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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Alzheimer’s Disease Research Center – 1Florida Alzheimer’s Disease Research Center (1Florida ADRC)

https://1floridaadrc.org/

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information line: 305-355-9080

Alzheimer’s Disease Research Center – Mayo Clinic Alzheimer’s Disease Research Center

https://www.mayo.edu/research/centers-programs/alzheimers-disease-research-center/about/overview

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups. The Mayo Clinic Alzheimer’s Disease Research Center has two sites, one in Jacksonville, FL, and one in Rochester, MN.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information line: 904-953-6523

ARCH National Respite Network and Resource Center

https://archrespite.org/

ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Phone: 703.256.2084

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

The Department of Elder Affairs administers programs and services for elders across the state of Florida through 11 Area Agencies on Aging, which operate as Aging and Disability Resource Centers (ADRCs). These ADRCs function as a single, coordinated system for information and access to services for all Floridians seeking long-term care resources.  The ADRCs provide information and assistance about state and federal benefits, as well as available local programs and services.

Care Recipient Eligibility

Older adults, families, caregivers and all Floridians.

Caregiver Eligibility

Older adults, families, caregivers and all Floridians.

Contact Information

1-800-963-5337

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Florida Statewide Medicaid Managed Care Long-Term Care Program

https://elderaffairs.org/programs-and-services/statewide-medicaid-managed-care-long-term-care-program/

The Florida Statewide Medicaid Managed Care Long-Term Care Program is a Medicaid program designed to assist the needs of elderly residents. SMMC LTC provides participant direction, meaning, the care recipient can pick and choose their personal care provider- often times a family member- who can then be compensated. Depending on participant eligibility, the program also provides: non-emergency transportation, assisted living, adult day care, caregiver training, case management, medication administration, respite care, hospice, home delivered meals, medical equipment and supplies, etc.. 

Care Recipient Eligibility

Anyone- including family members, spouses, and adult children

Caregiver Eligibility

Anyone- including family members, spouses, and adult children

Contact Information

Elder Helpline: 1-800-963-5337

The Home Care for the Elderly (HCE) program supports care for Floridians age 60 and older in family-type living arrangements within private homes, as an alternative to institutional or nursing home care. A basic subsidy is provided for support and maintenance of the elder, including some medical costs. A special subsidy may also be provided for services and/or supplies.

Care Recipient Eligibility

Adult who lives in home with the care recipient 

Caregiver Eligibility

Adult who lives in home with the care recipient 

Contact Information

Elder Helpline: at 1-800-963-5337

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

American Association on Caregiving Youth

https://aacy.org/

The American Association of Caregiving Youth (AACY) was founded to serve people who were homebound and caregiving families.

Caregiving Youth are children and adolescents who are 18 years of age or younger and who provide significant or substantial assistance, often on a regular basis, to relatives or household members who need help because of physical or mental illness, disability, frailty associated with aging, substance misuse, or other condition.

Care Recipient Eligibility

Children and adolescents who are 18 years of age or younger.

Caregiver Eligibility

Children and adolescents who are 18 years of age or younger.

Contact Information

800-508-9618 561-391-7401

Florida County-Specific Veterans Service Officer Contacts (VSO)

http://floridavets.org/wp-content/uploads/2012/08/CVSO-Directory-June-1-2019.pdf#new_tab

Florida’s County Veterans Service Officers (CVSOs) are county‑level, accredited representatives who help veterans with free VA benefits, claims, and appeals

Contact Information

(727) 518-3202

Florida Department of Veterans’ Affairs

http://www.floridavets.org/

Provides Florida’s aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(850) 487-1533 For 24-hour counsel, call the National Veteran Crisis Hotline at (800) 273-8255. In Spanish: (727) 319-7427

Medicaid is a medical assistance program that provides access to health care for low-income families and individuals. Medicaid also assists the elderly and people with disabilities with the costs of nursing facility care and other medical and long-term care expenses.

In Florida, the Agency for Health Care Administration (Agency) is responsible for Medicaid.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 762-2237

Florida Statewide Medicaid Managed Care Long-Term Care Program

https://elderaffairs.org/programs-and-services/statewide-medicaid-managed-care-long-term-care-program/

The Florida Statewide Medicaid Managed Care Long-Term Care Program is a Medicaid program designed to assist the needs of elderly residents. SMMC LTC provides participant direction, meaning, the care recipient can pick and choose their personal care provider- often times a family member- who can then be compensated. Depending on participant eligibility, the program also provides: non-emergency transportation, assisted living, adult day care, caregiver training, case management, medication administration, respite care, hospice, home delivered meals, medical equipment and supplies, etc.. 

Care Recipient Eligibility

Anyone- including family members, spouses, and adult children

Caregiver Eligibility

Anyone- including family members, spouses, and adult children

Contact Information

Elder Helpline: 1-800-963-5337

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

Florida’s National Family Caregiver Support Program offers services to help families under certain circumstances, including those that care for frail older relatives and grandparents, or older relatives who serve as caregivers for minor children or children of any age who have disabilities. Services for family caregivers are provided through local area agencies on aging (AAAs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

To be connected to your local AAA call the Florida Elder Helpline: (800) 963-5337

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

SHINE (Serving the Health Insurance Needs of Elders)

http://www.floridashine.org/

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Call the Elder Helpline and ask to speak with a SHINE counselor: (800) 963 5337

USAGov – Government Benefits

https://www.usa.gov/benefits

Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

USAGov Contact Center: 1-844-872-4681

Can I Get Help While Living In My Home?

