVietnameseChineseTagalog, and/or Korean.

Visit Our Website, Email, or Call Today
www.caregiver.org | info@caregiver.org | 415.434.3388 | 800.445.8106

For more than 40 years, Family Caregiver Alliance has worked to improve the quality of life for family caregivers and their care recipients through services, education, advocacy and research. We support and assist caregivers of adults with chronic or disabling health conditions regardless of race, ancestry, national origin, creed, gender, gender identity, religion, sexual orientation, disability, income, or age.

This guide was underwritten with funding from Adira Foundation with additional support from other generous donors and produced by Family Caregiver Alliance.