Florida Association of Centers for Independent Living

http://www.floridacils.org/

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and Referral
– Peer counseling
– Care management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Toll Free: (866) 575-6004 (850) 575-6004

Florida Division of Vocational Rehabilitation

http://www.rehabworks.org/

This state department helps residents of Florida with disabilities to obtain and retain employment. It provides information and referral services for independent living.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Voice and TDD: (800) 451-4327 Voice and TDD: (850) 245-3399

Florida Hospices and Palliative Care

http://www.floridahospices.org/

A non-profit organization representing Florida’s Hospice programs. Website includes online directory of hospice agencies.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Consumer Hotline: (800) 282-6560 or (850) 878-2632 Member Services: (877) 783-1922

Florida Statewide Medicaid Managed Care Long-Term Care Program

https://elderaffairs.org/programs-and-services/statewide-medicaid-managed-care-long-term-care-program/

The Florida Statewide Medicaid Managed Care Long-Term Care Program is a Medicaid program designed to assist the needs of elderly residents. SMMC LTC provides participant direction, meaning, the care recipient can pick and choose their personal care provider- often times a family member- who can then be compensated. Depending on participant eligibility, the program also provides: non-emergency transportation, assisted living, adult day care, caregiver training, case management, medication administration, respite care, hospice, home delivered meals, medical equipment and supplies, etc.. 

Care Recipient Eligibility

Anyone- including family members, spouses, and adult children

Caregiver Eligibility

Anyone- including family members, spouses, and adult children

Contact Information

Elder Helpline: 1-800-963-5337

Homecare Association of Florida

https://www.homecarefla.org/

Provides access to a directory of Florida-licensed home health providers, such as Alzheimer’s/dementia care management, chores and homemaker, personal care/home health aide, and more. Search the Provider Directory.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(850) 222-8967

ILRU Directory of Centers for Independent Living (CILs) and Associations

https://www.ilru.org/cil-directory

The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.

Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.

Check out the website link to access the CIL listing by state – including program names, website and contact information.

Program of All-inclusive Care for the Elderly (PACE) organizations provide primary care, social, restorative, and supportive services for individuals 55 years of age and older who live in a PACE service area. PACE organizations provide care and services in the home, the community, the nursing facility, and in the PACE center.

Services provided by PACE:

  • Acute care services
  • Adult day health care
  • End-of life care services
  • Home care
  • Home-delivered or congregate meals
  • Hospital care
  • Laboratory tests, x-rays and other diagnostic procedures
  • Medical specialty services
  • Medical supplies and appliances
  • Nursing facility care
  • Nutritional counseling
  • Personal care
  • Prescription drugs
  • Primary care services (including physician and nursing)
  • Recreational therapy
  • Restorative therapies
  • Social Services
  • Therapy services
  • Transportation

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Florida Agency for Health Care Administration: (888) 419-3456

The RELIEF Program offers family members and loved ones providing constant care for a frail elder and those stricken with Alzheimer’s disease and related disorders a much needed break. Respite care can increase a caregiver’s ability to attend to a homebound elder without becoming ill themselves. Whether it’s shopping, a walk in the park or a night out, you deserve and need time to yourself, free of guilt and free of charge.

Care Recipient Eligibility

Caregivers, family members and loved ones providing constant care for a frail elder and those stricken with Alzheimer’s disease and related disorders.

Caregiver Eligibility

Caregivers, family members and loved ones providing constant care for a frail elder and those stricken with Alzheimer’s disease and related disorders.

Contact Information

Florida Department of Elder Affairs Elder Helpline: (800) 963-5337

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

The Agency for Health Care Administration (AHCA) licenses health facilities in Florida and has a consumer-friendly website to locate licensed facilities including assisted living facilities, nursing homes and adult family care homes. Please visit: to find the AHCA licensed facilities.

Contact Information

Contact AHCA (Florida Agency for Health Care Administration): 888-419-3456

Florida Hospices and Palliative Care

http://www.floridahospices.org/

A non-profit organization representing Florida’s Hospice programs. Website includes online directory of hospice agencies.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Consumer Hotline: (800) 282-6560 or (850) 878-2632 Member Services: (877) 783-1922

Florida Statewide Medicaid Managed Care Long-Term Care Program

https://elderaffairs.org/programs-and-services/statewide-medicaid-managed-care-long-term-care-program/

The Florida Statewide Medicaid Managed Care Long-Term Care Program is a Medicaid program designed to assist the needs of elderly residents. SMMC LTC provides participant direction, meaning, the care recipient can pick and choose their personal care provider- often times a family member- who can then be compensated. Depending on participant eligibility, the program also provides: non-emergency transportation, assisted living, adult day care, caregiver training, case management, medication administration, respite care, hospice, home delivered meals, medical equipment and supplies, etc.. 

Care Recipient Eligibility

Anyone- including family members, spouses, and adult children

Caregiver Eligibility

Anyone- including family members, spouses, and adult children

Contact Information

Elder Helpline: 1-800-963-5337

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Florida

https://www.caregiver.org/uploads/2023/08/Florida-2023-1-1.pdf

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